July 2011 Moms

Addyson update (long and detailed!) PIP

Good evening!
 
 A few things happened overnight with out "Little Peanut" as K likes to call her. Nothing major or unexpected.
 
First, they decided to shut off her Dopamine (blood pressure medication) because Addy is doing well and her pressures are great with out it.
 
Second, she was started on D5 because her sodium levels are increased. The reason for the increase is that she is losing fluid through her skin and the sodium stays in. They give the D5 to even out this imbalance but with that (D5 contains sugar) her blood glucose has increased. For the increase they put her on an insulin drip. As of 9pm tonight they are weaning both the D5 and insulin drip because her sodium and blood glucose levels are getting better.
 
Third, they gave her another round of sufactant (a medication to help her lungs develop) because she was having some issues and needed her ventilator turned up a little. They had turned it back down while I was there tonight.
 
Fourth, the spinal tap done yesterday was okay. Dr. Landrum (Addy's NICU doc) is still deciding how long she will treat with antibiotics. It will be somewhere between 2-3weeks. They did another blood culture for her infection and will see tomorrow if they can better identify the organism she is infected with so they can specify her antibiotics and get rid of her infection.
 
Fifth, she had a new tube placed. It is called a gavage and is used for feeding. It is fed through her nose and into her stomach. They are giving her 0.5cc of breast milk every 12hours to get her tummy ready for feedings.
 
I guess the last few things aren't anything big. Her urine output has been great which is always good to hear. Her bilirubin is still elevated but is coming down from where is was. She continues to be under the bili lights and is being a "beach bumm." Today she weighed 560 grams (1lb 4oz). She is scheduled to have a Head Ultrasound on 4/4. This will check for any brain hemorrhages. Hopefully this will show nothing. Dr. Landrum doesn't see any evidence that she would have one but they need to check. She did say sometimes they see ones they don't expected to but we are praying Addy's ultrasound will be clear.
 
That is about all for today. I'm sorry this is so long. I just want to make sure everyone is updated. K and I are planning to set up a Caringbridge site for Addyson so everyone can get updates that way (I might just copy and paste to TB). For now Addyson is resting peacefully and got her first book read to her by Grandma Gwen earlier.
 
Attached are a few new pictures. 
 
Thanks for everything (the T&Ps and love)! We love you all!
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A close up
 
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Addyson's handprint in mommy's hand
 
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Daddy's hand next to Addyson
 
Marissa and K
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Re: Addyson update (long and detailed!) PIP

  • Amazing! So glad to hear that she is doing well. I'm currently at my dads house and I literally just told him about her 20 minutes ago. He immediately prayed and said he will be praying for her daily (he is a pastor). He just read this with me and insisted I let you know that she will be in his prayers. She's in mine as well!


    Mama to two perfect little girls.
    Lucy 07-13-11
    Violet 03-13-14
    Conceived #3 since September 2015
    11-25-15 twelve week loss
    07-21-16 ten week loss
    10-03-16 5 week loss
    TTC again soon!
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  • She sounds like a fighter! Keeping t&p flowing your way that she keeps it up and the u/s shows only good news.
    *Married 10.10.08*
     image
    TTC #1 9.09 - BFP#1:2.18.10= missed m/c, D&C 4.16
    BFP#2:10.22.10=Avelin born 7.2.11
    TTC#2: 2.13 - BFP#3: 7.25.13=Kelsey born 3.31.14
  • GROW BABY GROW!!! Lots of T & P for you and your family. Both DH and I look forward to your updates.
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  • I'm so glad to hear that she's doing well! 

    I'll pray that her head ultrasound comes up clean.   

     




  • Glad she seems to be doing so much better! You seem to have some excellent Drs on the job, who are watching her very closely. Do you mind if I ask which hospital you are at? I promise not to stalk you, just curious who has the wonderful NICU.

    I still can't get over how tiny she is!

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  • Grow Addy grow!! Praying for you guys.
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  • imagepixiegirl131415:

    Glad she seems to be doing so much better! You seem to have some excellent Drs on the job, who are watching her very closely. Do you mind if I ask which hospital you are at? I promise not to stalk you, just curious who has the wonderful NICU.

    I still can't get over how tiny she is!

    She is at Children's Hospital in Minneapolis

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  • I'm so happy to hear that she's doing well!!  I will be continuing to send lots of thoughts & prayers!!!
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  • Thanks again for updating. You guys are in my prayers. Sounds like she's thriving, praise God!
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  • SO glad to hear she is doing well! You are all in my thoughts and prayers every day - Grow Addy grow!!
  • So glad she is doing well!  She is in my prayers everyday.

    ~Declare it..Claim it..It will be!!~

    5/9/09
    Lilypie - Personal picture 

    Here We Go Again!!

  • Thank you for keeping us up to date! I'm so happy she is doing well, looks like you have a little fighter on your hands :) Thanks again for sharing your story and amazing photos! 
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  • So glad to hear she is doing better and they are weaning her off some of the medications! She is so precious and her hand print is so tiny! You have a special little girl and she is continually in my t&p's! Thank for the update!
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  • SO GLAD to hear things are going well!  You guys are still in my T&P.
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  • We are continuing to pray for that sweet angel.  Keep growing and going baby Addyson!
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  • I'm glad things are going well so far.  BTW, if you want any "translation" of the NICU speak, email (SN at gmail) or PM me.
  • Every time I see an update I get all teary eyed. I'm so happy that things look like they are going well, Addy is a little fighter! I think about and pray for your family constantly, and tell DH my family and my friends about Addyson's progress.

    We are all rooting for her! I hope her ultrasound comes back clear and the antibiotics work their magic! Thank you for keeping us all updated!

    <3<3<3

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  • SO glad to hear such an awesome update! My whole family is now praying for your beautiful little one, continued T&P's coming your way! ^_^
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  • Oh my goodness, I totally missed all your updates from being in the hospital myself! My babies were born at 24w1d so it looks like me and you are in the same boat. Feel free to PM me anytime, I would love to keep in touch!
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  • I'm so happy she's doing so well!  Keep growing baby Addyson! :)
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  • I am so happy she is doing well and will continue to pray for her and you guys!
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  • jdm7jdm7 member
    I asked DH to start praying for Addy last night... you all will be in our thoughts and prayers. She does look like a beach bum in there! I hope that they find nothing with the head scan and all these antibiotics help to make her stronger.
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  • I'm so glad to hear she is doing well. I love the handprint!
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  • What a fighter you have! She is amazing and I am praying for you your entire family. Thinking of you all.
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  • Ok I am trying not to cry. So happy for your little miracle, keep up the good work little Addyson! 
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  • Amazing!  She's truly a little miracle.  I think about you and your little Addy all the time.  I pray that she continues to do welll and grow.
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  • She's beautiful! Sending lots of prayers that she continues to thrive - sounds like you have a great medical team on your side!
    photo 41f1f21b-fd5b-40ab-bc31-76a13e270270_zpscf391ac9.jpg
    After 2 years, Injects, PCOS diagnosis and 2 IUI's, we were blessed with our beautiful twin girls!
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    Baby Girl #3!
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  • Glad to hear she is doing well!
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  • Thank you for the updates, keep them coming! My T&P are with you all every day! Keep up the good work Addy!
  • T&P that she continues to do well, it sounds like she's in a great NICU.
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    DD1, Kathleen 9/15/2007

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  • That is amazing and inspiring to hear how well she is doing!  She is so tiny and cute, congrats and I hope she only gets stronger and stronger.  You are in my DH and I's thoughts. 
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  • Seriously, if the pictures don't put it into perspective, that tiny hand print does. Peanut is definitely right.:) So glad that things are moving in the right direction and that you both are being well cared for. One of my closest childhood friends, Nancy, is a NICU nurse at Children's, she was there the night Addyson was born.

    DS and I have been praying for your sweetheart and will continue to!

    Isaac Levi 4/26/09 : BFP#2 - MC 9w : Ezra John 6/26/11 : Miriam Joy 4/12/13 : Naomi Ann 9/2/14

  • So glad to hear everything is going well. You will all continue to be in my thoughts!
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  • Sounds like she is doing pretty good, which is such good news!  Addyson needs to stay stronge & keep fighting!  Definitely still sending lots of t&p your way!



  • She is so tiny and beautiful and perfect. It sounds like she is doing remarkably well but I know she has a long road ahead of her. DH and I praying like crazy for her.

    Grow, Addy, grow!
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  • Thank you so much for the update... As you already know we are praying for you all and we know all will be well! (((((HUGSSSS)))) Thanks for sharing those touching pictures of your Princess!
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  • I am glad she is doing good!  Shes a fighter!  My friends and family are all praying for her.  Lots of love Marissa!!
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  • Keep getting stronger baby girl!! Lots of prayers heading your way, Marissa!
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  • Keeping you and addy in our thoughts and prayers that all continues to progress well!  Thinking about you.
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  • Everything sounds like it is going as well as can be expected!  Lots of continued T&Ps.


    imageimage
    2 years, 2 surgeries, 2 clomid fails, 2 IUIs, 1 loss, IVF #1 - 10/25/10 = BFP!, DS is now 3.5yrs!
    TTC #2 - 6/12 surgery #3, FET #1 & 1.2 = BFN, 12/2012 FET #2 = BFP! DD is 1.5 yrs!
    Surprise! 12/16/14 BFP, loss #2 12/31/14

    I can't wait for the "im getting a divorce" post in 5 years or so because your husbands were fed up with your disgusting chair asses from playing on the knot all day and getting fired 4-5 times for not doing any work. you guys are all winners!! ~ Laur929

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