Infertility

do u ever get to talk to your RE??

so i am getting FED up with a capital F.  i never get to talk to my doc and while he has an assigned nurse, who gets back to me, there are certain things i feel i would like to run by him for five min here or there...and it's almost as if the nurses are trained to keep the patients away from the docs...

i know sometimes you have to go to a practice for the lab and not the patient care but i may need a tiny bit more TLC.  

how does your practice work??

Re: do u ever get to talk to your RE??

  • I rarely got to talk to my RE but that's because I rarely went to the main office (2.5 hours away) where my RE was. She only came to my local office once every few months. We did schedule video conferences with our RE when we had a lot of things to discuss or were going to change our protocol or something. Other wise I asked my NP most of my questions when she was doing my monitoring.

    My clinic also has a number you can call and leave a message for the nurse and they'll call back to answer your question.

    I did manage to talk to my RE on the phone w/o an appointment to do so a few times though.

     

    TTC #1 since June 2008 *SAIFW*

    TI, IUIs, IVF = c/ps and BFNs

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  • I usually see my RE once to set up the plan, once during monitoring (usually whenever monitoring happens to fall on the day he's at my office- its not planned and it wouldn't surprise me not to see him at all), and on the day of retrieval/transfer.

    I don't really expect a lot of doctor interaction during my cycles. The nurses are well informed and if they can't answer they can forward me to the doc- but there's usually no reason they can't clear everything up for me. I love my nurses :) I like my RE too- but I'd be miserable if I didn't like/trust my nurses.

    image
    Friends for 15 years. Married 8. TTC since January 2009
    2010 Diagnosis: Anovulation and Severe MFI
    2011 Treatment:
    IVF w/ICSI #1 Antagonist: 2 blasts - c/p - BFN 04.22
    FET #1: 1 blast/1 early blast - BFP 06.22 - m/c 06.30 @6w0d
    07-11 RPL: MTHFR C677T Heterozygous & Slightly elevated ACLA IgM
    FET #2: 1 morula - BFN: 9.02

    January '12: IVF #2
    Started BCP and Metformin (New!) 12-14 for stimming in January

    Dum spiro, spero.
    ?SAIF/PAIF/PgAL/PAL always welcome?
  • I've talked to my RE on the phone before and I'm sure if I asked them to have him call me back to discuss something he would, but the nurses do most of the call backs for next steps and setting up appointments (presumably because the RE is busy doing procedures most of the day). I have had a few times where I wanted them to run something by him and they do and then call me back.
    TTC 12/2009
    Me: 32 - Stage II Endo / DH: 36 - Low count and morphology (1%)
    IUIs 1-3 BFN, lap Dec. 2010, IUIs 4-6 BFN
    IVF w/ICSI #1 - ER 2/8: 24R 19M 9F ET 2/13 2-5 day blasts (no frosties) = BFP - b/g twins!
    E & C Born 10/19/2012
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  • My RE handles everything, ultrasounds, calls, etc.  I have only had a nurse call me once with my bloodwork and it was normal so I didn't mind.  I love that my RE does all procedures and appointments.  I don't mind nurses calling on my bloodwork as that is the easy stuff usually.  He also provides print out of the office note each visit so he knows exactly what he noted and what is going on.
    Brenda & Phillip married 10/10/09 

    After 6 years of failed cycles, we were blessed with our little man through adoption. 
    B born 1/3/2012. Adoption finalized 12/27/12

    Back  on the IF crazy train...
    Sept 2013 - IVF #1 -  BFP, EDD 6/4/14, born 6/8/14
    Everyone welcome

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  • I have talked to the RE several times and he has done most of my tests himself and he pops in even when I am getting blood work.  I see you are in NY- are you in the city proper or the burbs? I am in LI. 
  • I have my RE's email address and she always responds, even for the littlest things, and even when she's out on vacation. I prefer to email over phone, so I can go back and re read everything, so it works out perfectly!   I'm just starting with her, but my friend who has cycled with her says she is always available and very hands on the whole step of the way!!

    At my last clinic, everything went through my nurse, but I was much more comfortable with her anyways.  Old RE use to do all my u/s herself and always asked if I had any questions, and then passed me off to my nurse to get instructions, med training, etc.

    Good luck!

    Renee- 37 DH - Chad - 39
    2/06 - surprise pregnancy - twins
    3/06 - m/c 1st baby at 6 weeks 
    5/06 -2nd baby had no heartbeat at 14 wks.
    D&E - Bled out. Blood transfusions. Week in ICU - Cheated Death!
    Diagnosis: Blood clotting and bleeding disorder, immune issues, & cervical stenosis
    5/10 - 1st IVF cycle - BFN
    FET - 10/12/10 - BFN
    1/11 - IVF with PGD - BFN
    IVF - May - BFN
    6/11 New RE - fingers crossed!
    9/11 - IVF - 4 transferred
    10/13 - BFP!!
    It's a boy! Clint Michael, Due in June!!!

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  • imageshirz903:
    I have talked to the RE several times and he has done most of my tests himself and he pops in even when I am getting blood work.  I see you are in NY- are you in the city proper or the burbs? I am in LI. 

    i am in NJ....reputable practice...not liking my care at all ..:(  

  • At my first RE, she did our consult and plan, and thene I never saw her again.  6 monitoring appots and a BFN, and I never so much as caught a glimpse of her int he office, let alone spoke to her.

    My new RE...we are going to cycle again in October and she assures us she does her own monitoring etc, so I will see her at least for those, which makes me feel infinitely better.

    Me: 30, Dx Unexplained/hypothalamic amenorrhea
    DH: 31, normal!
    April/May 2011: Menopur + Ovidrel +TI = BFN
    Oct 2011: Menopur + Hcg +IUI = BFP!
    Beta #1 (13dpiui)= 129.7, Beta #2 (15 dpiui)= 305
    PAIF/SAIF always welcome!
    My Blog



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  • I see an RE at every appointment.  At every third appointment I would say I see my own RE.  My practice is very good that way I would be upset if I didn't get to see my RE when I had questions.

     
    me 33/DH 36
    ttc since 10/2008; d/x: mild MFI, stageII endo
    ~~PAIF/SAIF Welcome~~
    11 IUI’s = 1 m/c (7w4d)
    IVF#1 January 2012 BFN, FET #1 April 2012 BFN
    Surprise BFP October 2012 m/c (7w), Surprise BFP April 2013 m/c (6w4d)
    IVF #2: July 2013, ET 1 embryo 7/18, beta 1 @ 14dp3dt - 757, beta 2 @ 16dp3dt - 1762
    U/S 1 @ 6w4d = 1 little frogger with HB of 118, U/S 2 @ 7w3d measuring right on track with HB of 160
    Stick Frogger Stick! Please!!!!!!!!!!!!!   It's a Girl, EDD April 7, 2014

    BabyFruit Ticker

  • I saw  my RE at almost every appt more during clomid and iui cycles.  During ivf it was a whole new story.  There was an entire nursing/np staff that monitored everything in a whole separate section of the practice...but when the cycle had to be cancelled or there was a problem of any kind I did see him.  Also, I had an ectopic pregnancy and I had to call after hours due to a problem.  He called me back every hour to make sure I was still ok, to evaluate my symptoms and to decide if I should still stay home or go to the ER.  SO, he is on the ball, but I don't get to see him at each visit.
  • How frustrating. I'm sorry your clinic runs that way. I see my RE every time I go in, with the exception of days when I get bloodwork done only. But he stops to chat for a bit when he sees me. He performs all my ultrasounds and of course the consults.
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  • I never see my RE unless we're changing the plan, and then we go in for a consultation.  I do remote monitoring (my clinic is 2 hours away), so obviously I don't see her for those appts, and a nurse practitioner always did my IUIs.  But I have my RE's e-mail address and she answers every one of my e-mails within 24 hours.  
    TTC since November 2009
    Mild MFI, irregular cycles, HSG only showed left tube open
    IUIs #1-3: Femara -- BFN
    IUI #4: Follistim + HCG boosters -- BFN
    Sept./Oct. 2011 IVF#1: Long Lupron, 3dt of 2 -- BFN + 1 frostie
    Surprise BFP 11.21.2011: missed m/c at 9w2d, D&C 12.27.2011
    The Blog
  • thanks girls...i like the idea of even having an email address to talk to the doc...something!   how can i enter a 2nd ivf cycle if i can't ask my doc any questions??   i trust the nurses, of course, but some things and their interpretation are much better understood when coming from a doc!!  so frustrated...!  thanks for the feedback!
  • i think it just depends on the practice honestly.  the fact that i dont see my RE every time i go in doesnt mean anything to me, as he is probably one of the best REs in the country.  Northwestern in chicago is also one of the best hospitals and the RE department is fab.  there is no way any patient would get to see their RE every time they go in.  that being said, you can always leave a message directly for your RE....mine ALWAYS calls me back within 4 hours, sometimes 2.  and he never rushes me, he will talk to me forever.  one time, he called me with a blood test result and to discuss a couple other things...i was expecting the nurse to call me but he decided to....which was wonderful.  many times you dont get that type of treatment with these big named doctors.  i used to go to FCI in chicago (which i hated) and yeah, i saw my RE for the consult and then it was just dealing with the sh*tty nurses who think they know stuff when they really dont.  when i requested to have my RE call me once initially he told the nurse to tell me "no" - to just wait until the next consult in 2 weeks.  wtf??  i had just gotten my AMH back and it was terrible and he told me "no". i kept pushing so he did end up calling me but i could tell he was annoyed.  it's like they want to charge you for the phone calls there.
  • imagebhead81:
    My RE handles everything, ultrasounds, calls, etc.  I have only had a nurse call me once with my bloodwork and it was normal so I didn't mind.  I love that my RE does all procedures and appointments.  I don't mind nurses calling on my bloodwork as that is the easy stuff usually.  He also provides print out of the office note each visit so he knows exactly what he noted and what is going on.

    Same here.  He leads every appt outside of bloodwork visits.  My mom loves my RE b/c after my surgery he spent 45 minutes talking with her & my DH about how it went, what he did and what he thinks is our best plan moving forward.

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  • I definitely think it varies from practice to practice.  At my clinic all u/s and b/w is done by the nurse.  She also contacts me with b/w results.  I call her when I have any questions.  There are times when the RE will come in during my visits but most of mine are with the NP.  However, anytime I want to speak to the RE or have a questions for her, I ask and she usually calls me that day or the next at the latest.  I can't imagine going to a clinic where I didn't care for the nurses.

    It must be very frustrating for you, which sucks because we are paying a lot of money for these medical services.

    TTC since 3/07. IVF#1 = canceled. IVF#2 = 0% fertilization. IVF#3 = BFN. IVF#4 = c/p.  
    Moving forward with Adoption 2017!
  • I mostly talk to my nurse. However, when it's about something that's beyond her, my RE has called me back. I am comfortable with the nurses, and actually feel like they're better with patient interaction.
    TTC #1 since June 2010
    Me: 36, DH: 42
    Dx: DOR and MFI

    DH: low count + very low motility; hormones all normal; Sperm DNA Frag. test = poor to fair; male karyotyping normal
    Me: FSH 13.4 + AMH 0.26 + hypothyroidism; Scratch the hypothyrodism (?); Blood clotting and immune panel all negative; endometrial biopsy normal

    IVF #1 (MDLF - Jul/Aug 2011): BFN (9R, 5M, 3F with ICSI, 3dt of 1 10-cell grade 2, no frosties)
    IVF #2 (EP-antagonist - Sep/Oct 2011): BFN (6R, 4M, 3F w/ ICSI, 3dt of 1 6-cell, 1 7-cell, grade 4s, no frosties)
    DE IVF #1 (shared cycle - June 2012): c/p (6R, 6F w/ICSI, 3dt 1 8-cell grade A- and 1 7-cell grade A-; no frosties)
    DE IVF #2 (shared cycle with new donor - Nov/Dec/ 2012): - BFP!!!!! 12/14/12. U/S on 12/27 shows twins!!!!!

    SAIFW/PAIFW
  • If you are that upset you should absolutely switch to another practice.  I don't think it is reasonable to ask what other people have experienced or felt.  All that matters is what you are feeling and experiencing - and very clearly you are really unhappy with your current treatment.  Follow your gut and go find a place that makes you feel better. 
  • imagetatum2424:
    If you are that upset you should absolutely switch to another practice.  I don't think it is reasonable to ask what other people have experienced or felt.  All that matters is what you are feeling and experiencing - and very clearly you are really unhappy with your current treatment.  Follow your gut and go find a place that makes you feel better. 

    thanks so  much for this!  i am on the road to finding a diff doc that actually speaks to me !  i am not saying i need to talk to a doc every day or even every week but a lot of your girls get someone on the phone or someone to email you and I am totally fine with either !!   


  • I am having this same experience. Highest success rates in our area, but I get to talk to my doctor for 2-5 minutes per visit...they don't do  mid-cycle monitoring without me pushing, and I feel like the dr is more invested in making $$. We are looking for a second opinion if this month doesn't work bc we're moving to IVF.

    image
    ME: 30 DH: 30
    TTC #1 since 3/2010
    DX: Unclear-potential MF (low motility, borderline count); currently unexplained
    Ultrasound/HSG- Feb 2011
    Lap: May 2011
    Clomid/IUI Cycle #1: 6/2011
    Clomid/IUI Cycle #2: 7/2011
    Clomid/IUI Cycle #3: 8/2011
    9/2011 Switched REs...and more testing
    DX: Unexplained- borderline MFI
    IVF #1: 11/09/2011- BFP!!
    Beta #1: 241; Beta #2: 666
    Ultrasound scheduled for 5w6d
    Baby girl born 8.14.12
  • I am having this same experience. Highest success rates in our area, but I get to talk to my doctor for 2-5 minutes per visit...they don't do  mid-cycle monitoring without me pushing, and I feel like the dr is more invested in making $$. We are looking for a second opinion if this month doesn't work bc we're moving to IVF.

    image
    ME: 30 DH: 30
    TTC #1 since 3/2010
    DX: Unclear-potential MF (low motility, borderline count); currently unexplained
    Ultrasound/HSG- Feb 2011
    Lap: May 2011
    Clomid/IUI Cycle #1: 6/2011
    Clomid/IUI Cycle #2: 7/2011
    Clomid/IUI Cycle #3: 8/2011
    9/2011 Switched REs...and more testing
    DX: Unexplained- borderline MFI
    IVF #1: 11/09/2011- BFP!!
    Beta #1: 241; Beta #2: 666
    Ultrasound scheduled for 5w6d
    Baby girl born 8.14.12
  • imagebellalou32:
    After my surgery, I never got to speak w dr.  He did, however speak with my mom and DH.  I felt that I had ques that weren't answered and was having a heard time, as well, getting any answers.  So, every time I had a question I thought of, I called the emergency line and spoke with a dr on call that was able to answer some of my ques for me.  Maybe you can do that?

    i am sorry that you have to call an emergency line to get questions answers...that's absurd.  are these docs so holier than thou that they can't get on a phone...if i called the emergency line at my practice they have a NURSE call u back!!  :)

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