Parenting after a Loss

XP: Update to today's u/s and amnio (not CVS)

First, thank you to all who have kept us in your thoughts and prayers over the last several days.  I can't begin to explain how much it's meant to me to have you all in my corner.  Here's a very shortened version of what happened today.  I'd like to eventually post a more thorough explanation one day because we learned quite a bit from the genetic counselor and may be helpful to some of you or others in the future.  It's just that right now, I am completely and utterly exhausted and quite frankly a little too defeated to go into all of it. Hope you'll understand. 

I had more testing today and although the preliminary results will be ready by Wednesday or Thursday, the ultrasound revealed a very poor prognosis. There were severe problems with the brain, heart, kidneys, bowels and also a cyst on the umbilical cord in addition to some other issues. When we asked the doctor his opinion, we were told that there would be very little, if any, quality of life for our little boy. And although we had an idea that these were the things we might be told, we were just devastated and dumb-founded because to see him dancing around on the ultrasound screen we would have been none the wiser. In our eyes he looked perfectly healthy, but it's just not the case. 

Again, thank you for following my story, lending support and just being someone to lean on during this horrible time.  I will never be able to thank you enough. (hugs)

Lilypie - (dLe1)

 

      ***BFP 1-22-13, baby boy dx with Trisomy 13 at 15 weeks.

       We let him go to Heaven on 4-27-13 at 17 weeks 1 day***

 Lilypie - (AW2u)
 

 Lilypie - (L84X)Lilypie - (D4Hj)

 

 

 

 

Re: XP: Update to today's u/s and amnio (not CVS)

  • I am so sorry you were given such news. Although I do not know exactly what you are feeling, I have been on the end of such heartbreak. My thoughts are with you and your family. Please know that we are here for you to lean on, to cry with, and to liste

    My Chart

    My Life

    BFP 7.7.09 - CVS 9.10.09 (Girl) - 9.24.09 Severe Fatal Malformation - D&E 10.7.09 @ 17wks
    BFP 6.1.10 - 6.10.10 Ectopic M/C @ 5wks
    BFP 10.26.10 - 10.29.10 CP
    BFP 1.30.11 - CVS 3.28.11 (Girl) - EDD 10.11.11 - Born 10.6.11
    BFP 12.18.12 - 12.20.12 CP
    BFP 3.18.13 - CVS 5.21.13 (Girl) - EDD 12.2.13 - Born 11.24.13
    BFP 6.10.14 - CVS 7.2.14 (Girl) - EDD 1.12.15 - Born sleeping 8.6.14 @ 17w5d
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  • I am so so sorry. My soul is aching for you. I went through something similar in my first pregnancy, though our diagnosis was 100% fatal, and you are free to PM me if you have questions or want to talk. Words cannot express how much it grieves me to hear
    BFP#1 12/18/10 EDD 8/28/11 | 2/14/11 discovered that our baby girl had anencephaly D&C 2/17/11 at 12.5 weeks | no O or AF post loss - Dx: AO + mild PCOS = secondary infertility Provera after 70 days = AF but no O | Provera + 50mg Clomid after 110 days = AF but no O 3 rounds of 100mg Clomid + Estrogen + Progesterone = mixed O results, all BFN hysteroscopy 1/6/12 - removed fibroid tissue injection cycle #1 - 75 IU follistim + ovidrel (triggered 2/9/12) + endometrin = BFP! EDD 11/3/12 | Beta @ 13dpo = 184, 17dpo = 993, 26dpo = >5000 IT'S TWIN BOYS!! Tommy and Charlie arrived on 9/10/12 after less than 6 hours of labor at 32 weeks Image and video hosting by TinyPic Image and video hosting by TinyPic Image and video hosting by TinyPic Lilypie Premature Baby tickers
  • morkmork member
    ::HUGE HUGS::
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    Mama to 5 angel babies, 1 rainbow baby, and 2 more angel babies. 
    My beautiful Ella/ToT arrived 10/10/12. 
  • Just so many hugs. You are so strong and I am thinking of you and your family.
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    imageimageimageTTC since 07/11 | natural m/c 08/11 | BFP 12/6/2011 | Elinor Anna born 8/18/2012 | BFP #2 1/16/2014
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  • I am so, so sorry. ((huge hugs))
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  • I am so, so sorry this is the news you got today. I am praying for you and your family.
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  • I'm so sorry to hear this. Hugs to your family.

    BFP: 7/5/10   EDD: 3/13/11  Miscarriage 8/1/10 at 8 weeks

    BFP: 10/30/10   EDD: 7/7/11   Born 7/11//11 7lb12oz, 20 in.

    BFP: 7/30/13  EDD: 4/9/14 Born right on time on his due date! 8lb10oz, 21.5 in.


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  • Mmm79Mmm79 member

    This just breaks my heart.  I wish I could give you a real hug.  

    We are here for you and you will continue to be in my prayers. 

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    BFP#1 11/12/11 ~ No heartbeat 12/12/11 ~ D&C 12/19/11
    BFP#2 3/25/12 ~ Heartbeat 141 4/16/12 ~ No heartbeat 4/25/12 ~ D&C 04/30/12 
    BFP#3 7/16/12 ~ EDD 3/26/13 ~ It's a BOY ~ DOB 2/26/13






  • I'm so very sorry, thoughts and prayers for your family.


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    06/10 mmc@ 10 weeks: 03/11 mc @ 8 weeks due to blighted ovum.
  • I am so sorry Quig. I am thinking and praying for you and your entire family. :::hugs:::
    Lilypie First Birthday tickers
    BFP #1 6.19.11 ~ EDD 2.23.12 ~ CP on 6.22.11
    BFP #2 7.23.11 ~ EDD 3.28.12 ~ MC on 8.16.11
    BFP #3 11.17.11~ EDD 7.31.12 ~ MC on 1.18.12
    BFP #4 4.12.12 ~ EDD 12.25.12~ Born on 12.26.12
  • Quig, my heart breaks for you and your darling little boy.  I am so very sorry.

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  • Huge hugs for you and your family.

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    BFP#1 10 wk missed mc      

    BFP#2 DS born at 40+2 on 8/14/12  BFP#3 DD Born at 39+3 on 5/13/14

  • I am so incredibly sorry!  {{HUGE HUGS}}
    ~Formerly~AngnShaun~

    ~~Transferred 2 Perfect Embryos 5/28 - BFP 6/4~~ HAILEY ELIZABETH ~2/16/13~ 6:39am ~ 6lbs 2oz ~ 20" long ~ 1 Year ~ 20lbs 14oz ~ 29.25"~
    ~10.10 Ectopic, 4.11 Nat m/c 9w, 8.11, 1.12, 3.12 CPs~

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  • Wow, my heart is just breaking for you and your DH.  Sending many hugs and prayers your way.

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  • I'm so, so sorry.  Lots and lots of ((((((hugs)))))))).
    BFP#1 4/17/10...EDD 1/6/11...M/C 5/28/10 BFP#2 11/19/10...EDD 8/4/11 Squeaker born 7/30.
  • My heart breaks for you. You, your husband, and your sweet boy will be in my prayers. ((hugs))
    It was a rough road, but Arlo Daniel was born April 1, 2013—and our second rainbow is due October 12, 2014.
  • Sending many prayers and strength your way!!! Huge HUGS!!!

    Lilypie Angel and Memorial tickersLilypie - (B9PH)

     

    Lilypie - (0YVF)
     TTC since 11/2009; Lap/HSG/Hysteroscopy: 5/2011 (endometriosis - removed; endocervical polyp - removed; high pressure in bilateral tubes - cleared)

    BFP #1: 8/4/11; DS1 born sleeping on 11/16/11 at 19w1d

    BFP # 2: 5/7/12, EDD 1/10/13, DS2 born 1/4/13

    BFP # 3: 11/8/13, EDD 7/17/14, mmc 10wks

    BFP # 4: 5/16/14, EDD 1/15/15, praying for our 2nd rainbow baby 

  • I am so sorry you are going through this.  My heart absolutely breaks for you and your DH.  Please know my thoughts and prayers are with you and your family.  ((Gentle Hugs)).
    Loss #1: 18w5d.. D&E 04Mar03 BFP #2: Jun2011.. missed miscarriage. D&C 08Jul2011 8w4d. BFP #3: Nov2011.. Our Rainbow Baby!!! DS Born: 15Jul2012! BFP #4: Nov2012.. 2U1 - DS2 born 12Jul2013.  BFP #5: 01Jan2014..3U3!!

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  • Huge hugs hon. I'm so so sorry there wasn't better news.
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  • Quigley, my heart is absolutely breaking for you right now.  I am so unbelievably sorry that you are going through this.  I just don't know what else to say.  I'm just so very, very sorry.
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    BFP #1 6/28/11 ~ EDD 3/7/12 ~ m/c 7/15/11 at 6w2d
    BFP #2 8/29/11 ~ EDD 5/12/12. 4/25/12: Our take home baby is here!
     BFP #3 8/27/13 ~ EDD 5/11/14.  4/27/14:  Our second take home baby is here!

  • My heart breaks for you.  I am so sorry.  ((hugs))

    November 2010 - 10.5 week loss  o:) 
    October 2011 - DS (7)  <3 
    July 2014 - Stillborn DD (24 weeks)  o:) 
    August 2015 - DD (3)  <3 
    April 2018 - 5 week loss o:) 

  • Sending lots of prayers and hugs to you and your family.
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  • I am so sorry you and DH received such bad news... My heart is just breaking for you both, and your little boy. You will all be in my prayers. I wish I had a magic wand to wave and make this all okay for you.
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     Lilypie - (KAFM)

  • ((huge hugs)) I am so sorry that you and your family is going through this.

      Rylan 1/27/2011, 2:42 pm, 5lbs 12oz, 18.5 inches long
     Ayla 10/02/2013, 10:14 am, 6lbs 14oz, 19.25 inches long
    Missed Miscarriage 6w3d 3/02/2010
    I'll hold you in my heart until I hold you in heaven
    .

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  • Oh no.  You have my deepest sypmathies, thoughts and prayers.  You and your little one both.
    imageimageLilypie - Personal pictureLilypie Angel and Memorial tickers BFP 6/12/11, MMC@ around 9wks, D&C 8/23/11 at 12wks BFP#2 Jan 2012 CP 1/19/12 **Miss you baby*** PGAL/PAL Very Welcome For I know the plans I have for you,
  • ((HUGS)) I am so sorry for you. I will be praying for you.
    TTC January 2010
    BFP #1 10-11-10 ectopic discovered 10-22-10, 10-23-10 methotrexate & emergency surgery, lost right tube BFP #2 12-1-10 Found to be tissue dropped from salingectomy or missed heterotopic pregnancy from BFP #1 BFP #3 1-30-11 DS arrived on due date 10-10-11 BFP #4 Surprise 9-3-12 EDD 5-9-13 DS2 arrived 5-5-13 BFP #5 5-14-14 Emergency D&C 6-16-14 9 weeks
  • I'm so very sorry. ((Hugs))
    photo e9455f4d-9751-469e-a19f-460104cd2e5c.jpg photo jan15.jpg
    BFP #1 5/20/10 Natural MC at 5w4d 5/28/10
    BFP #2 11/3/10; BO at u/s 10w6d 12/16/10; Natural MC 1/7/11; D&C 4/21/11
    BFP #3 10/27/11 Please stick, LO!! 2/6/12 It's a Girl! Alexis Grace born 6/29/12
    BFP#4 4/27/14 Stick, stick, stick!! 8/11/14 It's a Boy! Evan Wesley born 1/8/15
    "Patience is waiting. Not passively waiting. That is laziness. But to keep going when the going is hard and slow, that is patience."  Let it Be (blog)My BFP Charts
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    This time I'm not leaving without you.
  • I am so sorry you guys are going through this. Sending you huge hugs and many prayers <3

    BFP #1 4/22/10 MC 5/5/10 (6w4d) EDD 12/25/10
    BFP #2 10/19/10 CP 10/27/10 (4w6d) EDD 6/30/11
    BFP #3 5/10/11 Lucas Abelardo born 12/29/11 at 37w3d
    BFP #4 12/10/12 MMC 1/14/13 (9w3d) D&C 1/15/13 EDD 8/16/13 

    BFP #5 8/22/13 Lucia Elizabeth born 4/17/14 at 38w
     
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  • ((HUGE HUGS)) I can't imagine how you must be feeling right now, my heart just sunk when I read this. I'm so so sorry hon.
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  • I'm so, so sorry. My thoughts and prayers are with you and your family.
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  • I am so sorry.  (((HUGE HUGE HUGS)))

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  • My heart breaks for you.  ((huge hugs))
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  • I'm so incredibly sorry, I had hoped and prayed that you would get better news. My heart breaks for you, big huge hugs.
    BFP 7/27/10, no hb discovered 9/3/10, natural m/c 9/17/10
    BFP #2- 2/1/11,bleeding- 2/6/11, natural m/c @ 5wks
    BFP #3- 4/29/11 - DS born 12/31/11
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