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Fibromyalgia Ladies

marcuejmarcuej member
in Success after IF

I saw the Rheumatologist yesterday and he confirmed that I have fibromyalgia.  He's running some blood tests to rule out Lupus and a few other things and to check for Vitamin D deficiency.  He thinks that is probably playing a role in my fatigue.  We shall see!

He gave me 4 injections in the trigger points in my lower back since those are my most painful spots.  Has anyone else gotten these shots before?  I can't remember what the med is called but it stops the pain receptors.  I can already feel a difference in my lower back.  I go back in 2 weeks for another set of shots in my hips.  I told him I want to avoid meds for treatment of this.  He seems to think the shots will totally do the trick!

In addition, since I have PCOS, he mentioned treating it with Spironolactone.  It's a drug that reduces androgen levels.  He has a couple of other patients taking it with huge success.  One gal lost 40 lbs. after starting the drug.  He's sending some chart notes to my regular doc and we're going to discuss if this might help me too. 

Anyway, I'm not thrilled to be dealing with this but I'm feeling hopeful that I might get some relief now.  

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Re: Fibromyalgia Ladies

  • oct11bride03oct11bride03

    I'm sorry you're dealing with this but I'm glad you went to the doc for treatment.

    I know a little about fibromyalgia since my company did a continuing medical education piece about it for our docs. If you have questions let me know.

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  • rockvillebriderockvillebride
    I'm sorry you got this diagnosis, but am glad you have a doctor who sounds understanding and proactive! I've had a lot of ongoing pain since giving birth 2 years ago, but no one's come out and said fibro. May I ask how it's diagnosed? I know I have a ton of trigger points, but am not sure if that's the same thing as the tender points I hear mentioned for fibro. Anyway, if you have any info, feel free to share! I'm glad you're finding some relief!!
    Unexplained. IVF#2 worked! Beta at 10dp6dt = 154, Beta at 13dp6dt = 603 Baby Birthday Ticker Ticker
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  • marcuejmarcuej member

    imagerockvillebride:
    I'm sorry you got this diagnosis, but am glad you have a doctor who sounds understanding and proactive! I've had a lot of ongoing pain since giving birth 2 years ago, but no one's come out and said fibro. May I ask how it's diagnosed? I know I have a ton of trigger points, but am not sure if that's the same thing as the tender points I hear mentioned for fibro. Anyway, if you have any info, feel free to share! I'm glad you're finding some relief!!

    I'm still learning about all of this so I don't have a ton of info yet.  Trigger points and tender points are the same thing.  The doc tested all 18 trigger points and I had pain in most of them.  He also based his diagnosis on my overall fatigue and sleep issues (but that is in part due to the fact I have a baby who wakes often during the night).  The blood tests should solidify the diagnosis because it should rule out lupus, rheumatoid arthritis and some other auto-immune issues.  

    Have you gone to see a Rheumatologist?  I think it's worth a check to see if you have it. 

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  • rockvillebriderockvillebride

    Thanks for the info - I think I'm probably in denial about it. I have tried a zillion different physical therapists and am going to try one more next month to see if it's just a muscular pain issue. If that doesn't pan out, I'll probably move on and try to get in to see a rheumatologist.

    I definitely have trigger points though and can highly recommend this book if you're interested: The Trigger Point Therapy Workbook: Your Self-Treatment Guide for Pain Relief, Second Edition by Claire Davies. It's awesome. Even if I can't figure out how to treat a specific trigger point, I like that it helps me to figure out what muscles are causing the problems.

    Again, congrats on getting in to see that doctor and for getting a diagnosis! I hope you find some relief soon!

    Unexplained. IVF#2 worked! Beta at 10dp6dt = 154, Beta at 13dp6dt = 603 Baby Birthday Ticker Ticker
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  • jds0521jds0521
    Wow, he sounds like an awesome Dr! Mine just tried to write me Rx's, which is why I eventually stopped seeing her. Maybe I should look into a new Rhuematologist & ask about the shots. Can you find out what they are called next time you go in? I'm glad you are already feeling relief though! I bet Vit D is at least partially the culprit for your fatigue...it's a very common Vitamin def.
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