Community› The Bump Message Boards› Parenting
Parenting
New Discussion

wwyd regarding my daughters lymph nodes.

HeatherRyanHeatherRyan
in Parenting

I posted in November about my daugter having a swollen lymph node.  Fast forward now 6 weeks...She still has swollen lymph nodes on both sides of neck (2cm).  We have seen two ENT's, oncologists at CHOP, and had a chest xray and lab work.  Chest xray was fine, lab work was good.  She was put on two rounds of antibiotics.  ENT says to give it time.  Oncologists think it is not lymphoma because lack of other sysmptoms. 

I am still very uneasy about these nodes in my daughters neck because they have not gone down in 6 weeks.  Online I read (I know google is a very bad thing) that lymphoma is very tricky cancer and sometimes there is no symptoms other than swollen lymph nodes.  I don't know why I am not satisfied with all these doctors telling me to wait it out.  They don't think a biopsy should be done (only way to diagnose) because of the risk of anaesthsia and because they feel it isn't warrented yet. 

I just don't understand why they are not going down.  What happens if the docs are wrong.  How long do I just wait?  wwyd?

Heather married 10.1.05 Brandon 12.9.06 Kristin 3.22.10 image
Report Reply to Post

Re: wwyd regarding my daughters lymph nodes.

  • VandRickyVandRicky
    go with your gutt! go get a 2nd opinion. My best friend had hodgkins lymphoma, so to me this is serious stuff.
    Report Reply
  • Loading the player...
  • HeatherRyanHeatherRyan

    did she have any symptoms?

     

    Heather married 10.1.05 Brandon 12.9.06 Kristin 3.22.10 image
    Report Reply
  • akaoct2005akaoct2005 member
    if you are feeling uneasy, get another opinion.  she's your baby, don't wait.
    Report Reply
  • HeatherRyanHeatherRyan

    I've had four opinions...2 ents and 2 oncologists (same office-one a fellow the other the oncologist).

    Am I nuts.  Oh well I think I'm going to schedule another appointment at a different Children's Hospital.

    Heather married 10.1.05 Brandon 12.9.06 Kristin 3.22.10 image
    Report Reply
  • akaoct2005akaoct2005 member
    two things can come out of another opinion:  you can get confirmation that all is well/to wait it out or, heaven forbid, that there is a problem.  BUT, you will know now and you will be able to help her now.  nothing "bad" will come out of getting more information. 
    Report Reply
  • justEKjustEK member

    And she hasn't been sick? 

    I had extremely swollen lymph nodes a while back. They ran all sorts of tests and I came back positive for Lyme, which was actually a false diagnosis from my Lupus.

    I would personally take her to another Children's hospital, although it sounds like you got a lot of confirmation. Could they possibly think it could be from a recent illness and maybe they are waiting it out for that? Mine only took 2 weeks to go down. I would have gone nuts with 6! 

    Report Reply
  • ali-1411ali-1411 member
    When DS had swollen lymph nodes it ended up being mono.  But he had also been running a fever for three weeks.  Does she have any other symptoms?
    Warning No formatter is installed for the format bbhtml
    Report Reply
  • shopgirl78shopgirl78 member

    How scary!   I will keep you and your DD in my thoughts and prayers!   No other thoughts are ideas!

    DS2's labs came back normal but he has been very tired the last couple of days.  


    Baby Birthday Ticker Ticker Baby Birthday Ticker Ticker Baby Birthday Ticker Ticker
    Report Reply
  • canhardlywait1canhardlywait1

    My son also ended up with a case of mono - the doctors said it could take some time for lymph nodes to return to their normal size and I think it took about 2 months.  Was she tested for mono?

    If all ofher blood work came back in normal range (blood counts etc.) I am not sure what other doctors can do.  But, trust your instincts....

    Warning No formatter is installed for the format bbhtml
    Report Reply
  • HeatherRyanHeatherRyan
    Tested negative for mono.  Just had more blood work today. 
    Heather married 10.1.05 Brandon 12.9.06 Kristin 3.22.10 image
    Report Reply
  • Littlejen22Littlejen22 member

    Go to another Children's Hospital or at least another ENT.  While chances are everything is ok b/c they did a lot of tests, sometimes Mother's intuition needs to be trusted.  When I had my doctors and a pediatric orthopedic say that my DD was fine, I went to a Hospital in NYC and she was diagnosed with Infantile Scoliosis.  My point, just your gut and hopefully they will just confirm that there is nothing wrong.

    Good luck!

    Jen - Mom to two December 12 babies Nathaniel 12/12/06 and Addison 12/12/08
    Report Reply
This discussion has been closed.
Choose Another Board
Search Boards
"
"