Preemies

Gathering Information

Hi ladies!  I'm trying to gather information for the preemie resource blog that Urban, KCK and I are going to put together.  Can you take a minute and answer the following questions:

1. What gestation did you deliver LO at?

2. Why you delivered early?

3. Length of NICU stay

4. Any long term illness, condition, etc your LO has as a result of premature birth

 

TIA!

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Re: Gathering Information

  • 1. 26w2d (second baby 35w4d)

    2. IC (second baby had TAC)

    3. 17 weeks (second baby no NICU stay, a week in intermediate nursery)

    4. Reflux, delayed gastric emptying, global delays, possible mild CP (had level 2 and level 4 IVH), sensory integration issues, immune system is a bit below normal, muscle tone/pronated walk/orthotics needed, some social concerns (not sure if he's just socially behind or if he's on the spectrum or not), all other conditions experienced have resolved over the last 2 years (second baby, no known issues to date)

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  • 1.  26w3d

    2.  Unexplained PTL.  Possible IC, possibly caused by water breaking (my water had broken the first time they checked me), possibly caused by low-lying placenta.

    3.  70 days

    4.  None identified so far.

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  • 1. Exactly 27 weeks

    2. pPROM

    3. 68 and 70 days

    4. So far just reflux.

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  • 1. What gestation did you deliver LO at? 26weeks

    2. Why you delivered early? pPROM @ 20 weeks by 26 weeks had gotten corio

    3. Length of NICU stay Twin B 105 days, Twin A 153 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth CLD/BPD and some minor developmental delays so far with Twin A

    TTC #1 since 4/2007... MFI (low motility/low Testosterone) & PCOS IVF #1 August 2010...BFP 1st sono shows TWINS!!!! Due May 23rd 2011 Ruptured @ 21 weeks (Jan 13) Delivered 26 weekers (Blake and Addison) on Valentine's Day... Keeping faith and praying, God has a plan and we just have to learn to follow. Our Blog ... ourvalentinesdaysurprise.blogspot.com Lilypie Premature Baby tickers
  • 1.  26w 4d

    2.  Preeclampsia

    3.  128 days

    4.  Reflux, BPD/Chronic Lung Disease

  • 1. 33w4d

    2. pPROM at 33w3d.  I had previously had steriod shots (+ ffN at ~29 weeks, + cervical changes) and I went into labor on my own the next day.

    3. DD 17 days, DS 30 days.

    4. Reflux.

    Husband has cystic fibrosis. I'm a carrier. We did TESE, IVF, ICSI, and PGD. After two failed IVFs, we were blessed with our twins.

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  • 1. 33w5d

    2. pPROM

    3. 25 days- 9 in the NICU, 16 in a Special Care Nursery

    4. Nothing that we know of yet. We suspect some GI issues maybe, but nothing is screaming out. I hope it stays that way!

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  • 1. What gestation did you deliver LO at? 23w5d

    2. Why you delivered early? Incompetent cervix

    3. Length of NICU stay? 147 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth

    BDP/CLD, reflux, possible early eye issues due to stage III ROP (had laser surgery in NICU), no other delays evident yet.

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  • 1. What gestation did you deliver LO at? 31w3d

    2. Why you delivered early? Unexplained placental insufficiency and severe IUGR

    3. Length of NICU stay? 41 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth? Nothing long term that we know of, but he did have a hernia that had to be repaired.  He was also on a monitor for 12 weeks after we came home due to apneas/bradys. 

    Born at 31w3d due to severe IUGR & Placental Insufficiency--2lbs 3ounces
    image

    We'll miss you sweet Debbie Girl (4.21.12) and sweet Cindy Girl (8.9.12)
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  • 1.  26w5d

    2.  IC

    3  105 days

    4.  None identified so far. 

  • 1. What gestation did you deliver LO at?  31 weeks, 5 days

    2. Why you delivered early? Severe Pre-eclampsia

    3. Length of NICU stay  15 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth   We have not come across anything yet.  He has tripled his birth weight and continues to grow very strong.  He is even hitting milestones typical for his actual age. 

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  • 1. What gestation did you deliver LO at? 27W 3D

     2. Why you delivered early?  ic leading to ptl

     3. Length of NICU stay 10weeks/ 14weeks

     4. Any long term illness, condition, etc your LO has as a result of premature birth 

    Liam - Developed osteomyelitis  (likely from his previous Group B strep/meningitis infection) in his tibia, however everything appears to be growing well so far, possible mild CP although things are looking good so far.

    Hunter - Had a spontaneous bowel perforation, no long term complications expected. 

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  • 1. 32w6d

    2. pPROM

    3. 11 days

    4. Reflux & we suspect delayed gastric emptying

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  • 1. 24w,5d

    2. Incompetent cervix

    3. 98 days

    4. chronic lung disease, reflux

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  • 1. What gestation did you deliver LO at? 33w 4d

    2. Why you delivered early? pre-e

    3. Length of NICU stay 12 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth.

    None so far

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  • I dont know if I count b/c my son was not a preemie but he was still extremely sick when he was born and was in the NICU.

    imagebhilyer:

    Hi ladies!  I'm trying to gather information for the preemie resource blog that Urban, KCK and I are going to put together.  Can you take a minute and answer the following questions:

    1. What gestation did you deliver LO at? 40 weeks and 6 days

    2. Why you delivered early? N/A

    3. Length of NICU stay - 17 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth- Was GBS+, Sepsis, treated for Menigitis, collapsed lung, pnuemonia, meconium aspiration syndrome. Possible Long Term Effects: Brain Damage, Hearing Loss, Vision Loss, Learning Disabilities, Cerebral Palsy.  BUT So far, so good!  :)

     

    TIA!

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  • 1. What gestation did you deliver LO at?  29 weeks

    2. Why you delivered early?  I went into labor at 24 weeks and they were able to stop it with procardia and hospital bed rest.  I had a fibroid that was really tiny at 20 week ultrasound (first time we saw it and nobody was alarmed) but somehow got huge in the next 4 weeks growing off the pregnancy hormones and cause me to go into labor and thinned my cervix out (incompetent cervix).

    3. Length of NICU stay - 74 weeks- came home on my due date!

    4. Any long term illness, condition, etc your LO has as a result of premature birth:  Nope!  Just a note, he does everything physically based on due date as his birthday - still not walking at 16 months actual but looks like it will be any day now.

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  • 1. What gestation did you deliver LO at? preterm labor at 26 wks 3 days.  Delivery at 27 wks 2 days

    2. Why you delivered early? unknown

    3. Length of NICU stay - Daughter: 74 days

                                        Son: 77 Days

    4. Any long term illness, condition, etc your LO has as a result of premature birth?

                                        Daughter: Reflux

                                        Son: Chronic Lung Disease and Reflux

    Mom to three beautiful preemies:

    Lily born at 27 wks: 2 lbs 4 oz.
    Max born at 27 wks: 2 lbs 2 oz.
    Glenn born at 31 wks: 3 lbs 9 oz.

    My twin's birth story
  • 1. 28 weeks, 6 days

    2. Unexplained Shortened Cervix

    3.  6 Weeks in the NICU, released at 35 weeks gestation, home monitor

    4. Sophia is developmentally on track for her gestational age, reflux,  so far no long term physical or mental effects. 

    Sophia Elizabeth born at 28 weeks, 6 days. Weighing 3lbs, 3oz and 15 1/8" long. SS Photography blue petti
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  • 1. What gestation did you deliver LO at?
    -36w1d

    2. Why you delivered early? 
    -PIH/pre-e after a 4 week hospital bedrest

    3. Length of NICU stay
    -Michael (Mack):  19 days.  He was born with very immature lungs (I had GD and we live at altitude in CO) and a PDA.  He went on cpap for a day after birth and he was not getting better.  Next was the vent for 2 days, 2 doses of surfactant, no progress.  They found his PDA with an echo and after 2 doses of indomethacin he was off the vent and on a low flow canula (which he brought home and kept until he was 7 weeks old) and was a feeder/grower after the PDA closed with indomethacin.

    -Annabel (Annie):  12 days.  Immature lungs, cpap for 2 days, then to a low flow for a day, then to room air, then feeder grower.

    They came home 15 and 8 days before their due date.

    4. Any long term illness, condition, etc your LO has as a result of premature birth.
    -None that we've seen so far.  They were barely pre-term, but they had the breathing issues of a younger pre-term infant.  They seem to be on track for their actual age.

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  • 1. What gestation did you deliver LO at? 33w6d

    2. Why you delivered early?  PreE (me) and Severe IUGR (DS)

    3. Length of NICU stay: DD: 32 days, DS: 37 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth: Thankfully nothing major so far, however DS is battling reflux.  DD has no longterm effects that we know of...

    Mr. & Mrs. ~ 09.08.07

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  • 1. 35w 2d

    2. Unexplained PTL, pPROM

    3. He never went to the NICU. We had to stay 6 days in the regular mother/baby section with the bili lights though.

    4. None that we know of. He is a bit behind his peers on his fine motor development.

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  • 1. What gestation did you deliver LO at?  33w5d

    2. Why you delivered early?  pPROM

    3. Length of NICU stay - 9 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth - So far, so good.  She's been a little delayed on some milestones, but so far so good.  I'm a little bit worried about her speech, but she tends to start doing stuff right after I get worried about it.

     


    BFP(1) DD1 born 4.17.10 @ 33w5d due to pPROM
    BFP(4) DD2 born 2.14.13 @ 35w5d due to pPROM

    image
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  • 1. What gestation did you deliver LO at? 30 weeks

    2. Why you delivered early? no explanation

    3. Length of NICU stay - 7 weeks

    4. Any long term illness, condition, etc your LO has as a result of premature birth-

    Difficulty taking to solids, delayed with speech and he is not walking yet but otherwise healthy

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  • 1. What gestation did you deliver LO at? 28w4d

    2. Why you delivered early? Had TTTS, baby A had IUGR and reverse end diastolic flow in his cord

    3. Length of NICU stay 70 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth One of my boys still has a heart murmur (he had/has a PDA), but it doesn't seem to be affecting him in anyway.  We are having to follow up with a pediatric cardiologist in a couple months.  Otherwise no other issues that we know of.

  • 1. We delivered at 34 weeks and 4 days. 2. I was delivered due to PIH and IUGR. 3. Declan spent 26 days total in the hospital: 8 in the NICU and 18 in their PCN, "step down" nursery. At. This point, we are still just small and have reflux issues. No signs of other developmental issues.
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  • 1. 35w3d2. IC caused by a uterine anomaly (need to have a lap/hyst to identify which type)3. 4 days4. None identified yet, he's still pretty young. 

  • 1. What gestation did you deliver LO at?  27weeks 4days

    2. Why you delivered early? to prevent my uterus from rupturing causing another stillbirth after PTL

    3. Length of NICU stay 86 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth

    She reflux that she has since grown out of. Nothing lasting that we know of!
    Thing 1 = April 2008, 38weeks 8lbs 7oz 19in
    Thing 2 = May 2009, Stillborn 33weeks 4lbs 9oz 18in
    Thing 3 = October 2010, 27weeks 4days 2lbs 4oz 14.25in


     image
  • 1. Ds was born at 24w3d

    2. No cause known, I woke up fully dilated and hemorrhaging, water broke when we arrived at the hospital. No pre-e. but obviously IC is suspected.

    3.127 days

    4. BPD/CLD, Reflux, VI- Rop stage 4 which has lead to loss of lens in one eye and retna that is not fully attached, low vision in other eye, PDA, delays at about 4 month-ish, but decreases each month. 

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  • imagebhilyer:

    Hi ladies!  I'm trying to gather information for the preemie resource blog that Urban, KCK and I are going to put together.  Can you take a minute and answer the following questions:

    1. What gestation did you deliver LO at? 31w3days

    2. Why you delivered early? PTL/IC

    3. Length of NICU stay 37 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth  Reflux 

    TIA!

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  • Gestation: 32.3Reason: unexplained PTL starting at 26 wks, held off with hospital BR & multiple stints on Mag, received 2 doses of steroids before pPROM the day I deliveredNICU Stay: 18 daysLongterm Issues: Severe reflux requiring NG feeds for most of the first 14 months, delayed gastric emptying, FTT, sensory integration disorder, global delays, severe food allergies, hypotonia, awful immune system!
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  • 1. What gestation did you deliver LO at? - 34w2d

    2. Why you delivered early? Oligohydramnios and severe IUGR

    3. Length of NICU stay - 41 days and counting

    4. Any long term illness, condition, etc your LO has as a result of premature birth - Severe GERD, severe hypersensitivty, and SSB coordination issues.


    BPF May 12, 2013 :: EDD Janaury 22, 2013 :: MC Began On July 14, 2013 at 12W4D

     

    Born at 34w2d:

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  • 1. What gestation did you deliver LO at? 33w, 5d 2. Why you delivered early? Pre-E and pProm 3. Length of NICU stay? 17 days 4. Any long term illness, condition, etc your LO has as a result of premature birth? None expected
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  • 1. What gestation did you deliver LO at? 31w1d (2lb 3oz)

    2. Why you delivered early? HELLP

    3. Length of NICU stay 39 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth: Reflux, anemia (which she takes meds for, and should ber resolved when she's 1-2 years old. Other than that, none so far. She is around the 25 percentile on her adjusted growth curve, so running a bit small.


    BFP #1 via IUI ~ L (Fatal Birth Defect) 4/7/10
    BFP #2 via IUI ~ m/c
    BFP #3 via cancelled IUI ~ C (2lb 3oz; HELLP) 5/16/11
    BFP #4 via the natural (free!) way ~ E (8lb 11oz) 9/13/12
    image







  • 1. What gestation did you deliver LO at? 33 weeks 6 days

    2. Why you delivered early? Pre-term labor, which was stopped - cracked "water" (dont know the medical term: basically I had a leak but my water didn't break until the doc broke it during delivery) 1 week no work, 6 days on hospital bedrest

    3. Length of NICU stay 17 days

    4. Any long term illness, condition, etc your LO has as a result of premature birth. The only thing so far is she has an embillical hernia (her belly butten pokes out due to a weak abdomal wall)

  • I'm usually just a lurker here, but I'll add my info in case it's helpful:

    1. What gestation did you deliver LO at?

    35w1d

    2. Why you delivered early?

    No fetal movement (massive fetomaternal hemorrhage).  Placenta/cord okay but he lost 10 oz of blood inside me.  I had been treated with a TAC for a previous loss due to IC.  Emergency c/s.  C-pap, Vented for 2 days, low flow for 14 days.  Blood transfusions, severe respiratory distress.  At 5 weeks, he was treated for GBS a couple weeks after he left NICU, in a children's hospital. (Spinal tap, sepsis workup, PICC line). <GBS should have been caught in NICU but the broad spectrum antibiotics masked it>

    3. Length of NICU stay  

    17 days+11 days children's hospital = 29 days total.

    4. Any long term illness, condition, etc your LO has as a result of premature birth

    None so far other than reflux.  He seems to be right on target with his gestational age.

    image
    Twin boys born too early at 17w4d and 18w2d in February 2010
    Transabdominal cerclage placed September 2010
    DS born at 35w1d in February 2011
    Twin girls born at exactly 36w in February 2013
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  • 1.  26w6d

    2.  Unexplained - possible uterine infection

    3.  92 days; ready to go at 60 days, but stayed an additional month due to high BP while docs attempted to regulate medication dosages

    4.  Son still has PDA (still open but very small)

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  • 1. What gestation did you deliver LO at?  24w 4d

    2. Why you delivered early? Twin A's water broke, both delivered by C-section

    3. Length of NICU stay - Twin A survived for 8 days. Twin B spent 138 days in the NICU before coming home.

    4. Any long term illness, condition, etc your LO has as a result of premature birth - she has reflux and BPD/Chronic Lung Disease. Otherwise perfect.

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  • 1. What gestation did you deliver LO at?32W1D 2. Why you delivered early?pProm 3. Length of NICU stay3.5 Weeks 4. Any long term illness, condition, etc your LO has as a result of premature birthDoing exceptionally well growth wise seems to be delayed a bit developmentally (smiling, sitting up, etc.) until his adjusted age reaches to where normal development would be then he is on target. Other than that just reflux issues & minor breathing issues.
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  • imagebhilyer:

    Hi ladies!  I'm trying to gather information for the preemie resource blog that Urban, KCK and I are going to put together.  Can you take a minute and answer the following questions:

    1. What gestation did you deliver LO at?  31 weeks exactly

    2. Why you delivered early? I was induced to due to preeclampsia and IUGR

    3. Length of NICU stay   53 days (almost until his due date)

    4. Any long term illness, condition, etc your LO has as a result of premature birth Nothing so far. He is just small for his age. We are praying that nothing arises.

     

     

    TIA!

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