Oliver spent 16 days at Scottish Rite with RSV. Just when I thought I would go completely crazy, he turned a corner and started getting better. It took forever to get him off oxygen. He is doing well now, but he is sleeping a lot. I'm assuming he's catching up on sleep after constantly getting interrupted in the middle of the night at the hospital.
I'm so glad to be sleeping in my own bed again. Unfortunately we found out during his hospital stay that he is going to have to have open heart surgery in the next several months to close the hole in his heart because it is causing some side effects and they don't think it will close on its own. This has been very hard for me to accept and I'm terrified. We meet with the cardiologist in a week to discuss more specifics.
Thank you all for your prayers and support. It seems like Oliver's first year of life will be a crazy one, but I'm hoping this all makes us stronger, especially him.
Re: Oliver is home!
I am so glad to hear that Oliver is home! What a scary thing to go through on top of everything else you are already going through!
The heart surgeons, heart doctors, nurses, etc. at the Sibley heart center at Egleston are awesome. Children come from all over the southeast to go Sibley because it is such an amazing facility. We are so lucky to have it in Atlanta. Dr. Kogon did my daughter's open heart surgery at 8 days old. If you have any questions about Sibley or the open heart surgery, I am willing to try and answer. I obviously don't know all the ins and outs of the actual surgery, but I know what it is like to go through as a parent. I also have a good friend that is an anesthesiologist at Sibley, so she was able to talk me through things and put me more at ease. It really is an amazing facility and Oliver will be in GREAT hands. While it is not easy for us as parents to go through (it's open heart surgery!), for the doctor's, repairing a hole in the heart is a relatively routine procedure.
*hugs*