Infertility Veterans
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So frustrated!

I am planning my FET and I'm so f'ing fed up with it all. I saw RE and RI, and now I find myself in the middle because RE doesn't want me to do one of the treatments RI wants. I asked RI to speak to her and he said he won't interfere and this is why he doesn't work with outside REs anymore (he agreed to work with me to finish up the FET). He said 'She needs to be more current'. So I feel very torn because they don't agree with each other - who do I believe?

I still don't know how I feel about this immune stuff. Especially after spending nearly 15K on IVIG and his fees last cycle and not seeing a result. So now, more immune testing and different treatments, and it's holding up the FET, which I could start this week if it weren't for him. I want to start next week but when I asked if that timeline would work he didn't email me back! And neither did his nurse. I don't know what the F is going on over there - I get that I'm not his only patient, but I feel like I'm just some guinea pig on which he can try all his experiments. And I have heard other women speak very highly of him, but I don't know. At the same token I don't want to just give up on the immune stuff, because what if *this* treatment is the one that works?

I am so ready to get off this rollercoaster. But I don't want to regret my decisions because I was impatient or fed up.  

 

Dx: High FSH, stage IV endo, homozygous C677T MTHFR and PAI-1
Early loss 10/08
Lap 1/09
IVF #1 "natural IVF" - 1 egg retrieved, missed m/c
Tried several mini-stim cycles with no response
Switched clinics - dx'd as carrier for Fragile X
IVF #2 MDL protocol Jan/Feb converted to IUI, BFN
IVF #2 take 2: Antagonist, one embie, BFN
IVF #3: Antagonist, no fertilization
One last ditch effort at OE IVF (antagonist with Clomid) cancelled
DE cycle #1 Jan/Feb 2011, BFP, ectopic
DE cycle #2 June/July 2011 - BFP
10/28/11 Baby girl lost at 17 weeks due to pre-term labor. We love and miss you.
DE cycle #3 June/July 2012 - BFP, twins, both heartbeats stopped, D&C
2 frosties but don't know what's next
FET Dec 2012: BFP! Praying this one sticks for the long haul!

Re: So frustrated!

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    I'm still such a newbie in this game, so no useful advice here...just wanted to say that I'm so sorry you have to deal with frustrations like this! (((hugs)))
    TTC since honeymoon in 9/2010
    Me: 39, Dx DOR (FSH = 10.5, AMH = 0.43, best AFC = 10), AMA
    MH: 37, Dx Obstructive Azoospermia, multiple successful sperm retrieval procedures

    1/2012: IVF/ICSI #1 Antagonist = cancelled d/t poor response to max stims
    2/2012: IVF/ICSI #2 MDLF (4R, 4M, 1F) = BFP, saw heartbeat, missed m/c 9w0d, D&E
    8/2012: IVF/ICSI #3 EPP/MDLF (7R, 2M, 1F) = BFN

    12/2012: (New RE) Operative hysteroscopy to remove scar tissue

    1/2013: IVF/ICSI #4 Low-dose stim/Antagonist (AFC=6); ER=1/26 (5R-couldn't access rt ovary, 5M, 4F), ET=1/29 (trans 3) = BFP!; 2/11 beta#1(13dp3dt)=2127, 2/13=3367; twin girls due 10/19/13

    PAIF/SAIF very welcome!

    <a href="http://www.thebump.com/?utm_source=ticker&utm_medium=HTML&utm_campaign=tickers" title="Pregnancy"><img src="http://global.thebump.com/tickers/tt16bf7d.aspx" alt=" BabyFruit Ticker" border="0"  /></a>
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    I'm so sorry. I don't have any good advice since I don't know anything about immune issues. I wish this were all easier or at least that you could have a crystal ball to see what you should do. I hate that you are in the middle. They are the doctors, not you. Hugs are all I've got for you :-(

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

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    Sorry, may.  I can't help because we never worked with an RI.  What does your gut tell you?  
    Baby girl Lila born 2013.
    Baby boy Henry born 2015.
    Expecting our capstone baby (boy) early March 2018.
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    sent you an email ...
    +++
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    Sorry no experience but I wanted to send hugs!
    I am AMA and all tests on H came back normal
    3 failed IVF with OE and 2 failed frozen DE cycles
    Last fresh hail mary DE cycle starting Feb 2013
    PAIF/SAIF always welcome
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    I'm sorry you're caught between doctors. Your post is more questioning of the RI, but I want to throw out there that I think Dr. T is generally close-minded and perhaps not very current on some issues such as immune disorders, MFI, etc. Hang in there and I hope you get it sorted out so you can move forward quickly.
    TTC #1 since June 2010
    Me: 36, DH: 42
    Dx: DOR and MFI

    DH: low count + very low motility; hormones all normal; Sperm DNA Frag. test = poor to fair; male karyotyping normal
    Me: FSH 13.4 + AMH 0.26 + hypothyroidism; Scratch the hypothyrodism (?); Blood clotting and immune panel all negative; endometrial biopsy normal

    IVF #1 (MDLF - Jul/Aug 2011): BFN (9R, 5M, 3F with ICSI, 3dt of 1 10-cell grade 2, no frosties)
    IVF #2 (EP-antagonist - Sep/Oct 2011): BFN (6R, 4M, 3F w/ ICSI, 3dt of 1 6-cell, 1 7-cell, grade 4s, no frosties)
    DE IVF #1 (shared cycle - June 2012): c/p (6R, 6F w/ICSI, 3dt 1 8-cell grade A- and 1 7-cell grade A-; no frosties)
    DE IVF #2 (shared cycle with new donor - Nov/Dec/ 2012): - BFP!!!!! 12/14/12. U/S on 12/27 shows twins!!!!!

    SAIFW/PAIFW
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    (((huge hugs)))

    It's so frustrating when docs don't agree with each other. It just puts you in the middle and makes you feel like you might be wasting your time with one protocol or the other... I hope you get some better info and advice soon... 

    imageimageimage

    TTC since March 2009 // Me and DH - 28
    Testing Summer/Fall 2010 - Unexplained IF
    IUIs #1-4 ~ Clomid/Ovidrel/TI/IUI ~ all BFNs
    IUI #5 ~ Femara/Ovidrel/TI/IUI ~ BFN
    IUIs #6-9 ~ Research Study Meds/Pregnyl/TI/IUI ~ all BFNs
    IVF Consultation, More Testing
    Diagnostic Cycle ~ Mucinex/Progesterone/TI ~ BFN
    IVF #1 ~ Menopur/Bravelle/Ganirelix/Novarel/Progesterone/Lupron
    7R, 6F // 2 transferred // 3 frosties ~ BFN
    FET #1 ~ Estrace/PIO/Lupron
    3 thawed // 2 transferred // 1 lost // no more frosties ~ BFP!!
    Beta #1 - 456 // Beta #2 - 1176 // Beta #3 - 2933 // Beta #4 - 6753
    EDD: May 16, 2013
    Threatened MC at 6w2d
    Bedrest for SCH // 6w2d through 10w1d
    Elevated TSH and Lazy Thyroid DX @ 10w - Started Synthroid
    Finally released from RE at 13w
    Charles Everett ~ Born 5/20/2013

    Baby Birthday Ticker Ticker


    ~~ My IF Blog ~~ 

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    So sorry you are dealing with this, it has to be very frustrating to have your Dr's in disagreement.  Although I didn't work with a RI, I also had the feeling of wanting to try everything possible in order to not have regrets about what I didn't do.  ((Hugs))
    Warning No formatter is installed for the format bbhtml
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    I'm so sorry that you are stuck in the middle and are unsure of what to do.  I don't have any suggestions, but I'm thinking of you and hoping you are able to get a solid plan together soon.

    (((hugs)))

    SAIFW
    TTC since 2008 dx PCOS & MFI
    Clomid/Femara no "O"
    IVF #1 BFN
    FET #1 cancelled for biopsy
    FET #1.2 c/p, July 2012 c/p
    IUI #1 & 1.2 canceled
    IVF #2 ER 12/1, Freeze all due to OHSS
    FET #2.1 cancelled due to DVT risk, FET #2.2 Jan 2013
    my blog
    image
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