I am 30 weeks pregnant today with my first child and at my 19 week ultrasound, my husband and I found out that our baby has a condition called gastroschisis - this is where there is a hole in the baby's abdomen and the baby's intestines are outside of his body.
He is going to have to be born early and as soon as he's born, he's going to be rushed straight to the OR. The surgeons are going to try to place all of his intestines back into his belly. He's going to be in the NICU for at least a month after he is born because he won't be able to eat anything until his intestines start working (usually takes about 3-4 weeks after the surgery before they start to heal). Until then, he will be hooked up to an IV that will give him fluids.
As difficult as this is, I am so greatful we were able to find out about the baby's condition before he's born, that way everyone who needs to be at the birth will be ready for him. There will be the OBGYN team, the NICU team, and the pediatric surgeon team present when I deliver. I don't know how early the baby will have to come. I am going to weekly ultrasounds to check on him and make sure he's doing ok. The closer I get to the due date, the worse the baby will be doing.
There's still so much that we don't know and so much we won't be able to know until he's born. It's difficult knowing that I won't be able to hold him or feed him or comfort him when he's born.
Our website for keeping everyone up to date on the baby's condition is: