Infertility Veterans

Question

I am seeking opinions.  How do you all feel when graduated IFV are still active on this board and comment on posts?  Recently, I wonder if it's still okay for me to post.  Sometimes I change what I am writing at the last moment because I don't want to be that person that is like "keep the faith, it happened for me so it will happen for you".  I remember how hurtful those posts were.  I remember thinking it may never happen for me so STFU.  I guess I am asking because this still feels like home to me but it should mostly be a safe haven for you all.  I don't ever want to be the one messing with that.  TIA for sharing how you feel.

Re: Question

  • I always envisioned IFVers never really leaving the board completely. If someone wants to move on and not keep in touch (which is totally fine), they should stick to IF. It's why I don't get it when people who never really posted want to call IFV home; it's not for the transient. How do you really know if the board is a good fit if you've never participated.

    M we all know you and we know your history. You'd never be "that" person because you know that while good things can and do happen, they are also elusive for no reason at all. You're right that what happens with one person doesn't mean squat for another and those kinds of empty platitude/blind faith/unlikely miracle posts aren't really helpful to people facing serious challenges, but genuine support, encouragement, and sympathy go beyond that.

    +++
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  • i'm still here too, M.

    PAIF is not really suitable for a vet, with the current dynamic...so i never made that my home.  I do hope everyone has success, but i'm keenly aware that it will never be the case for all.  I'm also aware that a lot of this is luck...not bc some turtle walked by me, or some type of weird blessing thing happened.

    Warning No formatter is installed for the format bbhtml
  • delinodelino member
    I know I just intro'd yesterday, but there are a few reasons that I did. 1) I see this baord as I do TTCAL 6+...a more tight knit group of woman that isn't gonna spew puppies and rainbows all over the board. 2) This is a group of women who have been through the ringer and only others that have been through the same/similar truly get it. Just because you're pregnant or have your rainbow baby, doesn't mean you don't need us and we don't need you.That's my 2 cents.
    3 ectopic pregnancies (EDD's 1/30/12-tube removed, 6/2/12-methotrexate and 10/2/12-methotrexate)
    IVF and Natural FET resulted in BFN's and a hole in our wallets
    Natural BFP #4 on 9/7/12 gave us our miracle on 5/18/13
    Lilypie First Birthday tickers
  • reb259reb259 member

    Ok...so I hope I don't get flamed for this...

    When I lurk on PAIF, I don't even know 3/4 of the people on there and since I only really post to IFV, if you are someone who posted to IF and got KU'ed on your first round of clomid and TI or even your first IVF, I still won't know you.  That being said I think there is a group of tried and true women you have moved over to PAIF who really are the backbone of IFV and if not for them we would not have this board.  I think the fact that there is a IFV check in is a way to continue that support system that has been developed here.

    I always welcome the support of graduated IFV'ers and agreeing with E, I think that is what is so special about this board.  For me even if you did respond to one of my posts with a  "keep the faith, it happened for me so it will happen for you", I would be ok with it because I know you fought the same fight I am fighting, you just won a little sooner and that is ok.  I am not sure I would be ok with it coming from someone who just joined the board...but that is me.

    For me one of the hardest things is a newbie to IVF posting about how they are getting negative HPT, saying they are out, that it didnt work and then 2 days later they are posting that they are KU'ed.  Those for me are always a punch in the gut.

    So after 3 paragraphs of rambling...yes in my opinion you are always welcome to post here as are the other ladies who worked so hard to get this board created.  I am not sure what I would do without it!!

    I am AMA and all tests on H came back normal
    3 failed IVF with OE and 2 failed frozen DE cycles
    Last fresh hail mary DE cycle starting Feb 2013
    PAIF/SAIF always welcome
  • I did an intro here a few days ago. I've been posting on IF for a while and lurking here as well. Sometimes the IF board seems really quiet and going into IVF #2, I need all of the support I can get. I also want to lend my support and advice from my experience to everyone and anyone it may help. Thank you for having me here! Smile
    Me- 26 DH-32
    TTC since August 2010
    Unexplained Infertility
    5 rounds of clomid and 4 rounds of tamoxifen = BFN
    IUI #1 - Jan 2012 with Tamoxifen - BFN IUI #2 - Feb 2012 Cancelled :(
    IVF #1- May 2012: BFP on 05/29/12!! 06/01 Beta #1= 122 06/04 Beta #2 74 :( - C/P
    06/07/12 = BFN Moving onto IVF #2 August 2012
    22 retrieved, 13 fertilized, none to freeze
    Transferred two embies on 08/19. Beta 1 is 08/31 Beta #1-122 Beta #2- 541
    1st U/S 09/12- 1 sac!
    Praying this is my take home baby!
    image
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    BabyFruit Ticker
    My Blog!
  • Unlike IF...IFV is a permanent sacred home. Not a "rental" home that is temporary. If I ever get my lasting BFP, I see myself lurking and occasionally posting on PAIF, but "home is where the heart is" on IFV. No one gets it quite like IFV ladies do after numerous heart wrenching failed IVF cycles.

    Countless BFN(s)
    Moving to IVF

    IVF1 (ICSI): Long Lupron
    6R. 3F. 3DT. 8Cell 1Grade 2Embies. 1Frostie.
    Beta 1/22: 14 Beta 1/24: 24 Beta 1/26: 28
    Round One Result: Chemical Pregnancy

    Pressing Forward

    IVF2 (ICSI/AH/ACU): Microdose Lupron Flare
    13R. 11F. 5DT. 2TFR'ed. 1Frostie.
    Round Two Result 4/30: Harsh BFN

    FET. 2TFR'ed.
    Round Three Result 6/25: BFN
    Where do we go from here?

    Moving forward with CCRM in 2013
    ODWU revealed blocked tube(s). Lap 2/15.
    Bilateral Tubal Ligation. Stage IV Endo.
    Finally some (tough) answers.


    IVF3 (ICSI/CCS): Antagonist with EPP
    13R. We have 3 CCS Normal Embryos!


    Lupron Depot: May 2013 to August 2013
    Long awaited FET on 9/3. 2TFR'ed.
    BFP on FRER 5dp5dt: IN SHOCK!
    Beta1 9/10: 152.7! Beta2 9/12: 378! Beta3 9/14: 1224! 

    1st ultrasound 10/1: TWO beautiful heartbeats!  Overjoyed!

  • imagereb259:

    Ok...so I hope I don't get flamed for this...

    When I lurk on PAIF, I don't even know 3/4 of the people on there and since I only really post to IFV, if you are someone who posted to IF and got KU'ed on your first round of clomid and TI or even your first IVF, I still won't know you.  That being said I think there is a group of tried and true women you have moved over to PAIF who really are the backbone of IFV and if not for them we would not have this board.  I think the fact that there is a IFV check in is a way to continue that support system that has been developed here.

    I always welcome the support of graduated IFV'ers and agreeing with E, I think that is what is so special about this board.  For me even if you did respond to one of my posts with a  "keep the faith, it happened for me so it will happen for you", I would be ok with it because I know you fought the same fight I am fighting, you just won a little sooner and that is ok.  I am not sure I would be ok with it coming from someone who just joined the board...but that is me.

    For me one of the hardest things is a newbie to IVF posting about how they are getting negative HPT, saying they are out, that it didnt work and then 2 days later they are posting that they are KU'ed.  Those for me are always a punch in the gut.

    So after 3 paragraphs of rambling...yes in my opinion you are always welcome to post here as are the other ladies who worked so hard to get this board created.  I am not sure what I would do without it!!

    Agreed.  Well said. 

    TTC #1 since October 2008. Dealing with MFI.
    IVF #1 w ICSI in July 2010 = BFN
    IVF #2.1 in Oct 2010 converted to IUI = BFN
    IVF #2.2 w ICSI in Dec 2010 = BFN
    Met with new RE in new city on 1/31/11.
    IVF #3 w ICSI in April 2011. HPT on 5/9 = BFP!
    Beta #1 on 5/10 (10dp5dt) = 99.4. Beta #2 on 5/12 = 284. First u/s on 5/26. = Fraternal TWINS!
    Twin boys born & lost on 8/16/11 at 18w1d due to PPROM & preterm labor.
    IVF #4.1 in Jan 2012 converted to IUI on 1/7/12 = BFN
    IVF #4.2 w ICSI in Feb 2012. Lupron on 2/10. Stims on 2/18. ER on 2/29- 7R,6F
    ET scheduled for 3/5/12- nothing to transfer :(
    Dh seeing new MFI uro & Dh starting meds- June 2012.
    IVF #5 in Dec 2012 = BFFN.
    IVF #6 planned for Spring 2013. Praying for our take home baby/ies.
    **P/SAIF and P/SAL always welcome!**

    Lilypie Angel and Memorial tickers
  • I like hearing from IFV grads - not only for encouragement, but also for informative discussions. There's a lot of wisdom from the collective years of tx among IFV and its grads that I truly appreciate.
    TTC #1 since June 2010
    Me: 36, DH: 42
    Dx: DOR and MFI

    DH: low count + very low motility; hormones all normal; Sperm DNA Frag. test = poor to fair; male karyotyping normal
    Me: FSH 13.4 + AMH 0.26 + hypothyroidism; Scratch the hypothyrodism (?); Blood clotting and immune panel all negative; endometrial biopsy normal

    IVF #1 (MDLF - Jul/Aug 2011): BFN (9R, 5M, 3F with ICSI, 3dt of 1 10-cell grade 2, no frosties)
    IVF #2 (EP-antagonist - Sep/Oct 2011): BFN (6R, 4M, 3F w/ ICSI, 3dt of 1 6-cell, 1 7-cell, grade 4s, no frosties)
    DE IVF #1 (shared cycle - June 2012): c/p (6R, 6F w/ICSI, 3dt 1 8-cell grade A- and 1 7-cell grade A-; no frosties)
    DE IVF #2 (shared cycle with new donor - Nov/Dec/ 2012): - BFP!!!!! 12/14/12. U/S on 12/27 shows twins!!!!!

    SAIFW/PAIFW
  • imagerockpaperlove:
    Unlike IF...IFV is a permanent sacred home. Not a "rental" home that is temporary. If I ever get my lasting BFP, I see myself lurking and occasionally posting on PAIF, but "home is where the heart is" on IFV. No one gets it quite like IFV ladies do after numerous heart wrenching failed IVF cycles.

    This!  Part of being able to call it home is the stability the board offers. I hope to continue seeing regular posts on IFV from all of the women who have graduated from the long, painful search to start a family. 

    Baby girl Lila born 2013.
    Baby boy Henry born 2015.
    Expecting our capstone baby (boy) early March 2018.
  • imagerockpaperlove:
    Unlike IF...IFV is a permanent sacred home. Not a "rental" home that is temporary. If I ever get my lasting BFP, I see myself lurking and occasionally posting on PAIF, but "home is where the heart is" on IFV. No one gets it quite like IFV ladies do after numerous heart wrenching failed IVF cycles.
    I completely agree. Though I've only been on this board for 9 months, it truly does feel like home. It's where I know people, and the one place where I can understand and appreciate feelings and emotions, and know that others understand where I am coming from. I post my pg related on paif, obviously, but if you asked me where home is, its definitely here!!
    2/11 Diagnosis: DOR-AMH .62, LPD and MFI-4% Morph
    IVF #1-July 2011 7/9/11-Started Stims
    7/20/11-ER:No eggs in 4/5 follicles. Left the 5th follie intact and converted to an IUI
    8/3/11-Beta #1=BFN,
    Nov, 2011 BFP #1=m/c at 7 wks 3 days
    11/11-AMH .47, IVF #2 March 2012...or not!! Surprise BFP on 2/19. Beta #1=161. Beta #2 305 Our little miracle girl is on her way! Due Oct 29, 2012
    <a href="http://s1207.photobucket.com/albums/bb461/andersenspics/?action=view
  • I think the other ladies have it covered. The IFV experience is just different from other so-called infertiles. I really can't stomach going on the other boards anymore because they have no clue and assume they will eventually get KU'd. I don't believe that fairy tale anymore. When an IFVer gets PG, it is just different for me and I have no problems reading their posts. It would be sad for them to just disappear bc they are KU'd.

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

  • imagerockpaperlove:
    Unlike IF...IFV is a permanent sacred home. Not a "rental" home that is temporary. If I ever get my lasting BFP, I see myself lurking and occasionally posting on PAIF, but "home is where the heart is" on IFV. No one gets it quite like IFV ladies do after numerous heart wrenching failed IVF cycles.

    I couldn't have said it better, I pray to G-d I get another BFP and this time get to take my baby home and I would still be part of IFV. PAIF is very hard. There are women on there that got their BFP with Clomid and TI on their first try and call themselves interfiles all the while being 4 weeks pregnant and announcing their registry, facebook posts, having decorated their nursery already AND telling everybody about their struggle to get knocked up. Talk about being from different worlds.

    TTC 1/2010 DH Dx - Azoospermia 2/2011
    Hysteroscopy 3/2011 2 Polyps removed 4/2011
    DH on Clomid / Arimidex to address hormonal issues - Sperm found July 2011!
    IVF #1 September 2011 - ER 9/8/2011- 8R, 5M - icsi - 1 made it to transfer - BFFN :-(
    IVF #2 Lucky November 2011 - ER 11/25/2011 - 15 eggs!, 13 mature, 10 fertilized with isci - 7 made it to transfer! Transferred 1 - 8 cell and 2 - 7 cell. BFP!!!!
    1st U/S - Twins! 2nd U/S - 3 heartbeats!!! - HOLY COW!!!
    Prayers for our take home babies!
    2 babies born on 3/27/12 and lost. Last baby born on 3/29/12 and lost at 20 weeks.
    My angels grew wings shortly after birth.
    Ahava Raisel, Matisyahu Nissim & Zev Chaim - Mommy and Daddy will always love you.
    IVF #3 July 2012 - ER 7/17/2012 - 10 R. 5 F. 4 made it to ET
    Transferred 2 on 7/20/2012 no snow babies :-(
    Beta on 7/31/2012 = BFMFN
    A miracle gift expected to come to us through adoption around 9/2012
    Baby girl adopted - Birth Mother changed her mind and took the baby back
    IVF #4 October 2012 - New RE. Doing PGD Testing. 8 R, 7F, 2 made it to 5 day blast for PDG testing. Both Normal (Thank you G-d!!!) 1 boy and 1 girl
    transferred one beautiful 5day blast (girl)
    Please G-d the almighty one - let this be our take home baby!
    Beta #1 158, Beta #2 318, 1 Absolutely magnificent HB at 175! Thank you G-d!!!
    Baby Girl born August 5th. Thank you G-d for our precious miracle.
    AMA. PAIF & SAIF always welcome - I need all the prayers I can get!

    Lilypie Angel and Memorial tickers
  • I think this board will always feel like home to me.  I can't imagine not being around to support the members, regardless of where they are in their journey - and what kind of support they need. 

    Me: 35 DH: 37 TTC since 4/2010
    DX: 6/9/2011: Azoo ICSI/IVF only option for biological child
    IVF #1: ER - 9/26 * ET - 10/1 * beta#1 10/13 - 140 * beta#2 10/17 - 477 * beta#3 10/20 - 1101
    1st u/s at 6w6d - one hb * 2nd u/s at 8w3d - no hb detected 11/10/11 * natural m/c 11/13/11
    FET #1 Jan/Feb 2012 - 3 delays - cancelled 2/13
    FET #1.2 - May/June 2012 - ET 6/6/* beta#1 6/15 - 95 * beta #2 6/19 - 322 * beta #3 6/22 - 940
    7/6 1st u/s @ 7 weeks - one beautiful hb - released from RE
    EDD 2/22/2013
    PAIF/SAIF/PGAL welcome
    imageimageimageimage
    BabyFruit Ticker
  • Awww....you ladies made me cry.  I'm so glad I get to stay because I don't know what I would do...
  • You ladies are AMAZING!  I loved reading through your thoughtful, well-articulated responses here.  Obviously I'm a newbie over here on IFV -- but, I already feel so much more "at home" than I have in a looong time over on IF.  While I'm certainly not happy that I've gotten to the point that coming over here feels right, I AM beyond happy that doing so has brought me into a community made up of ladies such as yourselves.
    TTC since honeymoon in 9/2010
    Me: 39, Dx DOR (FSH = 10.5, AMH = 0.43, best AFC = 10), AMA
    MH: 37, Dx Obstructive Azoospermia, multiple successful sperm retrieval procedures

    1/2012: IVF/ICSI #1 Antagonist = cancelled d/t poor response to max stims
    2/2012: IVF/ICSI #2 MDLF (4R, 4M, 1F) = BFP, saw heartbeat, missed m/c 9w0d, D&E
    8/2012: IVF/ICSI #3 EPP/MDLF (7R, 2M, 1F) = BFN

    12/2012: (New RE) Operative hysteroscopy to remove scar tissue

    1/2013: IVF/ICSI #4 Low-dose stim/Antagonist (AFC=6); ER=1/26 (5R-couldn't access rt ovary, 5M, 4F), ET=1/29 (trans 3) = BFP!; 2/11 beta#1(13dp3dt)=2127, 2/13=3367; twin girls due 10/19/13

    PAIF/SAIF very welcome!

    <a href="http://www.thebump.com/?utm_source=ticker&utm_medium=HTML&utm_campaign=tickers" title="Pregnancy"><img src="http://global.thebump.com/tickers/tt16bf7d.aspx" alt=" BabyFruit Ticker" border="0"  /></a>
  • mm29mm29 member
    imageEdwina.McDunnough:

    I always envisioned IFVers never really leaving the board completely. If someone wants to move on and not keep in touch (which is totally fine), they should stick to IF. It's why I don't get it when people who never really posted want to call IFV home; it's not for the transient. How do you really know if the board is a good fit if you've never participated.

    M we all know you and we know your history. You'd never be "that" person because you know that while good things can and do happen, they are also elusive for no reason at all. You're right that what happens with one person doesn't mean squat for another and those kinds of empty platitude/blind faith/unlikely miracle posts aren't really helpful to people facing serious challenges, but genuine support, encouragement, and sympathy go beyond that.

    This!  I love it when our Vets stick around.  I think we should have a IFV pregnancy check in on our board :)
    ::: Married June 2003:::
    TTC #1 since: Aug. 2008
    Me: 34, DOR, MTHFR-A1298C (heterozygous), decreased blood flow to uterus, Mild Endo
    DH: 38, Balanced translocation 5&10, unexplained MFI, normal SA and SCSA
    Tx History: IUI 1&2= BFN
    IVF# 1 W/ICSI= BFN
    IVF# 2: cancelled d/t no response
    IVF# 3= 1 egg retrieved=immature/not viable
    IVF# 4= c/p
    ***CCRM ODWU***
    Found DHs BT and Me-decreased blood flow to uterus
    Recommended DE IVF w/PGD, incorporate electro-acupuncture. Decided to cycle locally
    ***New RE***
    DE IVF# 1(cycle #6) w/pgd, (freeze all): 30R, 23M, 15F, slow/poor embryo development, 4 biopsied, 1 Normal "Norm"; DE IVF w/PGD, incorporate electro-acupuncture. 
    IVF# 6: (OE/DS) cancelled
    IVF# 7: (OE/DS) 1R, 1M, 1F, arrested day 5
    Plan-DE IVF# 2 (cycle #8): DE/DS in May 2015


    http://icanhazbabyz.blogspot.com/
    imageimage image 
  • LaLe09LaLe09 member
    I love seeing those who have had success stick around. It continues to give me hope that it can happen even after multiple failed cycles. The IF board makes me feel like it will never happen for me, which is why I don't like to be there. I just don't feel a connection there.

    DH: Severe MFI/Azoo Me: Compound heterozygous MTHFR
    IVF #1= m/c- methotrexate @6w2d
    FET #1= BFN
    IVF #2= m/c- D&C @8w5d
    IVF #3= Beta #1 9dp5dt= 252, Beta #2 11dp5dt= 417, Beta #3 17dp5dt= 4,952
    US #2 @ 7w2d= twins, baby B measuring behind
    US #3 @ 8w5d= Baby A doing well, no HR in baby B
    *S/PAIF always welcome* BabyFetus Ticker
  • I'm glad to still be able to call this board home, and so thankful that the ladies here will still have us ladies who have gotten pregnant and have babies.

    Even though I do have my baby, I will forever be scarred by my IF battle. And I will always want to support, comfort and cheer on the ladies still struggling.

    The PAIF board was very frustrating at times. There are women there who don't truly get it. And there's not much activity going on over at SAIF either.

    So I'm very grateful to still be welcomed here.
    Renee- 37 DH - Chad - 39
    2/06 - surprise pregnancy - twins
    3/06 - m/c 1st baby at 6 weeks 
    5/06 -2nd baby had no heartbeat at 14 wks.
    D&E - Bled out. Blood transfusions. Week in ICU - Cheated Death!
    Diagnosis: Blood clotting and bleeding disorder, immune issues, & cervical stenosis
    5/10 - 1st IVF cycle - BFN
    FET - 10/12/10 - BFN
    1/11 - IVF with PGD - BFN
    IVF - May - BFN
    6/11 New RE - fingers crossed!
    9/11 - IVF - 4 transferred
    10/13 - BFP!!
    It's a boy! Clint Michael, Due in June!!!

    image
    Baby Birthday Ticker Ticker





  • I like it when IFV grads come back to post.  I haven't been able to post much because of a new job but this is still my home.  I have developed a bond and fondness for the ladies who have struggled next to me.  I would hate for it to end because they were blessed with a BFP.  Their support and understanding means more than anything...they just get it.
    TTC since 3/07. IVF#1 = canceled. IVF#2 = 0% fertilization. IVF#3 = BFN. IVF#4 = c/p.  
    Moving forward with Adoption 2017!
  • I personally really like it when IFVers who are pregnant or now have children post. It gives continuity to the community (which I really appreciate as someone who has go back and forth between IF/IFV and PAIF) and honestly, I think it makes those of us who have been stuck here for the long-haul feel not abandoned. So that's my opinion - I really like it and I find it very encouraging. It is TOTALLY different than someone with no connection to the community coming by to let us know how they were successful and giving us advice on how to be like them.
    IUIs #1-3 (1x unmedicated, 2x Clomid) = 2 BFNs, 1 m/c at 7w3d
    IUIs #4-6 (injects) = 3 BFNs
    IVF #1 = BFN
    FET #1 = BFN
    FET #2 = BFN
    IVF #2 = BFP, b/g twins lost at 20w due to partial abruption/PPROM
    IVF #3 = c/p 5w2d
    Long-shot Clomid/Prednisone cycle before next IVF = BFP, our beautiful, healthy girl born 6/26/13!
    ~~
    TTC again March 2014
    FET #3 - May/June 2014
    -
    all embryos arrested before xfer - back to the drawing board...
    IVF #4 - July/August 2014 
    beta 1 (11dp3dt) 220, beta 2 (13dp3dt) 671, beta 3 (19dp3dt) 10762
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