Infertility

Can u get hold of your RE or IVF nurse easily?

I am a bit frustrated.  It seems that it's so hard to get hold of IVF nurses or doc at my clinic.  After the receptionist transfers, it ALWAYS goes to a voice mail and I need to wait when I have questions. 

There have a different phone line for regular (for ppl doing IUI, medicated cycle) and IVF patients.  I was ok to wait when I was going through IUI cycles.  I had to get an approval from my RE on the money back guarantee plan asap as our full payment is due tomorrow, but I couldn't get hold of anyone all day yesterday.  My RE nor IVF nurse called me back yesterday even though I left a voice mail.  I finally got hold of financial person today and go this things squared away, but I was like WTF?  

Since I am now pursuing IVF and paying a big buck, I feel like I should be treated somewhat better like a VIP patient.  I was told that they do about 40 ER per week, so I am one of their many patients, but I think I deserve a bit more attention.  We don't even get our own IVF nurse.  Ghaaaaaaa, they better be MORE responsive when I go into stim/ER/ET!!!!!  

Is your clinic responsive?  Do you have your own IVF nurse? 

Mar-Apr-May/12: All 3 IUI (w/ Femara) - BFN

May/12 IVF journey in the works...
IVF #1 w/ ICSI #1 (Gonal, Menopur & Ganirelix)
5/29-6/18: BCP, 6/21-6/27: Stim, 6/30: ER
7/5: ET 2 5-days blastocysts are transferred, none made to freeze :(
7/17: Beta #1 - 616!!, 7/23: Beta #2 - 6818
8/2: u/s #1 - a healthy seahorse found & one empty sac, 8/16: u/s #2 - one peanut! HB @ 180
10/30: It's a girl!!! EDD: 3/23/13


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Re: Can u get hold of your RE or IVF nurse easily?

  • We don't have our own nurse, but I like the team at my clinic and feel respected and listened to, no matter who is involved.

    I can get ahold of either my RE or a nurse pretty quickly, I also made sure they knew they could leave a message on my cell at any time (this helps me sometimes avoid the phone tag that you described).

    It's hard when you're starting out because you're not exactly a patient yet. 

    Hopefully things will change or perhaps you can bring it up with your RE directly and ask for the best way to get ahold of someone. 

    Hope this helps.

    BzeetyD = 38, Mr. BzeetyD = 44 together 12/02 married 9/08
    TTC #1 since 1/10
    DX: Unexplained/??? MFI issues

    Our lil' lost sparks:
    5w3d loss 7/30/10 - EDD March 2011
    8w loss 4/15/11 - EDD November 2011
    8w3d loss 8/2/12 - EDD March 2013
    4w c/p loss 10/29/12 - EDD July 2013

    Long story: trying on our own + testing testing testing with 6 rounds of Clomid, more testing, injectables + TI, laparoscopy - one tube blocked, 2 IUIs with Follistim...BFNs.
    RPL testing all normal, Karyotyping normal

    Moving on to IVF.

    IVF #1 April 2012 = BFN, IVF #2 June 2012 = BFP. U/S 7/23 = saw heartbeat but measuring behind. Follow up U/S on 7/30 - no heartbeat. D&C 8/2. Trisomy 12. IVF #3 Oct 2012 = Chemical Pregnancy

    Phone consult with CCRM on 12/12/12 - ODWU 1/4/13 - both tubes clear(!) - AFC 24, AMH 3.2, FSH 9.6, LH 5.4, E2 25. DH has high frag rate but improved!
    IVF #4 March 2013 CCRM. EP protocol w/ Menopur, Gonal-F & Dexamethasone. ER 3/29 & IMSI, PICSI. 43R 13M 10F 6blasts bio'd. CCS testing reveals 3 normals!!!
    FET 5/31/13 of 1 4AA blast - thawed and expanded. 4dp5dt BFP.
    Beta 9dp5dt = 181, 11dp5dt = 427. 1st u/s showed a healthy heartbeat! EDD 2/16/14

    After 4 years of hoping and heartbreak, our sweet little bean was born on 2/19/14
    We are so in love with her.

    "I'm not telling you it's going to be easy, I'm telling you it's going to be worth it."

    Everybody is welcome!!!
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  • I know it can be frustrating especially when you are paying big $$! I have a dedicated nurse. I don't usually get her on the phone, but when I call & leave a VM or email her, I always get a response the same day.

     

    So you ended up with a multi cycle plan?


    04/07/11- PCOS Diagnosis w/GYN. Put on Metformin (1500 mgs)
    04/25/11- 1st consultation with RE (Confirmed PCOS & Anovulation)
    05/09/11-HSG-All clear! 05/13/11-SA-Normal. Found out on 2/14/12, low Morph (1%).
    06/17/11-10 days of Clomid (100, 150) No response.
    07/10/11-03/20/12- 5 Injectable (Follistim) IUI cycles; 4 BFN, 1 C/P. (stims ranged from 11 days to 25 days)
    05/28/12-Diagnosed with Hypothyroidism. 75 mcg Synthroid.

    IVF with ICSI in June/July 2013 = BFP!. Beta # 1 = 123. Beta # 2 = 252. Due March 25th. Baby boy arrived March 27, 2013!

    FET #1 - 10/4/14 = BFP!! Beta #1 = 179. Beta # 2 = 499. Due June 22nd.

    Daisypath Anniversary tickers
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  • The nurses at my clinic at great. I always get a response the same day when I leave a message and I get almost an instant response via email. I would very frustrated as well in your situation. 
    Me- 26 DH-32
    TTC since August 2010
    Unexplained Infertility
    5 rounds of clomid and 4 rounds of tamoxifen = BFN
    IUI #1 - Jan 2012 with Tamoxifen - BFN IUI #2 - Feb 2012 Cancelled :(
    IVF #1- May 2012: BFP on 05/29/12!! 06/01 Beta #1= 122 06/04 Beta #2 74 :( - C/P
    06/07/12 = BFN Moving onto IVF #2 August 2012
    22 retrieved, 13 fertilized, none to freeze
    Transferred two embies on 08/19. Beta 1 is 08/31 Beta #1-122 Beta #2- 541
    1st U/S 09/12- 1 sac!
    Praying this is my take home baby!
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  • My clinic is pretty small--2 u/s techs and 4 nurses, so everyone deals with each patient whether you are TI, IUI, IVF, etc.

    As long as I call within business hours, I can get my questions answered, and if the person I'm talking to can't answer (got a tech but have a meds question), I'm at least talking to an actual person and 99% of the time I'm siply passed off to a nurse who is right there. 

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  • I?ve been through three REs as we have been researching where we finally want to do our IVF. The one that I am with is by far the most responsive.

    First one, the only way to reach the nurse was through their online portal, and it would take a couple of days for a response. The second, I was supposed to call and leave a voicemail, and I'd usually get a call back within the next few days. The RE nurse I am with now is assigned to me, and I have her direct email address. She replies to me sometimes within an hour, but usually by end of day. She always calls me with test results, unless I request she just email them. And if I need her urgently, I can just call her extension directly and she will call me back within a couple of hours. When she has been gone, she has someone else replying to her emails and voicemails.

    This is how I feel it should be done! We are forking out a LOT of money, and whether or not they are busy, they have to remember who ultimately keeps them in business is their patients. If you aren't getting the kind of service you feel you deserve, I guess you have to weigh that into the whole picture and whether or not the clinic is one you want to stick with. If the RE himself/herself was a rockstar, that is one thing. But if the RE is OK, and their staff are like that, I might shop around some more. That?s my two cents. Sorry you aren't getting better service!

    ************ Signature/Ticker Warning ************
    Me (32) DH (36) - Finding our way to baby #1
    Me: POF/DOR - AMH <0.16, heterozygous c677t MTHFR, insulin resistant and gluten intolerant
    DH: Severe MFI

    12/2/11 - IUI #1- BFN 
    8/1/12 - IVF #1 - Zero response from max stims (600iu intramuscularly)

    My ovaries are just for decoration

    12/6/12 - Adopted five embryos that had been frozen for over ten years!
    2/11/13 - DEmbryo FET #1 Thawed four, sadly two didn't survive. Transferred two beautiful blasts. 
    2/16/13 - First BFP of my life @ 6dp5dt! EDD 10/30/13
    3/27/13 - After beta and u/s hell, no heartbeat ever detected. D&C at 9w1d.

    6/5/13 - Adopted four new embryos that had been frozen for seven years!
     
    9/12/13 - DEmbryo FET #2. Thawed and transferred two beautiful blasts
    9/17/13 - BFP @ 5dp6dt! EDD 05/31/14
    9/29/13 - m/c @ 5w1d. :(

    11/19/13 - DEmbryo FET #3. Thawed and transferred one blast from each batch. Wow!
    11/23/13 - BFP @ 4dp6dt! EDD 8/7/13
    Beta #1 @ 13dp6dt - 522  Beta #2 @ 16dp6dt - 1373 
    6w5d ultrasound showed one perfect baby with a beautiful heartbeat of 134bpm!

    Snowflake baby is a girl! 
    Our beautiful Snowflake girl arrived on July 22, 2014!   
    My embryo adoption blog: Wishing on a Snowflake
     
        image      image 
  • emikatemikat member
    I do have an IVF coordinator.  I'm not sure if she is a nurse, but I assumed so.  I haven't yet had to call her.  But she does respond to my emails.  When choosing my IVF doctor, I decided to go to one that was recommended by my OB, but not the busiest in the city because I didn't want to feel as you are feeling as one of just a bunch of people being shuffled through.  Even so, my RE seems very busy all the time.  But I have appreciated that when I do have his time he gives me good attention and information.  I can imagine how frustrating it is for you. 
    image




    TTC 10/11. IUI 2/12. BFP 3/8/12. 4/26/12 missed mc. RE consult 5/17/12. IVF #1 ER 7/13/12 53R, 41M ICSIed, 32F, 8 5d, 6 6d blasts - all PGD/frozen. PGD results 1 normal M and 1 normal F, 1 maybe M. FET 9/6, transferred 1 F embie. Beta 9/15 BFN. FET#2 planned for 11/2012 put off until 2013. Surprise BFP 11/21/12!! My son was born on 7/24/13!

    FET 4/28/2015 - Transferred 1 M embie. 5/6/15 BFP!

  • mnj05mnj05 member

    I have my nurse and I call her line directly. She rarely answers but she always gets back to me same day when I leave a message. I've never spoken with my RE on the phone, but he's between the main clinic and the hospital a lot, and as long as I get my questions answered, it doesn't bother me who I talk to.

     

     imagePhotobucket

    TTC #1 since 3/2011
    DX: anovulatory and severe MFI
    DH is a testicular cancer survivor
    IVF#1 w/ICSI lupron, gonal f, ovidrel
    ER 6/15/12 6R 6M 6F! ET 6/20/12
    Beta #1: 154 Beta #2: 509 Beta #3: 7326
    Baby Boy born 3/1/2013
    Baby Birthday Ticker Ticker

    TTC#2: 6/2014 all testing came back normal

    IVF#2 (#1 for LO#2) 9/2014 - 17R 10M 10F 4 blasts frozen on day 6.

    FET #1 10/15/14 - Beta #1: 216  Beta #2: 823


    Baby Boy born 7/10/2015


  • delinodelino member
    I have my own nurse who is usually available when I call. My doctor is usually fairly quick to return phone calls as well. I agree that with the amount we pay them, they should be available for us.
    3 ectopic pregnancies (EDD's 1/30/12-tube removed, 6/2/12-methotrexate and 10/2/12-methotrexate)
    IVF and Natural FET resulted in BFN's and a hole in our wallets
    Natural BFP #4 on 9/7/12 gave us our miracle on 5/18/13
    Lilypie First Birthday tickers
  • Yes, I can get ahold of both very quickly.  My OB/GYN office is a mill like atmosphere and I hate it.  I wanted a smaller, independent practice for my RE.  This is why I avoided the large clinics here in Chicago (there are several).

    image
    DOR and AMA
    2/12-5/12: 4 IUI cycles = all BFN;
    7/12: DE IVF # 1 (with ICSI)- 20R, 16M, 14F, 5DT of 2 blasts; 6 frosties = BFN;
    Lupus anticoagulant initially high, then found to be normal on hematology consult;
    Follow up testing in September all clear;
    Started synthroid for "high normal" TSH;
    FET # 1- late October 2012- BFP on FRER; beta # 1- 21(low), beta # 2- 48 (still low), beta # 3- 132, beta # 4- 1,293; beta # 5- 5,606; last beta- over 100,000. First u/s 11/21- heard heartbeat
    12/12- Officially an OB patient!
    Level 2 ultrasound at 20 weeks shows vasa previa and VCI
    Referral to MFM and mandatory c section for delivery
    Beautiful baby girl born at 34 weeks
    Finally home after 15 day NICU stay!
    Trying for sibling: FET # 2- May 2014; beta 5/31, BFN
    FET #3, early July 2014; beta 7/14, BFN
    DE IVF # 2- August 2014; 14R, 13M, 11F, 5dt of 2 blasts (3 AA), 5 frosties = BFN
    FET #4- December 2014, yet another BFN

    Dr. KK work up shows borderline uterine blood flow, elevated NK cells, and MTHFR mutation (homozygous for c677t)

    Added baby aspirin, prednisone, supplements, Metanx, and intralipids

    Switched to large clinic for final attempt; had endometrial receptivity testing in January; FET March 2015 = yet another BFN

    Likely OAD- NBC

  • imageracheyt0227:

    I know it can be frustrating especially when you are paying big $$! I have a dedicated nurse. I don't usually get her on the phone, but when I call & leave a VM or email her, I always get a response the same day.

     

    So you ended up with a multi cycle plan?

    Yes!  My DH & I went back and forth about it, but finally it came down to a piece of mind that I could do IVF/FET again if I didn't have a live birth within 2 years...  That took chunk out of our saving, so we will be eating ramen noodle every night! 

    Mar-Apr-May/12: All 3 IUI (w/ Femara) - BFN

    May/12 IVF journey in the works...
    IVF #1 w/ ICSI #1 (Gonal, Menopur & Ganirelix)
    5/29-6/18: BCP, 6/21-6/27: Stim, 6/30: ER
    7/5: ET 2 5-days blastocysts are transferred, none made to freeze :(
    7/17: Beta #1 - 616!!, 7/23: Beta #2 - 6818
    8/2: u/s #1 - a healthy seahorse found & one empty sac, 8/16: u/s #2 - one peanut! HB @ 180
    10/30: It's a girl!!! EDD: 3/23/13


    IVF & Miracle baby blog!
    My Cherry Blossom baby

    Baby Birthday Ticker Ticker
  • Thanks for your comments and I read them all!  I am glad to hear you have good RE clinic and they are responsive. 

    I chose this place out of the list my OBGY gave me and I think they are pretty well known in Cincinnati.  I found out later that my doc was featured on TV because he had a patient whose 2 sisters became surrogates for her.  

    Anyway...I hope I get a VIP stamp once I actually pay and start intense process.


    Mar-Apr-May/12: All 3 IUI (w/ Femara) - BFN

    May/12 IVF journey in the works...
    IVF #1 w/ ICSI #1 (Gonal, Menopur & Ganirelix)
    5/29-6/18: BCP, 6/21-6/27: Stim, 6/30: ER
    7/5: ET 2 5-days blastocysts are transferred, none made to freeze :(
    7/17: Beta #1 - 616!!, 7/23: Beta #2 - 6818
    8/2: u/s #1 - a healthy seahorse found & one empty sac, 8/16: u/s #2 - one peanut! HB @ 180
    10/30: It's a girl!!! EDD: 3/23/13


    IVF & Miracle baby blog!
    My Cherry Blossom baby

    Baby Birthday Ticker Ticker
  • At my clinic, there is a different number for each Dr's care team.  If I have to leave a message, it says they'll get back to me by 5pm.  But, I don't think I've ever had to wait more than about an hour--and often no more than 15 minutes. 
    imageimage
    Me: 35 DH: 30 TTC since 1/2010 DX: 6/15/2011: MFI IVF with ICSI

    IVF #1: Sept 2011: Beta 10/10- BFP!! 1st u/s 10/31/11 1 blighted ovum, 1 embryo 2nd u/s 11/14/11 stopped growing, no h/b D/C 11/17/11

    IVF #2: FET 5/4/12 : Beta 5/16/12 BFN

    IVF #3: ET 7/6/12 : 7/18 Beta #1 BFP at 246, 7/20 Beta #2 at 713, 7/27 Beta #3 at 9068. 1st u/s 8/7 with one lovely hb.
    Mabel is here! 2/17/13!
    Lilypie Premature Baby tickers
  • I would express your frustration when you see your doc next.  With an IVF cycle, I agree, they really ought to get back to you as soon as possible.  There seem to be 3 times of the day that my nurses have set aside for calling patients back 9ish, 2ish, and 4-5ish.  So I've never called and not gotten a response back from my nurses.  There is a different lady that handles all the finances....... she and I are going to have a talk with some really strong words because it has been a month since I called twice for help with the clinic F*CKING up my billing AGAIN!!! 
    TTC #1 Since 4/2010, Cycle 30
    Positive for HLA-B27, I'm a mutant :p
    Testing - Me ok, gluten issue? DH - borderline count, low motility
    4/28/11 IUI#1 = BFP!(5/25), EDD 2/2/12 - m/c 5w3d
    7/3, 7/31, 9/25 - IUI#2-4=BFN
    IVF#1 - 1 blast = BFP!! (12/30), EDD 9/9/12, confirmed c/p 4w2d
    FET#1 3/2/12 - 2 blasts =BFP!! EDD 11/18/12, us#1 = twins! Confirmed m/c 5w6d
    4/20-surprise BFP and another c/p 4w2d
    FET#2 7/16/12 - 2 blasts = BFN
    FET#3 8/20/12 - 1 blast - BFP!! Beta #1-2=177, 354
    1st u/s 5w6d, one beautiful little HB :), 2nd u/s 146bpm
    baby girl born 5/10/13

    TTC#2 since 12/17/2014, Cycle 8
    Repeat Testing...FSH=12, AMH=3.8, AFC=28. 
    IUI#5 5/10/15- c/p?
    IVF#2 8/19/15 - cancelled due to cysts
    IVF#2 take two 10/2015 - 5 blasts frozen
    FET#4 12/11/2015 - BFN - 4 blasts remaining
    FET#5 2/18/16 - BFP!!!  Beta1-3, 126, 250, 745!!

    Image and video hosting by TinyPicLilypie Angel and Memorial tickers

    Tons of love and ((hugs)) to my IF sister NMscubagirl


  • I have actually complained that I don't get timely call backs from my "IVF Nurse Coordinator." she's the only one and very busy, so it doesn't appear as though she returns calls more than a couple times per week :-/ 

    I don't really call her unless I absolutely can't help it. Another patient of hers that I became friends with said she was always prompt with calling her back (same day), so I don't know why she blows me off. 

    Photobucket
  • I'm so sorry you're having some frustrations with your RE's communication. Not being able to get a hold of the office or waiting until the next day when you're trying to make a deadline would make me nuts. 

    My clinic has been amazing with communications. I have an assigned nurse to call or email for any questions or issues. My main RE has also given me his card and said to call or email if I have any questions but I haven't anything urgent so I just go through my nurse. And if I need any general bloodwork appointments or schedule changes, I also have an assigned patient care coordinator who helps me with that. As long as I call or email within business hours, I get a response same day, usually within a couple of hours. If it's after hours, they respond the next day.

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  • Gregermis & maggie2324

    THANK YOU!

    After I read your posts, I decided to call my clinic and let them know about my frustration.  I got to talk to one of the IVF nurses and told how frustrated I was that no one got back to me regardless of the urgency of my question and I was not happy with their responsiveness with me who is starting IVF.    

    It turned out that IVF nurse got my voice mail on Monday and told the billing dept to call me back, but they didn't!  If they did their job (Hello, don't you need my $$$?!), I wouldn't have felt this way.  The IVF nurse apologized for their miscommunication and delay of response like this will not happen during IVF process.  

    I feel a lot better now!!!!!   

    Mar-Apr-May/12: All 3 IUI (w/ Femara) - BFN

    May/12 IVF journey in the works...
    IVF #1 w/ ICSI #1 (Gonal, Menopur & Ganirelix)
    5/29-6/18: BCP, 6/21-6/27: Stim, 6/30: ER
    7/5: ET 2 5-days blastocysts are transferred, none made to freeze :(
    7/17: Beta #1 - 616!!, 7/23: Beta #2 - 6818
    8/2: u/s #1 - a healthy seahorse found & one empty sac, 8/16: u/s #2 - one peanut! HB @ 180
    10/30: It's a girl!!! EDD: 3/23/13


    IVF & Miracle baby blog!
    My Cherry Blossom baby

    Baby Birthday Ticker Ticker
  • I do have my own nurse (phone and email) and my RE's email.  When I call or email, I don't ever get them immediately, but I do always get a response the same day.  In fact, almost everyone I've dealt with (nurses, doctors, schedulers, financial, donor liaisons, recipient coordinators) have been very responsive.
    My Life in D.C.
    The Daily Nugget

    photo beachwave_zps17d3b89a.jpg
    Cycle 12, IUI #1 - 33m post wash 10/15/10 = BFN
    Cycle 13, IUI #2 - 15m post wash 11/16/10 = BFP, missed m/c, D&C 1/3/11
    Cycle 15 - 18, IUI #3-6 = BFN
    Cycle 20, IUI #7 = BFP!, missed m/c 9/14, D&C
    DE-IVF Aug. 2012: ER 8/30 11R, 7M, 4F; ET 9/4 returned 2
    Beta 9/18 #1-820, #2-1699, #3-7124
    10/1 1st u/s measuring right on track, 125 bpm

    Baby Birthday Ticker Ticker
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