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April 2011 Moms
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Cranial Reshaping Helmet

heidiwillheidiwill
in April 2011 Moms

Hi Moms!

My first post, so here goes. My son was diagnosed with moderate Plagiosephely (sp), fancy word for a flat spot on the rear right side of his head. It all started with a diagnoses of Torticullus (tight neck muscles on one side) and as a result he favors looking to one side. We have him in PT for the neck and he just started wearing a helmet for the flat spot on his head. I just wanted to connect with any moms who have little ones with helmets. We keep having issues with a skin reaction. The reaction is nothing that bothers him, but looks fierce. I am close to the point of just saying forget the whole helmet thing and letting nature take it's course but I would feel awful if as a child he has to deal with any more torment than the norm. KIds can be so mean.

So...any moms out there who have a "helmeted" child? Any moms who decided against the helmet? If so what were the outcomes?? Mostly I'm just looking for any advice!

H

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Re: Cranial Reshaping Helmet

  • youaremysunshine323youaremysunshine323 member

    DS had a helmet and we also had problems with his skin. He was getting a fungus from it and contact dermatitis. First I would try to contact wherever you go for you helmet and express your concerns. If they are unable to help you then make an appointment with your pedi and show them the irritation from the helmet. They may be able to prescribe you a cream for him or give you other suggestions. I'm sorry you are going through thus but don't give up just yet! Let me know  if you have any other questions.

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  • heidiwillheidiwill

    Thank you so much for your advice! We are actually having better luck this go around. A slight red spot on the cheek but it disappeared relatively quickly. Hopefully this evening when he has it off for bath time it'll all be good. We do have an appt on Tuesday to go in.

    I actually do have another question though. He now seems to have an itchy head. The specialist did say to try cornstarch powder if it persists which I was planning on applying tonight. Did you have this issue and if so any advice.

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  • kgail11kgail11 member

    I have no experience firsthand, but my best friend's son had to wear a helmet for 23 hours/day for 3 months. It was rough - just a hard transition, sleep-wise, but they got through it!! Just like everything else, ya know.. 

    It's the best thing for them and you should feel awesome about making the right decision. Some people opt out of it, which blows my mind.

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  • youaremysunshine323youaremysunshine323 member
    imageheidiwill:

    Thank you so much for your advice! We are actually having better luck this go around. A slight red spot on the cheek but it disappeared relatively quickly. Hopefully this evening when he has it off for bath time it'll all be good. We do have an appt on Tuesday to go in.

    I actually do have another question though. He now seems to have an itchy head. The specialist did say to try cornstarch powder if it persists which I was planning on applying tonight. Did you have this issue and if so any advice.

    Sorry I didn't see this til this morning! DS had itching but it was due to the fungus so the cream helped it. The corn starch sounds good if it was recommended to use and I would just make sure you wash him and clean out the helmet well every night. Also make sure the helmet and his hair are completely dry before you put it back on. I Guessing the itching is from the extra sweating that he has while getting used to the helmet. That should get better. Good luck!!
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