Preemies

*Adalyn update 2/25*


Hello everyone!! Adalyn has had an AMAZING day today! Let's get started with the update!

Breathing
She is now completely off the antibiotics and her chest x-ray looked better today than yesterday.  This morning, her blood gas was great and her settings on the oscillating vent were very low.  Her heartrate was on the lower side of where she had been (although not dangerously low or anything) and so her MD ordered an EKG on her.  Before that, however, he had them change her from the oscillating vent to the conventional vent. So, yay! The EKG was completely normal, so he just had the nurses have her stay on her belly for a while and that seemed to do the trick.  It was kind of ridiculous seeing them try to put all the 12-leads of the EKG on her since she was so tiny.  Luckily, she had just enough room to get them all on there!

She was still oxygenating well when they switched her, and when I came to see her at 2pm her settings on the conventional vent were the lowest they've been in a while because of a great blood gas! I wasn't able to get here for her 5pm Hands On, so I called and spoke with her nurse around 6:30pm or so to see how her 5pm blood gas went. Evidently, Adalyn heard the nurse and the RT talk about how excellent her blood gas was because at 5:30pm she decided to pull the tube out herself! So, since the tube was out, they decided to try the CPAP mask on her. 

At 8pm they did another blood gas, and it was once again wonderful! So, yay! She gets to stay on the CPAP for now.  She has been oxygenating well on the CPAP.  Now, it is important to keep in mind that just because she is on the CPAP does not mean that she can't go back to the vent if her blood gas gets worse.  However, this is a victory because at least it is time NOT spent on the vent! :)

Since she doesn't have the tube down her throat, I actually was able to hear her cry tonight! Granted, it is NOT like a regular baby cry, more like a kitten meow, but it was her making noise! It was very nice hearing something OTHER than machines beeping in her room. :) 

Feeding and Weight
She is up to 19ml every 3 hours and she is tolerating her feedings very well.  She actually went down 20grams in weight today to 950grams from 970grams.  She is still 2 pounds 2 ounces.  They told us to not be surprised if she doesn't gain much and/or loses some, since that now she has to do all the breathing, she is going to be using more energy.  My pumping is still going strong, and today I logged 38 ounces! I am so fortunate to have so much, and I'm just going to keep pumping as long as I can!

Miscellaneous
They had to change Adalyn's bedding and the nurse had me hold her! It was the first time that I got to hold her!! The RT also said that they could take the mask off for a moment so that we could take a picture of her whole face! It was so incredibly awesome!! Today has definitely been a good day!  Let's hope that she continues on this path and that we have several good days in a row!! 
IMG_9463
TTC Since July 2008.
Me: PCOS DH: Low everything (MFI)
Clomid with TI x 3 2010 BFN
Clomid+IUI+Ovidrel 2010 BFN
IVF w/ICSI #1 2011
9/8/11 Beta #1: 2082!! 9/19/11 Beta#2 34,689!! U/S 9/22/11 HR 127! 11/8/11 HR 150! 12/6/11 HR 136! 12/14/11 HR 139! Born at 26w2d on 2/4/2012! After 83 days in the NICU, Adalyn came home on 4/26/12!
FET 1 3/2013 BFN
FET 2 5/2013 BFN
Lilypie Premature Baby tickers

Re: *Adalyn update 2/25*

  • Aw, this is all fantastic!! Great day for Adalyn!!
    Julia ~ six miscarriages ~ our sweet miracle baby, Jack, due 5/3/12, was born at 29w1d on February 17, 2012, weighing 2 pounds 8 ounces Lilypie Premature Baby tickers BabyFetus Ticker
  • So glad she is continuing to do well...

    And to be on CPAP! Woo! I love your attitude, you're right each day not of the vent is progress, and if she does have to go back on, it will be an even shorter time frame...

    Go Adalyn!

    Mom to preemie b/g twins born 14 weeks early after 3 years of IF, 8 clomid cycles and 1 IVF. Lilypie Premature Baby tickers
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  • She's doing great! These little babies are so strong!  It's wonderful that you go to finally hold her.
    Daisypath Happy Birthday tickers
    Daisypath Happy Birthday tickers



  • That's wonderful! 
    Married to Brandon since 2/14/06
    Twin Girls born on January 1st 2012:Brooklyn Avery(Brooke) & Eliana Meredith(Ellie)
    Ellie and Brooke both have Juvenile Diabetes
    Adopted a Brother and Sister in January of 2012
    Levi Ryan-October 25th 2007 and Caroline Paige(Carly)-July 23rd 2009
    Jonah Samuel born April 21st 2013
    Expecting Baby #6-June 2014!
  • imageDrRx:

    Hello everyone!! Adalyn has had an AMAZING day today! Let's get started with the update!

    Breathing
    She is now completely off the antibiotics and her chest x-ray looked better today than yesterday.  This morning, her blood gas was great and her settings on the oscillating vent were very low.  Her heartrate was on the lower side of where she had been (although not dangerously low or anything) and so her MD ordered an EKG on her.  Before that, however, he had them change her from the oscillating vent to the conventional vent. So, yay! The EKG was completely normal, so he just had the nurses have her stay on her belly for a while and that seemed to do the trick.  It was kind of ridiculous seeing them try to put all the 12-leads of the EKG on her since she was so tiny.  Luckily, she had just enough room to get them all on there!

    She was still oxygenating well when they switched her, and when I came to see her at 2pm her settings on the conventional vent were the lowest they've been in a while because of a great blood gas! I wasn't able to get here for her 5pm Hands On, so I called and spoke with her nurse around 6:30pm or so to see how her 5pm blood gas went. Evidently, Adalyn heard the nurse and the RT talk about how excellent her blood gas was because at 5:30pm she decided to pull the tube out herself! So, since the tube was out, they decided to try the CPAP mask on her. 

    At 8pm they did another blood gas, and it was once again wonderful! So, yay! She gets to stay on the CPAP for now.  She has been oxygenating well on the CPAP.  Now, it is important to keep in mind that just because she is on the CPAP does not mean that she can't go back to the vent if her blood gas gets worse.  However, this is a victory because at least it is time NOT spent on the vent! :)

    Since she doesn't have the tube down her throat, I actually was able to hear her cry tonight! Granted, it is NOT like a regular baby cry, more like a kitten meow, but it was her making noise! It was very nice hearing something OTHER than machines beeping in her room. :) 

    Feeding and Weight
    She is up to 19ml every 3 hours and she is tolerating her feedings very well.  She actually went down 20grams in weight today to 950grams from 970grams.  She is still 2 pounds 2 ounces.  They told us to not be surprised if she doesn't gain much and/or loses some, since that now she has to do all the breathing, she is going to be using more energy.  My pumping is still going strong, and today I logged 38 ounces! I am so fortunate to have so much, and I'm just going to keep pumping as long as I can!

    Miscellaneous
    They had to change Adalyn's bedding and the nurse had me hold her! It was the first time that I got to hold her!! The RT also said that they could take the mask off for a moment so that we could take a picture of her whole face! It was so incredibly awesome!! Today has definitely been a good day!  Let's hope that she continues on this path and that we have several good days in a row!! 

    IMG_9463

    That's great!! Go Adalyn! I'm so glad you got to hold her. She's so precious! 

  • What a great update - and a great day! 

    I've been following your posts, but not sure if I've replied yet (stupid phone!)  Sounds like the oscillator gave her the break she needed to make a huge leap forward.  Great, great news!

    I totally remember hearing my son cry for the first time too, and definitely thought it sounded like a kitten.  So sweet! 

    Warning No formatter is installed for the format bbhtml
  • Awesome update!  Keep it Adalyn!!
    Born at 31w3d due to severe IUGR & Placental Insufficiency--2lbs 3ounces
    image

    We'll miss you sweet Debbie Girl (4.21.12) and sweet Cindy Girl (8.9.12)
    Lilypie Premature Baby tickers

  • Look at that beautiful face!!! Savor all the joys of this day momma. Keep going strong Adalyn!

     

    BFP#1 9/14/10 (EDD 5/21/11); no fetal pole 6w6d, 7w4d, d&c 10/8
    BFP#2 3/16/11, beta 138; 4/12 Baby/HB DS born 9/10/11 at 29w4d due to partial abruption and PTL
    Lilypie Third Birthday tickers
    BFP#3 8/19/13 Another boy! 17P, modified bedrest and Nifedipine helped us have a termie! DS2 born 4/19/14 at 38w5d.
    image
  • Great job Baby Adalyn! My DD extubated herself, too! Here's hoping you guys continue on this great path!
    Lilypie Premature Baby tickers
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