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Auntie or others- IEP goal for core strength, tiredness, chair oozing

MirandaHobbesMirandaHobbes member
in Special Needs

Auntie I sent you a PM about this but am also asking the group-

I'm assuming this isn't just kid laziness- my ASD 4yo son is always tired. Has been since birth. Sleeps like a champ, 12 hours a day, with 3-4 hour naps on the weekends. He tires during play very easily. At most I can get him to ride his bike maybe 4-5 blocks. We got a ton of snow dumped on us this weekend and he would only stay outside for maybe 15 minutes at a time, complaining he was too tired. When we go to a restaurant he immediately lays down in a booth. Same with church. Part of this must be sensory as well, as both places are pretty loud.

I'm assuming he'll be one of those kids who oozes out of his chair during class- can I add something to his IEP to address this? What types of things are recommended?

TIA!

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Re: Auntie or others- IEP goal for core strength, tiredness, chair oozing

  • kcisthebombdotcomkcisthebombdotcom member

    My daughter doesn't have a dx case of ASD but she does have SPD and is very underactive due to it. We try to do a lot of heavy work/gross motor activities and then when she's starting to crash do something that really gets her going (for her--bubbles really help).

    both my kids have spd (one underactive, one overactive) and they both shut down in places that are overstimulating like that--they lie in restaurant booths as well.

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  • kar5162kar5162 member
    No advice on goals, but if you think he's really tired and it's not just all sensory, I'd highly recommend getting him evaluated for a sleep study/thyroid function. DS was always tired, sleeping like a log 11-13 hours at night and a 3-4 hour nap, but still tired easily. I finally got them to do a sleep study (he didn't have "typical" symptoms like lots of wake-ups or snoring) and his sleep was basically garbage. They put him on O2 at nights for a few months until they could take his tonsils and adenoids out and both made such a huge difference. He sleeps less and has so much more energy and is 100 times happier. Of course, I don't get as much downtime now, but overall it's been a big positive.
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  • kar5162kar5162 member

    Adding onto what auntie said, hypotonia IMO is a very good reason to get checked for sleep apnea. That is effectively what causes DSs. Low tone can mean the body has a harder time keeping the airways open, especially in sleep. Removing his tonsils and adenoids gave him a bigger airway...didn't help the tone collapsing, but it did help give the it more room to go through. It's especially important to check out think if overall tone is low because  even though you can strenghten muscle to work around the low tone, that won't necessarily carry over into sleeping when the body is at rest.

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  • MirandaHobbesMirandaHobbes member

    Thanks everyone- our IEP meeting went great. His OT agreed that he fits the stereotypical mold of low tone/weak core in ASD kids. I finally understand what "not crossing the midline" means and how it relates to core strength; DS is still switching hands to write and his handwriting is poor and too light. They work with him on the Ipad a lot. They are upping his OT in his IEP and recommended he get additional private OT.

    And to auntie's point- yes, it's all in his head. It could be hours past his bedtime but if I ask him if he wants to go the mall he'd be off in a flash- although when we get to the mall he'll often ask to sit down or lie down on benches.

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