2nd Trimester

Echogenic focus (white spot) on heart.... our results

At our 18 week ultrasound, we were told (and saw for ourselves) that our baby has an "echogenic focus" or a bright white spot on her heart.  Doc told us that it was a soft marker for down syndrome, but that she had no other markers, so our chances of down's were only slightly increased from normal.  She said "not to worry", that it would probably go away on it's own, and we would go in for another u/s in 4 weeks.

So, I spent the next 4 weeks worrying and googling and it was horrible.  We had our re-scan u/s at 22 weeks, and though the rest of her was fine, the spot was still there.  I felt like throwing up, we still didn't really understand what it could mean for her, and the whole thing was so scary.  So Doc says she wants to be sure that nothing is wrong with baby's heart, that the spot had something to do with chordae tendonae, and if there was a defect, that could screw up her heart valves.  She sent us to Children's Hospital Central California, which is a very high tech facility (the largest children's hospital north of San Diego) for a fetal echocardiogram.  We were told, once again, not to worry.  Yeah, right.  

It took one week to get an appointment at the cardiology testing center at the hospital, and we had our visit yesterday.  The ultrasound tech spent about 45 minutes looking and listening to baby's heart, taking pictures and video from all angles.  She said that she didn't see anything abnormal, but techs are not doctors.  Then the pediatric cardiologist came in and looked at all the pictures and videos, and told us that the chordae was completely normal and didn't have anything to do with anything, and that the baby's heart is a perfect little ticker.  Case closed, we'll forward the results to your doctor.

What a relief!!!  So the whole point posting this is just in hoping that if your ultrasound showed white spots and you don't understand what they're saying and you're scared and it's all very overwhelming... just know that it just might be ok, after all.  It was impossible to stay totally calm in the 5 weeks since we found out about the spot, but I spent 5 weeks worrying about absolutely nothing.  Keep your chin up if you got the "scary news" like we did!!

Re: Echogenic focus (white spot) on heart.... our results

  • That's really great news, you must be relieved! I really appreciated your post as I personally have not been through this, but my close friend was just told her baby had similar white spots on her heart. after being to her 19 week ultrasound. It was the only indicator, and the midwife isn't that worried, but my friend hasn't been the same since, being so worried about it...I hope she gets good news like you did!
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  • Great news! I had an u/s Monday and they found a VSD (small hole) in the heart. I go for a fetal echo Monday. I hope it closes on it's own- soon!
  • That's great news :)  I'm happy everything turned out good for you! I'm sorry you had to go through a month of waiting and worrying though!  
  • Thanks girls!
    After our echo appt, I told hubby that from now on, the last 5 minutes of our Dr appts I would just go sit in the waiting room, and HE could talk to the doc, just the 2 of them, about anything that we "don't need to worry about" lol !  I can't take any more "not worrying"!
  • imageShawnee11507:
    Great news! I had an u/s Monday and they found a VSD (small hole) in the heart. I go for a fetal echo Monday. I hope it closes on it's own- soon!

    My daughter was born with 2 very small holes in her heart.  They were found when she was 4 days old with an echo (my DH has a heart murmur, so my doc paid close attention with our DD).....the cardiologist mention that roughly 50% of babies are born with tiny holes in their hearts, most go undetected and close up anywhere from 6 months to 5 years........ anyway, she is 21 months now, and completly fine and great, as far as we know the hole have closed up (we haven't done another echo to confirm).  Good luck!

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  • thx for posting this...at my 13 week NT Scan i was also told and shown the white spot on my babys heart. My ob said not to worry about it that its usually nothing serious and will probably go away on its own. I go at 20 wks for an ultrasound and theyre gonna check it out. Im trying not to worry about it...i know theres absolutly nothing i can do anyway....

    BabyFetus Ticker
  • So happy to hear your good news - thanks for updating everyone!
    Baby Birthday Ticker Ticker
  • I'm so glad that everything turned out well for you; sorry you had to go through so much worrying!  I also had an EIF on my 18 wk ultrasound, and we're now (not so) patiently awaiting a follow-up ultrasound at 24 wks.  Unfortunately, I have a family history of MR (not Downs though....I'm not sure what the medically appropriate diagnosis is for my family members) so it's really hard not too worry, but your story gives me a lot of hope!
    Baby Birthday Ticker Ticker
  • congrats, so glad you got good news! its so hard to 'not worry' when they tell us that!
    Lilypie Second Birthday tickers Lilypie First Birthday tickers
  • That is great! we went in 3 weeks ago and they found the same spot and did some measurements.. one doc said dont worry totally fine so I stopped thinking about it till this monday when the head doc called and said he just saw the pics and will be sending me to the high risk/ specialist to take another look just like you did. Of course Im trying to keep saying its all good because other docs said it was but how can I not worry till I hear it from this new specialist and it can all just go away!!! I am waiting for the call to schedule my appt and the waiting sucks!

    BFP 1/4/2014 EDD September 14 2014

     

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