Infertility Veterans

I'm so mad! (long)

I went to the RE yesterday and was feeling good about things. He gave me a list of supplements to start taking to potentially help my eggs, body, etc. Supposedly, the list he gave me is from CCRM. It was similar to the list wormie shared with me. I bought 4 of the 8 today and still need to buy the other 4. The plan was to do day 3 bloodwork when I get AF (probably in the next few days) and start bcp after the bloodwork to gear up for IVF 5 in July.

Today, Dh had a followup apt at the uro. Prior to apt, Dh did SA and urine test. The Dr said the urine showed no spern in it so that's good. Dh has had numerous SA but never a urine test. However, the SA showed 6 sperm. Wtf? In the past, he's had low count, like a million, but 6?! Freaking 6. Then the dr says dh's bloodwork from when we came at the beginning of April showed low testosterone and high prolactin. No one from the uro called with bloodwork results, so I wrongly assumed they were fine. I should have called. Maybe he just wanted to wait to discuss in person since he knew we had a followup apt. He said given the bloodwork, he wants to put Dh on clomid and see if there's an improvement. They drew more blood today and if the prolactin is still high, he also wants to put him on another med... Can't remember the name. They said they'd call next week to let us know about that. He said they want to check Dh's blood in a month and see if there are any improvements, but can't check SA again for 3 months since it takes that long to see an effect.

I'm so angry. I specifically asked old uro (several years ago) before we moved if anything could help Dh's numbers and they said no, you need IVF with ICSI. At the beginning of April, I asked our new uro if Dh was a candidate for clomid since some ladies mentioned it to me for their Dh's. I told him we wanted to cycle again in July. At the April apt, uro said he wanted to do more testing first before he would just blanketly prescribe it. Given that the reason he prescribed it is because of the 7 week old bloodwork and not really the SA, why the world didn't they call and Dh could have started it sooner?!

Dr. Uro said it was up to us, we could still do IVF 5 in July as planned, but he would recommend giving the clomid 3 months to work first. If Dh's numbers actually improve and we could get pregnant with IUI or on our own, that would be awesome/cheaper. Even if his numbers only improve slightly and ivf is still needed, dr. uro said the quality would be better. But another delay is just annoying. I'm not working right now and Dh and I agreed I'd be a SAHM with the twins. If IVF 5 worked, I was going to continue to stay home. If not, i was going to look for a new job and needed to find one, so we could save up before trying again. This just delays me not having a job... Looks like I need some more projects to keep me busy this summer.

I'm also mad at myself that I didn't immediately set up an apt with a new uro after our loss from IVF 3. Why did I wait until IVF 4 failed? If I had done it after our loss, this 3 month wait wouldn't have been a big deal because we had to take 3 cycles off after our d&c anyway. Ugh.... I need a drink.


 

TTC #1 since October 2008. Dealing with MFI.
IVF #1 w ICSI in July 2010 = BFN
IVF #2.1 in Oct 2010 converted to IUI = BFN
IVF #2.2 w ICSI in Dec 2010 = BFN
Met with new RE in new city on 1/31/11.
IVF #3 w ICSI in April 2011. HPT on 5/9 = BFP!
Beta #1 on 5/10 (10dp5dt) = 99.4. Beta #2 on 5/12 = 284. First u/s on 5/26. = Fraternal TWINS!
Twin boys born & lost on 8/16/11 at 18w1d due to PPROM & preterm labor.
IVF #4.1 in Jan 2012 converted to IUI on 1/7/12 = BFN
IVF #4.2 w ICSI in Feb 2012. Lupron on 2/10. Stims on 2/18. ER on 2/29- 7R,6F
ET scheduled for 3/5/12- nothing to transfer :(
Dh seeing new MFI uro & Dh starting meds- June 2012.
IVF #5 in Dec 2012 = BFFN.
IVF #6 planned for Spring 2013. Praying for our take home baby/ies.
**P/SAIF and P/SAL always welcome!**

Lilypie Angel and Memorial tickers

Re: I'm so mad! (long)

  • Ugh. I am very sorry to hear about this delay. I know how much waiting sucks when you just want to move forward. I hope the wait will be well worth it for you.
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  • i'm sorry for your delay.  it really stinks :(  Really hoping it all works out for you.
    S/PAIFW
    Tara & Dave - TTC since September 2006
    PCOS - dx 1999 (amenorrhea) | freakishly long fallopian tubes
    Hypoglycemic | thyroid issues | severely anemic
    Multiple Clomid cycles of 50, 100, 150 - absolutely no response
    Follistim 50/100 | Follistim 75/125 | Follistim 100/150 IUI - all BFNs
    Converted IVF - BFP - m/c | FET - BFN | IVF #2 = BFN
    IVF #3
  • Oh my God. I am so sorry and pissed for you. I don't understand why they didn't call you guys sooner.  I mean WTF?? You would think they knew how important it was. I don't understand. Huge hugs. You should a few drinks.
    PAIF and SAIF Always Welcome!
    TTC since 2007
    6 IUIs, 3 IVFs, and 2 m/c :< PCOS, Blood Clotting Disorder & MFI
    IVF #2 Aug 2011 is a BFN:<
    IVF #3 March 2012 is a BFN
    Not sure what to do now. Sad and lost.
    Lilypie Angel and Memorial tickers Lilypie Angel and Memorial tickers
  • Ugh I am so sorry sweetie.  My DH had the same low testosterone and high prolactin level problem and clomid def. helped him!  (Though I am surprised your DH's dropped down to 6.)

    I think I would give the clomid some time to help but I know delays are the worst.  huge((hugs)) I hate you have to deal with any of this.

    TTC since 07/2009
    Me: PCOS, Blood/Immune Issues DH: Low all 3
    Jun.- Sep. 2010 IUI#1-#3 = BFN
    Oct. 2010 = IVF #1 = B/G Twins (passed away Feb. 2011)
    May 2011 = Myomectomy and trans-abdominal cerclage (TAC)
    Sep. 2011 = Surprise BFP = C/P
    Feb. 2012 = sFET #1 = BFN
    Feb.2012 = Hail Mary IUI #4 = BFN
    April/May 2012 = FET #2 w/our last two embies = BFP (Please let this be it!)
    Beta #1 8dp5/6dt = 234 Beta #2 10dp5/6dt = 695 Beta #3 12dp5/6dt = 1796 Beta #4 17dp5/6dt = 17,888 U/S #1 May 17, 2012 = Twins
    Baby B's heart stop beating at 9 weeks 5 days
    Our little miracle baby is a boy. :)

    Baby Boy Owen and Baby Girl Avery were born too early on Feb. 13, 2011 due to a pedunculated fibroid, incompetent cervix and suspected placental abruption.
    Lilypie Angel and Memorial tickers

    "What the heart has once owned and had, it shall never lose." - Henry Ward Beecher
    SAIF/PAIF Welcome
    Lots of love and luck to my PAIF/3T/IF Veteran ladies, especially my dear friend Zookie. Congrats to Papps, Teach84 and Starbuck on their little ones.
  • I'm so sorry for your delays, it makes no sense why they didn't call you sooner. Big hugs!
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  • that is beyond frustrating.  i don't get why it is so hard to call with freaking results!! 

    i'm sorry for the delay but i hope the meds really help with dh's #'s and sperm quality.  i'm glad you go cleared to do the supplements and i hope they also make a difference. 

    ((HUGS))  when you cycle again you will have both done a lot to improve your chances.   and try to not beat yourself up about not seeing uro sooner, we all second guess ourselves in this process but you did the best you could with the info you had at the time.

     

    image
    Worrying does not empty tomorrow of its troubles, It empties today of its strength. ~Corrie ten Boom
    Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow. ~Mary Anne Radmacher (thank you beadinglady)

    It's been a long journey. TTC since 9/06. multiple IUI's and IVF's and 4 m/c's. IVF#3 = BFP, twins, induced at 34w6d due to baby b passing away (no explanation). Delivered on 35w1d, Baby A - baby girl, and Baby B - baby boy, our little angel.
    MTHFR A1298C & C677T, Immune Issues and Factor II
  • Thanks ladies.  I really hope the meds work and we see a difference.  Hopefully, 3 months will go by before I know it.
    TTC #1 since October 2008. Dealing with MFI.
    IVF #1 w ICSI in July 2010 = BFN
    IVF #2.1 in Oct 2010 converted to IUI = BFN
    IVF #2.2 w ICSI in Dec 2010 = BFN
    Met with new RE in new city on 1/31/11.
    IVF #3 w ICSI in April 2011. HPT on 5/9 = BFP!
    Beta #1 on 5/10 (10dp5dt) = 99.4. Beta #2 on 5/12 = 284. First u/s on 5/26. = Fraternal TWINS!
    Twin boys born & lost on 8/16/11 at 18w1d due to PPROM & preterm labor.
    IVF #4.1 in Jan 2012 converted to IUI on 1/7/12 = BFN
    IVF #4.2 w ICSI in Feb 2012. Lupron on 2/10. Stims on 2/18. ER on 2/29- 7R,6F
    ET scheduled for 3/5/12- nothing to transfer :(
    Dh seeing new MFI uro & Dh starting meds- June 2012.
    IVF #5 in Dec 2012 = BFFN.
    IVF #6 planned for Spring 2013. Praying for our take home baby/ies.
    **P/SAIF and P/SAL always welcome!**

    Lilypie Angel and Memorial tickers
  • UGH, i'm so sorry they did not call u!  That's crap.

    This is one of the reasons im so pro uro.  Doing an IVF w 6 sperm is VERY hard.  My dh had to produce 3 samples in a 2 hr period and be on the schedule for backup mtese.

    The good news, is low T is one of the very few CORRECTABLE reasons for a low count.  I would DEF have him try the meds and see if there is an improvement.  My dh was not a candidate, bc all of his hormone levels are good.

    I'm pissed they just didn't bother telling u, thats total BS!!!!!!!

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  • I would be just as mad.  There has definitely been a lack of professionalism by more than 1 RE here.  I am so sorry that you and DH have to deal with their bullsh*t.  In general, we should be able to expect better care, but even moreso when we are dealing with IF b/c we are so emotionally and financially invested.

    On the upside, there is a bit of good news.  The clomid might help increase your DHs number, which in turn may help with your next cycle

    ((hugs))

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  • Ugh!  ((hugs)) 

    TTC #1 Since 4/2010, Cycle 30
    Positive for HLA-B27, I'm a mutant :p
    Testing - Me ok, gluten issue? DH - borderline count, low motility
    4/28/11 IUI#1 = BFP!(5/25), EDD 2/2/12 - m/c 5w3d
    7/3, 7/31, 9/25 - IUI#2-4=BFN
    IVF#1 - 1 blast = BFP!! (12/30), EDD 9/9/12, confirmed c/p 4w2d
    FET#1 3/2/12 - 2 blasts =BFP!! EDD 11/18/12, us#1 = twins! Confirmed m/c 5w6d
    4/20-surprise BFP and another c/p 4w2d
    FET#2 7/16/12 - 2 blasts = BFN
    FET#3 8/20/12 - 1 blast - BFP!! Beta #1-2=177, 354
    1st u/s 5w6d, one beautiful little HB :), 2nd u/s 146bpm
    baby girl born 5/10/13

    TTC#2 since 12/17/2014, Cycle 8
    Repeat Testing...FSH=12, AMH=3.8, AFC=28. 
    IUI#5 5/10/15- c/p?
    IVF#2 8/19/15 - cancelled due to cysts
    IVF#2 take two 10/2015 - 5 blasts frozen
    FET#4 12/11/2015 - BFN - 4 blasts remaining
    FET#5 2/18/16 - BFP!!!  Beta1-3, 126, 250, 745!!

    Image and video hosting by TinyPicLilypie Angel and Memorial tickers

    Tons of love and ((hugs)) to my IF sister NMscubagirl


  • mm29mm29 member
    I am so sorry!!!!
    ::: Married June 2003:::
    TTC #1 since: Aug. 2008
    Me: 34, DOR, MTHFR-A1298C (heterozygous), decreased blood flow to uterus, Mild Endo
    DH: 38, Balanced translocation 5&10, unexplained MFI, normal SA and SCSA
    Tx History: IUI 1&2= BFN
    IVF# 1 W/ICSI= BFN
    IVF# 2: cancelled d/t no response
    IVF# 3= 1 egg retrieved=immature/not viable
    IVF# 4= c/p
    ***CCRM ODWU***
    Found DHs BT and Me-decreased blood flow to uterus
    Recommended DE IVF w/PGD, incorporate electro-acupuncture. Decided to cycle locally
    ***New RE***
    DE IVF# 1(cycle #6) w/pgd, (freeze all): 30R, 23M, 15F, slow/poor embryo development, 4 biopsied, 1 Normal "Norm"; DE IVF w/PGD, incorporate electro-acupuncture. 
    IVF# 6: (OE/DS) cancelled
    IVF# 7: (OE/DS) 1R, 1M, 1F, arrested day 5
    Plan-DE IVF# 2 (cycle #8): DE/DS in May 2015


    http://icanhazbabyz.blogspot.com/
    imageimage image 
  • Very very sorry for the delay... I hope it all gets worked out.
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  • I am so sorry

    Multiple ectopics, 2 failed IVF's
    IVF #1: Did not get to ET, embies all failed PGD (major chromosomal defects)
    IVF #2: We have 2 chromosomally perfect embies as a result of PGD (Boy/Girl) 1 failed the thaw (Girl) Transferred 1, yet ended as a c/p
    Thought it was the end of our TTC Journey 6/20/2012
    SHOCK BFP 9/28/2012: IT'S A BOY! and everything is normal !!!!!!

    Little A born 38w 2d on 05/23/13 and is a true miracle for this IF Vet!
     

    image              

     


  • I'm so sorry about the delay.  Fx that the meds help increase your husband's #'s.

    (((hugs)))

    Me: 35 DH: 37 TTC since 4/2010
    DX: 6/9/2011: Azoo ICSI/IVF only option for biological child
    IVF #1: ER - 9/26 * ET - 10/1 * beta#1 10/13 - 140 * beta#2 10/17 - 477 * beta#3 10/20 - 1101
    1st u/s at 6w6d - one hb * 2nd u/s at 8w3d - no hb detected 11/10/11 * natural m/c 11/13/11
    FET #1 Jan/Feb 2012 - 3 delays - cancelled 2/13
    FET #1.2 - May/June 2012 - ET 6/6/* beta#1 6/15 - 95 * beta #2 6/19 - 322 * beta #3 6/22 - 940
    7/6 1st u/s @ 7 weeks - one beautiful hb - released from RE
    EDD 2/22/2013
    PAIF/SAIF/PGAL welcome
    imageimageimageimage
    BabyFruit Ticker
  • LaLe09LaLe09 member
    I'm so sorry for the delay. That is so frustrating. We are going through a similar thing trying to increase my husband's counts with clomid. He also had low T- like in the low 200s. Our uro says he wants it up to the 600s. We haven't retested the SA yet, but hopefully soon. I hope clomid helps with your DH's counts!!

    DH: Severe MFI/Azoo Me: Compound heterozygous MTHFR
    IVF #1= m/c- methotrexate @6w2d
    FET #1= BFN
    IVF #2= m/c- D&C @8w5d
    IVF #3= Beta #1 9dp5dt= 252, Beta #2 11dp5dt= 417, Beta #3 17dp5dt= 4,952
    US #2 @ 7w2d= twins, baby B measuring behind
    US #3 @ 8w5d= Baby A doing well, no HR in baby B
    *S/PAIF always welcome* BabyFetus Ticker
  • Delta04Delta04 member

    WTH?!  I am pissy for you.  Uggh, I hate these delays that could have been avoided.  I was in a similar situation with DH so my heart goes out to you.  DH goes to Dr. S at Ur of I.  He had to take meds for prolactin levels as well.  He is taking Dos.tin.ex. and it worked.  They also checked his pituitary but thank God that was ok. 

    ::Hugs:: 

     

    TTC since 3/07. IVF#1 = canceled. IVF#2 = 0% fertilization. IVF#3 = BFN. IVF#4 = c/p.  
    Moving forward with Adoption 2017!
  • The worst part of IF is the waiting.  I'm so sorry sweetie.
    Beautiful Miracle Baby lost at 21 weeks due to pre-term labor and incompetent cervix. FET#1 BFN, FET#2 BFP, early loss. FET#3 BFN. IVF#2 BFFN. FET #4 BFP after removing bilateral hydrosalpinx and 3 months of lupron depot. Sticky Bun is here!! Image and video hosting by TinyPic Baby Birthday Ticker Ticker
  • I'm so sorry your going through this.

    I really do hope the meds make a significant improvement and your next cycle brings you your sticky BFP!!!!!!

    TTC #1 Since 11/08 - Dx: MFI & PCOS
    7 IUIs = All BFNs
    2011: March IVF #1.2 = e/p @ 6w: May IVF #2 = BFN: July sFET #1 = BFN

    2012: Jan We're Certified FC/A Parents
    May IVF #3 = c/p
    June-Nov Foster Mommy to M (Toddler)
    July FET #2 = BFN
    Aug FET #3 = BFN
    Sept-Nov Foster Mommy to Baby Bella (Newborn)
    Nov HSG/Sono = Clear!
    Dec FET #4 = BFN

    2013: Feb FET #5 = m/c @ 6.5w
    May-July Foster Mom to H (8 yr old girl)
    June/July/Aug IVF #4 = Freeze All
    July = Unofficially Adopting T (10 yr old boy)
    Sept FET #6 = TBD
    **PAIF/SAIF Welcome**
  • imagetheworms:

    that is beyond frustrating.  i don't get why it is so hard to call with freaking results!! 

    i'm sorry for the delay but i hope the meds really help with dh's #'s and sperm quality.  i'm glad you go cleared to do the supplements and i hope they also make a difference. 

    ((HUGS))  when you cycle again you will have both done a lot to improve your chances.   and try to not beat yourself up about not seeing uro sooner, we all second guess ourselves in this process but you did the best you could with the info you had at the time.

    Perfectly said. HUGS and hoping for a great cycle! 

    +++
  • That is so, so frustrating. I'm sorry.

     ((hugs)) 

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  • I'm sorry :( I don't understand why they didn't get to you sooner, how frustrating! Grrrr.

    Congrats Starbuck :y & HHB on their sweet baby boys!
    Lots of love & luck to Mdluv & Zook
    IUI#4 = BFP!!
    When the world says give up... hope whispers try it one more time


    Lilypie First Birthday tickers
  • I am so incredibly frustrated for you! IF is so unfair! (((hugs)))
    Pregnancy Ticker
  • I'm sorry, I can completely understand why you're mad.  Don't beat yourself up though, your doc deserves a kick in the nuts.  Big ((hugs)). 

     
    me 33/DH 36
    ttc since 10/2008; d/x: mild MFI, stageII endo
    ~~PAIF/SAIF Welcome~~
    11 IUI’s = 1 m/c (7w4d)
    IVF#1 January 2012 BFN, FET #1 April 2012 BFN
    Surprise BFP October 2012 m/c (7w), Surprise BFP April 2013 m/c (6w4d)
    IVF #2: July 2013, ET 1 embryo 7/18, beta 1 @ 14dp3dt - 757, beta 2 @ 16dp3dt - 1762
    U/S 1 @ 6w4d = 1 little frogger with HB of 118, U/S 2 @ 7w3d measuring right on track with HB of 160
    Stick Frogger Stick! Please!!!!!!!!!!!!!   It's a Girl, EDD April 7, 2014

    BabyFruit Ticker

  • I am sorry for your delay!  Big BIG (((HUGS)))
    BabyFruit Ticker

    06.10.12 +HPT 06.12.12 Beta #1 = 2,770 06.14.12 Beta #2 = 6,300
    1st U/S 06.18.12 2nd U/S 06.25.12
    09.24.12 It's a Boy!! ---> Jacob Owen

    Our IF Journey Began: October 2009
    **8 Failed IUI's, 1 Blighted Ovum, & 1 Failed IVF**
    Dx: MFI, DOR w/MTHFR Homozygous A1298C & Hypothyroidism
    03.2012 Lab Results: FSH 6.83 AMH 0.67 TSH 3.8 E2 17
    SA 156 million 93% motility 3% morphology

    Follow Me on Pinterest
    **~PAIF/SAIF Always Welcome~**
  • I am so, so sorry about the delay ((BIG HUGS)) I hope the time flies for you.
    TTC 12/2009
    Me: 32 - Stage II Endo / DH: 36 - Low count and morphology (1%)
    IUIs 1-3 BFN, lap Dec. 2010, IUIs 4-6 BFN
    IVF w/ICSI #1 - ER 2/8: 24R 19M 9F ET 2/13 2-5 day blasts (no frosties) = BFP - b/g twins!
    E & C Born 10/19/2012
    Lilypie First Birthday tickers
  • Sweetie I am so sorry.  It is soooooo annoying.  We had a similar problem at our previous clinic - the care coordinator had zero empathy or sense of urgency.

    I hope you and your hubby can make a decision you both are comfortable with.  Thinking of you!

    Our Blog - http://thedittemores.blogspot.com/
    Dx PCOS 2003/high fasting insulin/clotting issues DH Dx with low sperm count, motility and morphology. Varicocele repair (11/1/2010)
    2/2011 - Confirmed no improvement - On to Donor Sperm
    4 failed IUIs in 2010
    IUI#5 and 6- with DS, BFN
    Final IUI - Lucky #7! IUI with DS - 20.Jun.2011 - 21.5 mil motile! Not so lucky - BFFN and the end of our IF journey....
    Waiting for our family to be complete through Adoption - May 2012 - Hoping our baby finds us soon!
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