Type 1 diabetes - Not sure this is the right board

Re: Type 1 diabetes - Not sure this is the right board

• realisticdreams member

  October 2012

  CBBB2010:

  I'm not sure this is the right place for this, but I really don't know where to go. 

  We just found out today DS1 has type 1 diabetes.  For the last week or two he has been really thirsty and drinking 2 or 3 sippies full of milk or water with meals/snacks plus more in between.  We mentioned it at his 2 year well child visit this morning and they tested his blood sugar.  It came back > 500.  He is in the hospital right now and might get released tomorrow after dinner.  We have an appointment with a dietician and diabetes counselor tomorrow morning and we have learned a lot already, but I know we still have a ways to go before we are really comfortable with everything.  The kids go to daycare full time and I am really nervous about his teachers being able to manage his diabetes and insulin dosing.  He eats most of his meals/snacks at school, so they will play a huge part in this.

  Just wondering if anyone else has a child with type 1 diabetes and if there are any good online resources that anyone would recommend.  Thanks!
  

  This is certainly the right board for you!

  P drinks A TON of water (and milk) and she has had ketones in her urine on multiple occasions.  At this point, nothing would shock me so I try to keep vigilant, and I know  a couple of girls IRL who have type 1 diabetes.  One was diagnosed around age 12 and the other when she was 3.  

  I completely understand your worry about daycare being able to manage this. Have you spoke to them yet?  Obviously this has happened quickly but I would try to talk to the director as soon as possible.

  Also, i'm not sure what state you are in, but you should look into medicaid waivers, because he may qualify for services through a waiver, which could include up to a nursing aid who could help him at daycare, etc.

  Good luck..and welcome. 

  DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

  
  

  DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3

  
  

  
  

  http://justthetipblogg.blogspot.com, The Neglected Blog.

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• gimmietimmies member

  October 2012

  You are welcome here! If memory serves, there are other JD moms around. Have you gone on to the juvenile diabetes org website yet? That's a good place to start. I have a childhood friend that was dx'd with JD, we actually work together now. His parents were on the ball about healthy habits, which translated well into adulthood. It did freak me out as a teen though, when he injected himself just about anywhere on his body. Oh, we're creeping rather close on the next "big" birthday, and it's not 30.

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• CBBB2010 member

  October 2012

  Thanks so much, ladies!  I haven't checked out the juvenile diabetes org website yet, but I will in the next couple of days when things settle down.

  I did talk to the daycare director yesterday and she told me they would do whatever they need to, but there have been a few things there that have rubbed me the wrong way since we switched there two months ago.  It is an in-home daycare and we used to take the kids to a center so it has been a big change in general.  We felt like we had to make the move in the first place because we had lots of unexpected medical bills this year and the center was very expensive with two kids (work changed health insurance giving us far less coverage, DS2 being born cost a few thousand more out of pocket than DS1, he was also hospitalized when he was < 2 months old because he had a high fever that turned out to be nothing but they needed to make sure it wasn't anything serious based on his age, etc, etc). 

  The things that bother me about the new place haven't been that big of a deal that I had considered leaving, but make me think they aren't as on top of things as I maybe would like.  Adding something as important as calculating carbs and insulin dosage makes me second guess our choice, but I'm not sure I have many other options at least in the short term.  Something I've been thinking about is maybe providing his food so we really know how many carbs are in what he is eating and then teaching them how to calculate how many units of insulin he'll need at least until I feel more comfortable with everything.  Right now they provide snacks and lunch and many things they feed the kids are homemade, so I have no clue what goes into it.  I could be over thinking it right now, though!  I have plenty more questions to ask the doctors today and this will be one of them.  

   

   

  

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• Justinlove member

  October 2012

  I would absolutely send your own food.  That way, you can accurately count carbs ahead of time and are not relying on the DCP to "guess."  I know it is really early on, but if I had a child with JD, I'd ultimately look into getting an insulin pump.  They make it so much easier to give the insulin. 

  My Craft Blog: Sew Girly Studio

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• jakobsmom08

  October 2012

  I sent you a message.  Hugs too you.  Take it one step at a time.  We're now on year 2 and at 4 years old my little man has done great.  If there is one suggestion I can give to you (my mil gave to me... My dh is t1 too). Your little one needs to be a kid first and a diabetic second.  I know some people may not agree with that but that is my motto everyday.  Diabetes is just something he has and will deal with forever.... It's not who is is.  You will be shocked at how much stronger this makes you but you guys will do great!!!!!  

  Got my little men 2/23/08 and 8/29/10!! 2 little monsters I tell you!

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