October 2012 Moms

did not have a good NT scan today

I was in the middle of typing up my story and it posted 90 times...I'm really sorry.  I'm obviously not having a good day and this is not making it any better!  I really need some support right now because, per the topic of my last 90 convos, i did NOT have a good NT scan today:

 I just got back from my NT scan, we thought everything was going great - saw the baby moving, saw the heartbeat, the baby is much bigger than last time...so my husband and i were very excited!  After the technician was done she said that she wanted us to go upstairs to see my doctor because she had some concerns.  Of course we're freaking out at this point.  So we go upstairs and my doctor explains to us that the head seems is it not developing correctly, that there could be a possible birth defect.  It's called "encephalocele".  Also, the kidneys don't look good - "abnormal cystic kidneys" is how she described it. Because there's more than 1 concern, she told me that I need to see the specialists at the hospital (in Boston) who can do further testings - for genetic defects, etc.   But she was explaining to me that this could result in a miscarriage so they would need to discuss those options as well...

I'm completely numb right now, I don't even remember everything that she was saying because I couldn't believe this was happening.  I just had a miscarriage in Nov, it was a chemical pregnancy but still very difficult nonetheless.  I'm going to be 13 weeks tomorrow and was so excited to start telling people.  My husband and I haven't told anyone yet - no family, no one - because we were so nervous with what happened last time.  So this is why i need your support right now because i'm beside myself.  

 Again, sorry for clogging up the message board, i'm not quite sure what happened with that... 

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Re: did not have a good NT scan today

  • I hope that your visit to Boston gets you better results. T&P
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  • Oh no! Of course you have our support and good thoughts. I hope you can see the specialists in Boston soon and get some answers! I will be thinking of you and your dear baby.
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  • Good thoughts coming your way OP!!
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  • It may be hard to do right now, but think positive thoughts ONLY.  Know that everything is going to be okay and that God makes miracles happen every second
  • Oh my goodness! I am so sorry to read this! Try not to stress out too much until you talk to the specialist and get some more definitive results. I'll be sending my thoughts your way!!
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  • Gosh, I am so sorry to hear this. I know it must be very frightening. What hospital are you going to? I live in Boston, too. We have such fantastic hospitals here, and you can feel comfort in knowing you will get the absolute best care for you and your little one if it is needed.

    We'll be here for you! When are you scheduled for the tests? I know it is impossible to stay calm, but it really does help to take things one step at a time and deal with things only if and when you have to.

    Again, I am so sorry!


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  • Thinking of you! I hope you get better results with the specialist

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  • Thank you very much.  I am going to BIDMC, but my OBGYN's office is in Lexington.  They are calling me on Monday to try to get me in right at the beginning of the week.  It's so hard to stay positive - it sounded like, if my baby does have this birth defect, that it will almost certainly end in a miscarriage.  I know I have to wait for the appointment (which, the results wouldn't come for a week to 10 days), but I'm just so scared to go through this again...
  • My thoughts and prayers are with you. I hope you get better news with more testing. ((Hugs))

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  • I've already said a prayer for you, and I will keep saying them. Definitely sending positive thoughts to you and your husband. We are all here for you!
  • imageMcPetey80:
    Thank you very much.  I am going to BIDMC, but my OBGYN's office is in Lexington.  They are calling me on Monday to try to get me in right at the beginning of the week.  It's so hard to stay positive - it sounded like, if my baby does have this birth defect, that it will almost certainly end in a miscarriage.  I know I have to wait for the appointment (which, the results wouldn't come for a week to 10 days), but I'm just so scared to go through this again...

    There is no better place to be! You'll be right in the heart of some of the country's best hospitals and doctors. I know it's hard to keep the faith, but they will do everything humanly possible to help you! Just try to get through tonight and then get through the weekend, and then Monday will be here! Try to resist looking up information online. You'll have the chance to speak to real experts in 48 hours, so don't freak yourself out with google. I know it is much easier said than done! Definitely keep us posted.


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  • Oh my goodness, how terrifying. FX for some better news.
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  • ((hugs)) I'm so very sorry, I can't even imagine! I'm sending T&P's your way.
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  • Thoughts and prayers for you!!
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  • imageKimberlyMav:

    imageMcPetey80:
    Thank you very much.  I am going to BIDMC, but my OBGYN's office is in Lexington.  They are calling me on Monday to try to get me in right at the beginning of the week.  It's so hard to stay positive - it sounded like, if my baby does have this birth defect, that it will almost certainly end in a miscarriage.  I know I have to wait for the appointment (which, the results wouldn't come for a week to 10 days), but I'm just so scared to go through this again...

    There is no better place to be! You'll be right in the heart of some of the country's best hospitals and doctors. I know it's hard to keep the faith, but they will do everything humanly possible to help you! Just try to get through tonight and then get through the weekend, and then Monday will be here! Try to resist looking up information online. You'll have the chance to speak to real experts in 48 hours, so don't freak yourself out with google. I know it is much easier said than done! Definitely keep us posted.

    I really appreciate the support.  I did of course Google the info and it's pretty scary.  I hope I am not freaking out everyone else who has an NT scan scheduled.  Encephalocele is a rare birth defect.

  • Prayers for you and your husband.
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  • OMG, I'm so sorry!  I am so sad reading this.  I really, really hope for some better news for you next week.  You will be in my T&Ps.
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  • imagelegalbeagle1:
    Oh no! Of course you have our support and good thoughts. I hope you can see the specialists in Boston soon and get some answers! I will be thinking of you and your dear baby.

     

    Definitely.  i hope you get answers very quickly.  I'm sure the waiting is very difficult.   

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  • I'm so sorry your scan didn't go as expected. I hope the specialist can give you better news. You will be in my T&P's.
  • Thinking of you and praying that all goes well in the next couple of weeks.  (((Hugs)))
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  • I am so sorry you are going through this. You are in my thoughts.
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  • I'm so sorry you are going through this.  Please try and take it easy this weekend and keep up posted. 
  • Sending positive thoughts your way!
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  • Sending thoughts and prayers.  I know it's easier said than done but try to stay positive.  Please keep us updated, I will be thinking of you!
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  • So sorry you had a bad appointment. T&P's to you!
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  • I'm so sorry. This must be such a scary time for you and your husband. You will get through it.
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  • Oh no - don't even give a moment's care to the message board! Who cares!  You just try to stay positive and know you have tons of support here!  Hopefully further testing will reveal some better news. 
  • I'm sorry.  I hope things go well in Boston. If you are close to your mom or another family member you may need to reach out to them for support.

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  • I am so sorry your going through this, I really hope you get some answers soon.  My thoughts and prayers are with you and your husband.
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  • ((hugs)) Hoping all goes better in Boston
  • I'm so sorry. Hopefully the specialist will explain things better and you'll get some   reassurance,
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  • I'm so sorry you are going though this.  I hope the specialists have some better news.  When do you get to go see them?  Until then, try not to stress too much.  We are here for you!
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  • Thinking of you!!!  

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  • Sorry to hear that. Hope everything works out.
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  • I'm so sorry!  I hope things end up going well.

    My cousin was told the chances of her daughter having trisomy 13 were very high after the NT scan, but everything ended up being okay.  I hope the same happens with you.   

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  • I'm so sorry your going through this. I'm sending you lots of thoughts and prayers!
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  • I a so sorry you had such a disappointing scan, hopefully things will go much better with the specialist 
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  • I am praying that your next appointments bring better news.  Praying for that sweet baby of yours.
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  • Oh no....So sorry you're dealing with this.  I really do not know what to say in situations like these because I don't want anything to be taken as insensitive in a way I didn't think it would- but I really hope things aren't as bad as they seem and that they're just being super cautious.  I really hope that doesn't sound wrong, because I definitely don't mean it that way.  I hope you and your husband find the strength and support you need to get you guys through this time.  And of course, there is always this board...we're thinking of you! 
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