AmyGrnEyz — The Bump
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AmyGrnEyz

There are no words. I ache for you and your family and am so sorry for your loss.

My son has Williams Syndrome which is characterized among other things with cardiac defects. I've lost the information you posted about ordering flowers in support of CHD. If you feel you can repost, I'd like to share it with the WS listserve.

From one heart Mommy to another my deepest sympathies.

Re: AmyGrnEyz

  • Hi-

    I'm not sure about information for ordering flowers in support of CHD (did she post it on here?), but I do have information for making a donation to the hospital where Amy's son recevied his care. Amy asked that we make our donations in memory of " Jack C." in order to honor her son. Here is the info:

    Save A Heart Program
    Congenital Heart Center
    University of Michigan Health System
    L1242 Women's
    1500 East Medical Center Drive SPC 5204
    Ann Arbor, MI 48109-5204
    http://www.med.umich.edu/mott/chc/sah/

     

  • imageakimbo:

    There are no words. I ache for you and your family and am so sorry for your loss.

    My son has Williams Syndrome which is characterized among other things with cardiac defects. I've lost the information you posted about ordering flowers in support of CHD. If you feel you can repost, I'd like to share it with the WS listserve.

    From one heart Mommy to another my deepest sympathies.

     

    The Children's Heart Foundation Teams Up With ProFlowers(R) to Raise Awareness and Funding for the Leading Birth Defect in America
        Beginning May 2008, Ten Dollars of Every Floral Bouquet Purchased at
     http://www.proflowers.com/CHF Will Support Research for Congenital Heart Defects
    
        LINCOLNSHIRE, Ill., May 5 /PRNewswire/ -- The Children's Heart
    Foundation today announced a new partnership with ProFlowers(R) -- the
    online fresh flower marketplace -- just in time for Mother's Day! Beginning
    in May 2008, shoppers can visit http://www.proflowers.com/CHF and choose
    from a variety of beautiful, fresh-from-the-field flower arrangements. Ten
    dollars from each purchase will benefit The Children's Heart Foundation.
    
        "On behalf of the families of the 40,000 babies born each year with a
    congenital heart defect, we want to thank ProFlowers(R) for their support,"
    said William Foley, Executive Director, The Children's Heart Foundation.
    "Sending flowers to the mothers and grandmothers in your life is a great
    way to show your appreciation and celebrate their love -- and now it also
    can help raise much-needed funding to find better treatments and, hopefully
    someday a cure, for congenital heart defects."
    
        Every fifteen minutes a baby is born in this country with a congenital
    heart defect. Congenital heart defects (CHD) are the number one birth
    defect among all children born in America today. A CHD consists of an
    abnormality in the structure of the heart that may have life-threatening
    effects. There are 35 different types of CHDs, yet little is known about
    the cause of most of them and there is not yet a cure for any of them.
    
        The Children's Heart Foundation is the country's leading organization
    solely committed to congenital heart defect (CHD) research funding and is
    comprised of parents, family members and friends of those affected by a
    congenital heart defect. The goal of The Children's Heart Foundation is to
    increase awareness, support the recently diagnosed through educational
    materials and continue funding the most promising research to find better
    treatments.
    
        All year long, supporters can purchase a wide variety of specialty
    flowers to mark a loved one's birthday or anniversary, say thanks to a
    special teacher or celebrate a new baby's arrival by visiting
    http://www.proflowers.com/CHF. For every bouquet sold on the special
    webpage, ProFlowers(R) will generously donate $10 to support The Children's
    Heart Foundation.
    
        THANK YOU!! PLEASE POST AND LET EVERYONE KNOW!
    
    
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  • Posted. Thank you. I find you in my thoughts often and will continue to pray for you and your family.
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