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CVI

twinkjktwinkjk
in Special Needs
DD is 3 mos. old and just got the diagnosis of Cortical Visual Impairment.  I've read just about all I can about it, but would love to hear from anyone with personal experience.  She is already in EI and has a team working with her.  What else should I be doing?  What can I expect for the future? 
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Re: CVI

  • adge1119adge1119

    hi my son is almost 4 and has CVI (due to a genetic syndrome).  he has not been diagnosed with a level of CVI yet though.  we will be pursuing this mainly for his IEP and school.  from our experience we have discovered that most vision teachers are just now getting into the realm of treating and working with kids who have CVI.  we are fortunate enough to work with our local school for the blind.  it is important to really integrate their surroundings (smell, touch) when it comes to toys and interactions. my son has a "little room" that we built out of pvc.  he also has a toy bar we made from pvc.  he responds better to gold and red objects and lights.  i think depending on the child's other abilities will also factor into how much they will progress with therapy.  my son is totally dependent so while we haven't seen leaps & bounds in his development we definitely know what kinds of toys, experiences, etc to be immersed in his environment. and the ipad is an amazing tool!  check out the blog (also on facebook) babies with ipads, little bear sees, thinking outside the lightbox.  there's also perkins school for the blind.  and the $1 store, $1 bins at target, and 5 below are your best friends! :)  i have found so much stuff for my son there...you just have to think about repurposing objects.  my son loves loves loves the crinkly tissue paper too.

     

    also, going forward with school.  make sure her therapists and school programs take into consideration her CVI.  we are currently focusing on this in the hopes to get my son to a better school.

    feel free to ask...i will share whatever knowledge i can! :) 

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