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Special Needs
realisticdreams
member
Facebook really does sting, sometimes.
realisticdreams
member
Just saw pictures of my friends 5 month old boy sitting completely unassisted, like perfectly. Then, to add salt to the wound, she had one where he was on his stomach and pushing up completely/holding his head up.
Morgan can't sit up yet and if she's on her belly she can't lift her head at all.
They keep saying her tone is fine, but Dh is more worried than me (I guess it freaks him out to have 2 kids with issues...it's like newsflash we already do lol) but he has resulted to saying that he doesn't think she will ever crawl, etc.
It is hard to see Morgan more delayed than Peyton was in many areas, of course verbally she's ahead. Peyton could do stuff normally with her left side, so she would just drag the right along, even if it was limp.
Just having a pitty party for 1 at the moment, because it sucks. And i'm sick of therapy appointments. I want to schedule normal things, like play dates and not have those be the appointments that we don't have time for.
Blah.
She has started getting the hang of solids so I guess I should look at the bright side!
ETA: I guess i'm more stressed than usual since we were supposed to close on the house yesterday, with no date in site and that DH wants a new job (he interviewed & got it) which means insurance crap that I hate dealing with (company is trying to get him a better policy or something, they have a meeting with anthem today).
DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned
DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3
http://justthetipblogg.blogspot.com, The Neglected Blog.
This discussion has been closed.
Re: Facebook really does sting, sometimes.
People only post the shiny, happy bits of their lives on facebook.
Don't get down on yourself.
I hear you! I have a friend from college who has a daughter born on the same day as my oldest, sn child. She's constantly bragging about how her little girl is reading or doing other things while we're posting that Lydia said a 2 syllable word or that she's almost to the point that you can actually tell that she's writing her name on her papers.
DS was born the same season as about 5 other friends' babies. FB can be rough for that. One of them is already reportedly reading sight words (not even 2).
But it can be rough for a lot of things, I think. Political stuff, etc. UGH.
Hang in there. Our kids rock.
My experience with those super early readers is that MOST of them ended up being on the spectrum. Parents are always so proud that their child read before age 2--I have one in my class this year. I can tell you that he is on the spectrum (as is his dad after our conference). It is only a matter of time before it is "officially" identified.
Like a pp said, people only post rainbows and puppies and often a lot of BS on Facebook. For many, it is the modern "one up" forum for adults.
So true...the grass is not always greener, although many like to make it seem like it is.
And Elias Parker, Born 3.5 weeks early 12/20/2011
FINALLY!!! After 7 years of infertility!
I totally agree with this. I try not to compare (although I do) and I try to be happy for them even if inside I'm sad that DS2 can't do the same things their child can do. BUT it makes his successes that much more sweeter and I think I am even more proud of him when he does something.
When I first read your post, I though oh sweety, its ok. God only give us extra strong parents the children with special needs b/c he knows they will get all the love, attention and support they need. I know it's frustraiting, my cousins wife drank and smoked through both of her PG's and her babies are perfectly healthy....sucks, but they would so not be able to walk even a day in any of our shoes. Then I read the little print under the pic of you two beautiful babies..... Maybe you should re read it as well
We Have Survived Torticollis, VSD, Delayed Pyloric Opening/Reflux, Brachycephaly & Plagiocephaly::Tethered Cord Release Surgery .....
By God these are much bigger mile stones in yor childrn's lives than simply sitting up at a certain age!!!
Hold your head up and be proud of you angels! I know I would be! Great job bringing them this far Mom. Tell Dad she will crawl when it is her time, Big hugs for you both.
I just checked in over here after leaving the pity party I was having while looking at facebook. It was nothing big, I'm sure the mom thought nothing of it, I would not have. It was a picture of her daughter who is about 5 months younger than my dd and she had her face painted. It's just one of many small things I thought about often this time of year while going through IF. We went to a festival last weekend, the children's area was not busy so I stopped to see if my dd would let somebody paint her face, it was a no-go, she would not let the lady near her (I was holding dd).
This same girl and another friend often post little things that would be such huge milestones to us and I have little pity parties, luckily they usually don't last long
Thanks everyone!
It doesn't last long, just enough to make me blah temporarily.
I know they have both faced far worse things, it's just one of those, why me, why them.
More the, why them lately. I can handle it, but they shouldn't HAVE too.
Again, thanks.