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Anyone else pregnant after having a "heart baby"?

TxMommaTTxMommaT
in High-Risk Pregnancy
Our first baby was in congenital heart failure before his heart defects were found. (He's now thriving today after receiving life-saving open heart surgery.) We have an NT test in a couple weeks w/the MFM to start looking for markers of heart defects, and will have our first baby's cardiologist do an fetal echo around 18weeks, as well as with the MFM. We're not terribly stressed since we know the various situations of what to expect if there is a heart defect in the baby and also because the chances of having another 'heart baby' is very slim, but it's definitely still on our minds. Has anybody here been through this as well? Either with a second child with CHDs or 'heart healthy'?
1/06: Possible PCOS, Annovulatory, Dysmenorrhea
5/14/10: All natural BFP!
2/1/11: Miracle *heart* baby boy born @41wks
9/11: Provera #1
2/12: Dx Confirmed: PCOS
2/12: Provera #2 & Clomid #1
3/23/12: BFP!
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Re: Anyone else pregnant after having a "heart baby"?

  • twinkletoes815twinkletoes815
    Our first daughter had a CHD known as double outlet right ventricle with a hypoplastic left heart.  Nothing genetically wrong with her from an amnio done during pregnancy, but once born, she looked 'different.'  I suspect she had some kind of syndrome as well as the CHD.  She passed away at 11wks old.  2.5yrs later, we now have a heart-healthy second daughter.  We were scared up until our anatomy scan at 20wks, but everything turned out okay.  We met with a MFM at 12 wks then again at the A/S.  Everything, including the heart, looked great so we ended up NOT getting a fetal echo.  Good luck!
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  • DenaRenee78DenaRenee78 member

    My son had to have heart surgery too. His heart and lungs didn't fuse together right so he had two leaking valves and some sort of a hole. He is 8 yrs old now. 

    I am pregnant with twins this time around and so I haven't 'had' the babies yet. I have no advice other then positive thoughts! I was told its not too common it will happen more then once to the same person.

    Good luck!  

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  • HarmsMommaHarmsMomma

    DS has an atrial septal defect and 2nd degree heart block. 

    I'm currently pregnant again.  We got the NT test done, I've had weekly fetal echos since 18 weeks (and will until 32 weeks), and then at 32 weeks I have 2x weekly NSTs and BPPs.

    I have antibodies that cause the heart block (which is why so much monitoring).  The pediatric cardiologist assues us every week that the ASD is not as common. :) Positive thoughts and lots of prayer get me through most days. 

    (((HUGS))) and good luck!

    Married ~ DD 2004 ~ 2 2nd tri losses ~ DS 2011 5 weeks 1 day early ~ DD2 2012
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