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LJR 84
member
New here. DS has Scoliosis...and an MRI question.
LJR 84
member
Hello everyone. We've recently discovered that my 6 month old DS has scoliosis. He's had an Xray and it's been determined his curve is approx. 48 degrees...so it's pretty significant. Our Dr. is pretty sure that it is not congenital (because he can't see any bone/rib deformities), but idiopathic (without known cause). He advised we have an MRI to rule out the possibility of congenital scoliosis, though...so that is our next step. After the MRI results come back we will move on to the treatment phase...which will likely include casting.
My first questions is: Has anyone here dealt with scoliosis in such a young child? I know it's not very common...so this is probably a long shot.
My second question involves the MRI. I'm obviously stressed out about DS being put under, but I'm also worried about the fact that he can't eat after midnight the night before. His appointment is currently scheduled for 10:15 AM. That's a VERY long time for him to go without eating, considering he's used to nursing every 3 hours. Our nurse said they try to schedule young babies first thing in the morning. I thought this meant 7 or 8 AM. (Because we could handle that). 10 just seems...too late. Any advice/suggestions are greatly appreciated!
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Re: New here. DS has Scoliosis...and an MRI question.
My DS had a fully sedated MRI at 7 months and he couldn't eat for just a few (2 or 3) hours before, as long as it was just breast milk in that time before. If it was formula or anything else, it was longer. Maybe you can call the radiology dept and ask if the timing is different since he's nursing and not actually eating food or drinking cows milk?
It'll be much worse for you than it will be for your DS. When my DS had his MRI it was the first time he had been put under and I couldn't eat, drink, or think about anything other than how he was while he was gone. Go for a walk, call someone, play a game, anything to get your mind away for a little bit! Good luck!!
My LO has scoliosis (He also has a genetic condition PWS) - so significant we have VEPTR surgery when he turned two years old - its an alternative to casting, bracing, and growth rods. My son had a neuromuscular curve and the orthopedic surgeon recommended the VEPTR for that.
I have blog that I keep and on it I've documented Isaac's first VEPTR surgery in the summer of 2010 and his first lengthening in summer of 2011. He's doing very well and the VEPTR straightened his curve a LOT! The x-rays were unbelievable.
There is a lot they can do to try to straighten the curve - and the options are changing all the time.
Try not to worry about the MRIs - my LO has had two so far and he didn't seemed bothered by the not eating part too much. He was very happy to get some pediasure in recovery though!
If you have any questions feel free to page me on here - I lurk, but don't post all that much anymore because three kids keeps me busy!
I would call and ask to speak to the anesthesiologist. For us, it was no formula 6 hours before and no breastmilk, water or clear pedialyte 3 hours before
I second double checking we are normally told formula is ok 6 hours prior, 1 hospital did say 8 but really 6 should be ok even if the child has a breathing tube.
As for scoliosis, we noticed Peyton's around 4 months of age, went to an orthopedist at 6 months, an adult ortho here about 9 months ago wasn't concerned. I'm not sure what the cause of hers is but she did have a tethered spinal cord too. She moved on her xray but it showed about a 10 degree curve, but again she moved so not completely accurate (it's a little bit more). Right now we are just watching it, it is getting better as she grows and as she started to be able to sit straighter, etc. And as her tort got better as well.
GL!