There are no words. I ache for you and your family and am so sorry for your loss.
My son has Williams Syndrome which is characterized among other things with cardiac defects. I've lost the information you posted about ordering flowers in support of CHD. If you feel you can repost, I'd like to share it with the WS listserve.
From one heart Mommy to another my deepest sympathies.
Re: AmyGrnEyz
Hi-
I'm not sure about information for ordering flowers in support of CHD (did she post it on here?), but I do have information for making a donation to the hospital where Amy's son recevied his care. Amy asked that we make our donations in memory of " Jack C." in order to honor her son. Here is the info:
Save A Heart Program
Congenital Heart Center
University of Michigan Health System
L1242 Women's
1500 East Medical Center Drive SPC 5204
Ann Arbor, MI 48109-5204
https://www.med.umich.edu/mott/chc/sah/