TTC After a Loss

Maybe promising news? (pg/loss mentioned)

Semi-exciting news:

Today, I was talking to a co-worker and "the badness" happened to come up.  (She has known bits of pieces of our drama, because people apparently really like to talk about my ute, but whatever).  She told me that she has a friend who delivered her son at 27 weeks (he survived and is a healthy kindergartener now), and then lost twins at 17 and 22 weeks.  When she got pregnant again, she began seeing a local maternal/fetal doctor due to her high risk.  He fought for her to receive, and to be covered by her insurance for, some sort of immune treatment (I don't know the ins and outs of it - she is looking into it for me).  From the story she relayed to me, this guy is willing to do the "experimental" stuff that everybody looks at me like I'm crazy when I ask about. 

She is going to get his name and some more information from her friend.  I'm hoping this guy might be able to consider helping me, or at least maybe refer me to someone who is as willing to investigate and problem-solve as he seems to be.

So, this isn't super big news, but it was enough to give me a shred of hope today that there might be somebody out there willing to help us.  FX I get somewhere with this!  Thanks for the crossed appendages y'all!

PAIF/SAIF, PGAL/PAL welcome.
TTC since March 2010 ~ Dx Unexplained IF September 2011
2011: IUI + Clomid = CP#1
2012: 3 more IUIs + Clomid = 3 more CPs. One on-our-own pg, also CP
2013: BTB IUI + Lupron/Follistim/Prometrium/PIO = CP #6
IF testing, RPL testing, Autoimmune testing = all normal
So lost.
imageimage
imageimage

Re: Maybe promising news? (pg/loss mentioned)

  • Ooh! That is exciting news! I hope he turns out awesome and your rainbow is right around the corner!!! :-D

    FX so hard for you!

    Baby Birthday Ticker Ticker

    TTC#1 since May 2012 
    BFP#1 6/2/12 EDD 2/17/13 Natural M/C 6/19/12
    BFP#2 10/30/12 EDD 7/12/13 CP 11/2/12 
    BFP#3 11/29/12 EDD 8/10/13 CP 12/2/12 
    BFP#4 12/26/12 EDD 9/7/13 
    1/18/13 HB 140! GROW BABY GROW!

    Welcome to the world Little Girl! Born on her due date! September 8, 2013, 7lb 11.8oz, 19.5" long. 

    image image

    image image

    **PgAL/PAL welcome**
  • Sometimes having other people obsessing over your ute can be a blessing.  FX that this is the answer you've been waiting for!
    Warning No formatter is installed for the format bbhtml
  • Loading the player...
  • Sounds very promising!!!!!
    Married My Love on 6/18/2006
    BFP#1 10/1/2011. Our perfect little girl, Her heart stopped @ 12w1d. D&E 11/23/11
    BFP#2 3/13/12 Weird CP/Possible EP @ 6w0d
    BFP#3 5/28/12 CP @ 5w0d
    BFP/WTF#4 10/26/12 CP
    BFP#5 12/10/12 EDD 8/23/2013
    <3 Baby Boy Born 8/22/13 <3
     photo ellie.gifPhotobucket
    image
    image
  • I think that is pretty exciting news! I have found it is things like this that others think make us "crazy" for thinking is exciting is usually the best of all. I hope that this doctor is able to give you some answers! Everything crossed for you!
    image Noah Michael, born sleeping 9/29/12 at 19w 3d. We love you forever Little Man! image
    image
    Baby Birthday Ticker Ticker
    BFP: 2/4/13 EDD: 10/11/13
    BabyFruit Ticker
    Patiently waiting for Buggirl to join me!!
    Beta #1 11dpo:89 Progesterone:38.9 Beta #2 18dpo:1940
    HB seen at 6w HB 8w 5d 176bpm! Its a BOY!
    grow rainbow grow!!!!
    All Always Welcome!!
  • That is promising and exciting! FX for you!

    The day the Bump died - Jasper is wise
    Image and video hosting by TinyPic
  • That is great news Red! I will be keeping everything crossed that you get some good answers! This made my day better so I know it had to have improved yours!


  • A shed of hope is better than none at all! That sounds like very promising news. FX that this puts you on the road to someone who will actually help you!!

    July TTCAL Siggy Challenge - Favorite Children's Book
    Donkey-Donkey - Roger Duvoisin  1968  Vintage Childrens Book
    Surprise BFP 5/15/12, EDD 1/29/13, mm/c @ 8wks, discovered at 11wks, D&C 7/11/12
    AF finally arrived on Christmas after 167 days of waiting.
    TTA until January 2014
    Follow Me on Pinterestimageimage
    PGAL/PAL always welcome

  • Oh my goodness this is exciting news! I like to grasp on to anything that might be even remotely helpful, and it sounds like this guy might be. I like. Can't wait for updates.
    BFP #1 - Mango - 6/11/12, EDD 2/22/12 Natural MC 7/15/12
    BFP #2 - Nacho - 10/14/12, EDD 6/20/13, MMC 8 weeks, D&C 11/16/12
    All testing shows both H and I are perfectly normal. Baby Nacho had triploidy. 
    Back to normal business December 2012
    BFP #3 - Froggy - 1/15/13, EDD 9/27/13 TEAM GREEN
    It's a girl! Alice - Born 9/20/13, 8lbs 2oz

    imageimage
  • That sounds very promising!!!!!

    TTC started Oct '10
    Me: AMA w/RSD, atypical PCOS w/IR, LPD and High Prolactin. Controlled HP post-loss.
    DH: Low-T and borderline morph
    18 cycles, 3 medicated w/RE to get to a BFP!
    EDD 9/7/12, Saw HB @7w3d,missed m/c 1/30 @8w3d, d&c 2/8
    11 AL cycles, 9 medicated/IUI cycles. All BFFN!
    Moving forward with IVF
    BFP#2 our little cycle break surprise on AL cycle 12! EDD 10/27/13
    Beta #1: 41 Beta #2: 398; perfect u/s 3/11 hb @133bpm
    u/s 3/25 one perfect hb @183 bpm, adjusted EDD 10/23/13
    MaterniT21 and carrier screens normal. It's a girl!!!
    Severe Pre-E, HFpEF, PE, AMA & IF= OAD

    imageimageimage
    Lilypie Premature Baby tickers
    All IF/AL Welcome!
  • This seems very promising! FX!

    TTC Since 8/2011
    BFP #1 5/13/12 * EDD 1/24/13 * MC at 7 wks 4 days on 6/11/12
    BFP #2 5/13/13 * Current EDD 1/23/14

    Baby N born 2/8/14


    imageimage

    Lilypie - (HD7B)

     

     

  • This is great news, red! You never know what you will come across just by sharing your story. I'm hoping you have some luck with this other doctor! Big hugs!
    MC 4/09 at 6w2d 
    Rainbow Jude 
    born: 12/31/09
    Pre-E Induction at 36w4d
    11 Day NICU stay due to GBS infection

    TTC#2 10/2010
    M/C: 4/09/11 5w
    CP: 12/26/2011 
    CP: 1/28/2012 
    MMC: 4/16/2012 at 11w2d 
    Ectopic: 6/25/2012 MTX 07/03/12
    CP 11/24/2012 
    Rainbow Violet 
    born: 9/11/13

    All ALers welcome! 
  • I've never posted on here (just on the Loss board) but I think I know exactly what you're talking about. It is probably a treatment called IvIg & it is used in women who have had recurrent losses due to an immune issue. I lost my son, Eli, at the end of September & my rheumatologist is researching this treatment for my next pregnancy. Apparently it is extremely expensive but sometimes will be covered by insurance if the patient has had recurrent losses or a neonatal loss & a confirmed autoimmune condition (I have Lupus.) 

    I have a friend who had multiple early losses & finally did end up doing IvIg treatments & delivered healthy twins. She did say that her insurance did not cover the treatments & it cost over $40,000. I am really praying that our insurance will cover it!

    Good luck to you! 

    Warning No formatter is installed for the format bbhtml
  • FX for this glimmer! Maybe ute gossip isn't all bad.
    image

    Lilypie - (JzKZ) Lilypie - (DgGJ)

  • Yay! So exciting!!! I hope this Dr will agree to take on you and your crazy ute!

    BFP #1 4/10/12 D&C 6/5/12@ 12.5wks EDD 12/17/12
    BFP #2 9/10/12 CP 9/19/12@ 5.5wks EDD 5/21/13
    BFP# 3 12/3/12...Lukas James born 8/15/13
    BFP# 4 8/4/14 EDD 4/13/15

    Lilypie Pregnancy tickers


    Lilypie Second Birthday tickers

  • imagemcarter127:

    I've never posted on here (just on the Loss board) but I think I know exactly what you're talking about. It is probably a treatment called IvIg & it is used in women who have had recurrent losses due to an immune issue. I lost my son, Eli, at the end of September & my rheumatologist is researching this treatment for my next pregnancy. Apparently it is extremely expensive but sometimes will be covered by insurance if the patient has had recurrent losses or a neonatal loss & a confirmed autoimmune condition (I have Lupus.) 

    I have a friend who had multiple early losses & finally did end up doing IvIg treatments & delivered healthy twins. She did say that her insurance did not cover the treatments & it cost over $40,000. I am really praying that our insurance will cover it!

    Good luck to you! 

    I'm not sure if that's what she's having done, but I've been doing a lot of reading on this.  At this point, I will try ANYthing.  I do have decent insurance, and in regards to infertility and RPL, only ARTs are limited.  Everything else should be covered if it's coded appropriately.  We'll see!

    PAIF/SAIF, PGAL/PAL welcome.
    TTC since March 2010 ~ Dx Unexplained IF September 2011
    2011: IUI + Clomid = CP#1
    2012: 3 more IUIs + Clomid = 3 more CPs. One on-our-own pg, also CP
    2013: BTB IUI + Lupron/Follistim/Prometrium/PIO = CP #6
    IF testing, RPL testing, Autoimmune testing = all normal
    So lost.
    imageimage
    imageimage
  • So glad you got this information, and I hope this puts you back on track! FX that you get the answers you're looking for!
    BFP#1 8/3/12~EDD 4/1/13~Natural M/C 9/1/12-9w6d 
    BFP#2 5/30/13~EDD 2/3/14~Confirmed CP 5/31/13
    7/12/13 Hysteroscopy & Lap Lysis of Adhesions
    1st Cycle on Clomid Aug '13: BFP#3 8/24/13~EDD 5/3/14
    Hoping Third Time's a Charm!!- IT'S A GIRL!!!! 
    KAYLIE MARIE IS HERE! BORN 5/4/14

    Image and video hosting by TinyPic 
    Lilypie Angel and Memorial tickers 

    Lilypie - (nUwf)

    image 
    All AL-ers welcome in my posts! <3
  • Fx for you red!!

    4 Losses (2003, 2008, Apr 2012, & Oct 2012)
    All RPL and IF testing with multiple REs = normal

    5 IUIs = BFN

    All AL are welcome
    Image and video hosting by TinyPic

  • I really do hope this all works out for you and you are one step closer to a sticky rainbow baby! FX and GL!
    Lilypie - Personal pictureLilypie Fourth Birthday tickers
    Lilypie Angel and Memorial tickers Lilypie Angel and Memorial tickers
    Daisypath Anniversary tickers Daisypath Friendship tickers
    TTC #2 Since October 2011
    RE testing results: DH- normal ME- DX:PCOS and One copy of MTHFR gene
    IUI#1 Sept/Oct 2012-Follistim, Ovidrel, Metformin, Baby Asprin, Lovenox, Crinone, and Neevo Beta 10/24=BFN
    No 2nd IUI but instead TI with Metformin, Baby Asprin, Neevo and Prometrium
    BFP #4 5/4/13-EDD 1/19/14- grow little one, grow!
    Beta #1@15DPO HCG-95, progesterone-25 Beta #4@24DPO HCG-2498, progesterone-30, 1st U/S 6mm,133BPM 2nd U/S 1.6cm, 167 BPM
    Chart
    Lilypie Maternity tickers Image and video hosting by TinyPic
    ~*~*~*~Everyone Welcome~*~*~*~
  • I love this thread!! Anything that gives you some hope is awesome. I hope with every fibre in my being that this turns into something amazing for you!


  • I hope he's as awesome as he sounds and is able to problem solve for your rainbow baby.
    Multiple TTCAL 1image
    image
     TTC #1 since March 2011 
    BFP #1: EDD 4/16/13~~blighted ovum w/ 2 gestational sacs~~Loss on 9/18/12
    BFP #2: EDD 9/3/13~~Slow HB at 1st U/S~~MMC -Loss on 2/13/13
    9/13, 10/13, 1/14: letrozole + trigger + TI = All BFNs
    3/14: IUI#1 letrozole/Bravelle/Menopur + trigger = BFN
    BFP #3: EDD 1/27/15 Please be our rainbow! ...Team Green


  • This is so exciting, I really hope you find someone who thinks outside the box.  This is the best thing I've read all week.  FX that this lead works out for you Red. 
    TTC since June 2011
    BFP #1 11/18/11 - m/c 12/24/11 blighted ovum - EDD 08/01/12
    BFP #2 08/04/12 - m/c 08/29/12 no answers - EDD 04/17/13
    BFP #3 10/01/12 - m/c 10/30/12 uniparental disomy - EDD 06/04/13
    BFP #4 04/12/13 - EDD 12/22/13  It's a GIRL!
    compound heterozygous MTHFR   -   All AL Welcome

    image   image
          image
  • Wow.  Thank you all for your overwhelming and constant support.
    PAIF/SAIF, PGAL/PAL welcome.
    TTC since March 2010 ~ Dx Unexplained IF September 2011
    2011: IUI + Clomid = CP#1
    2012: 3 more IUIs + Clomid = 3 more CPs. One on-our-own pg, also CP
    2013: BTB IUI + Lupron/Follistim/Prometrium/PIO = CP #6
    IF testing, RPL testing, Autoimmune testing = all normal
    So lost.
    imageimage
    imageimage
  • Fx that this new dr can help!
    TTC since 4/28/07
    Diagnosed w/ endometriosis 12/2010 Laproscopic surgery & 6 months of Lupron
    BFP 12/17/2011,EDD 8/23/12,ectopic discovered 12/29/11 at 6 weeks recieved methotrexate
    Dec '12 HSG & ultrasound showed abnormalities & more endo. Laproscopic surgery in January '13 showed significant damage & scar tissue from Endo. IVF is our best shot to concieve our rainbow.

    June '13 Decided to go the adoption route!

    Lilypie Angel and Memorial tickers

    Lilypie Trying to Conceive Event tickers


    imageimageFollow Me on Pinterestimageimageimage



    ***PGAL/PAL WELCOME***

     

     






        

  • Yay for the shred of hope!  Good luck Red!
    Lilypie Kids Birthday tickers
    Lilypie Angel and Memorial tickers  
    Lilypie Fourth Birthday tickers
    Lilypie Pregnancy tickers
    BFP #1 9/1999. DD Born 6/7/2000
    BFP #2 10/2011. EDD 7/11/12. MMC discovered 11/2/11. D&C 11/4/11.
    DX PCOS 10/2012.
    BFP#3 1/11/13. DS Born 9/17/2013
    BFP#4 9/30/17. Grow baby grow! 
    ~Everyone Welcome~
  • Good luck - it sounds promising!!! FX that this doc can help!
    Warning No formatter is installed for the format bbhtml
  • How exciting! GL! :)
    BFP #1: 12/26/11, EDD 09/05/12; m/c discovered: 02/22/12 @ 12w u/s,
    D&C: 03/08/12 Waited for AF for 146 long days!
    Hysteroscopy/D&C on July 10th to fix blocked cervix (DX: Cervical Stenosis)
    BFP #2 12/8/12, EDD 08/21/13 Our rainbow arrived 08/24/13!
    imageimageimage

    Follow Me on Pinterest
    image




  • Great news!
    BFP #1 11/27/11 EDD 08/08/12 M/C 01/27/12 12 wks 2 days
    BFP #2 04/25/12 EDD 01/04/13(?) confirmed ectopic 05/16/12 6 wks 5 days 2 doses of MTX-Lost left tube on 05/25/12 Back to TTC, earlier than originally expected.
    BFP #3 01/05/13 EDD 09/17/13 u/s 1/24/13-great appt, measuring 2 days ahead, NT scan 3/11/13-great scan measuring 4 days ahead, A/S 4/29/13-another great scan can't wait to meet my baby BOY!!!!!
    My Blog

    My Sweet (and Spoiled) Furbaby Cali
    Photobucket
    Lilypie First Birthday tickers
    PgAL/PAL Welcome

This discussion has been closed.
Choose Another Board
Search Boards
"
"