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Multiples
Saying Goodbye...
It looks like I won't be a MoM...and there's a chance that this pregnancy won't result in me being a mom either. I wanted to take a minute to say a HUGE thank you for your advice and support over the last months.
Yesterday was a really hard day. We saw Dr. Anthony Johnson (the TTTS & other neonatal issues Doctor here in Houston). During the consult after the ultrasound he said that he was sorry that we were there to see him because it meant that things were going really really wrong.
We got just about the worst news possible. We won't be having two babies. We have a mutated form of TTTS. IDK what details y'all want...so feel free to ask questions, I don't mind sharing.
Doctor was surprised that our little one still had a heartbeat at this point, and says that she has less than 4 weeks left. There is nothing (medically) that can be done to help her at this point, and attempting anything would put our bigger one in greater danger.
Doctor was surprised that our little one still had a heartbeat at this point, and says that she has less than 4 weeks left. There is nothing (medically) that can be done to help her at this point, and attempting anything would put our bigger one in greater danger.
We have a few options--all of which completely suck.
1) We can do nothing, which gives us less than a 5% chance of having any babies.
2) We can terminate the entire pregnancy, which gives us a 0% chance of any babies (and isn't something we are even willing to consider).
3) We can elect to have a selective reduction procedure to terminate the smaller baby, and that gives us a 70-85% chance of having 1 baby, but it also increases our risk of developmental disorders due to increased risk of premature delivery.
We are leaning towards the procedure but it is so hard to make a final decision...knowing that we are deciding to kill one of our babies, in order to give the other one a chance. We don't have a lot of time to make a decision: they are sharing blood supply, so if the little one passes without having the procedure, the bigger one will essentially have a massive hemorrhage and pass as well.
So...as you can guess, we are both pretty much a mess. Just trying to keep our heads up and focused on figuring out what God's plan is at this point and making the right choice.
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Re: Saying Goodbye...
4 Fresh IVF cycles + 1 FET where embies didn't survive the thaw = 2 perfect little men!
sFET 11/9/11 - Beta 11/18 BFP!
Peanut Butter and Jelly!
<a href="http://s568.photobucket.com/albums/ss122/AliceNP/?action=view
How to tell my boys apart
The different types of twins and triplets
Jack, Sydney and Carynne, Annaleigh, JW, Eden...forever in our hearts.
My blog * We made the national news!
How to tell my boys apart
The different types of twins and triplets
Jack, Sydney and Carynne, Annaleigh, JW, Eden...forever in our hearts.
My blog * We made the national news!
I am praying for a miracle for you and your family in this terrible situation. I cannot imagine. Echoing PP's, you will always. always. always be a MoM, regardless of the outcome. (((hugs)))
I am so very sorry for the difficult decision you have to make; I can't even imagine.
Sending you tons of thoughts and prayers and e-hugs.
My Blog - It's All Part of the Adventure
It is OK to ask. I'm not sure that the "type" of TTTS we have is scientifically/research-defined, but "mutated TTTS" is the terminology the doctor used. We have symptoms of multiple stages of TTTS simultaneously.
As of yesterday, sack sizes still weren't "off" enough to warrant the laser surgery (or the other primary interventions) in a normal TTTS situation. Typically, they look for sacks measuring over 8 and under 1. We weren't there yet--though we did have a change in sack sizes from last week. Baby B was measuring 5 weeks behind yesterday (having "lost" another 1.5 weeks since last Monday), and Baby A is showing drastic heart enlargement.
We also found out that Baby B doesn't have a direct connection to the placenta--her cord attaches to the sack wall, and she has these extensions from the insertion point that reach down to the placenta--they think that most of what she is getting is coming from the transfusion from Baby A (even though Baby B is still considered the donor twin). They also found that Baby B has a cyst in her brain and some abnormal brain development. They aren't sure what the outcome of those two issues if she was able to make it to term.
After 22 cycles and tube removal our IVF miracle has arrived! Detailed IF and IVF info in bio.
Me: 32 - Stage II Endo / DH: 36 - Low count and morphology (1%)
IUIs 1-3 BFN, lap Dec. 2010, IUIs 4-6 BFN
IVF w/ICSI #1 - ER 2/8: 24R 19M 9F ET 2/13 2-5 day blasts (no frosties) = BFP - b/g twins!
E & C Born 10/19/2012
I'm so heartbroken to hear this news.
know that you will always be a MoM - you have had love for 2 babies growing in you at the same time- that is something very special.
It's horrible that you have to make such a hard decision- but know that whaver you decide you will have 100% support from all of us here. it's something nobody can ever judge.
I will be praying for your babies and you/husband. I'm so sad to hear this. Know we will all be thinking about you and if you ever want to come here to post anything- we are here. (((HUGS)))
How to tell my boys apart
The different types of twins and triplets
Jack, Sydney and Carynne, Annaleigh, JW, Eden...forever in our hearts.
My blog * We made the national news!
7/30/12 - B/G twins born at 33w4d due to PPROM