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Success after IF
DavezWife
member
Eeekk! Merit to my "allergic to my metal" theory !!!!
DavezWife
member
So if you missed it, weeks ago I watched "House" and the patient had some of the same symptoms and auto-immune stuff I do, and was dx with "metallosis", an allergy to the metal (titanium and nickel) in her hip replacement. That got me all worked up, and started digging, and digging, and digging.
I found lots of medical lit that suggests this is a really real and plausible theory, my immunologist said "sure, test for it!" (but all it that will show is if I'm allergic, not if the metal rods in my back (severe scoliosis, fusion in my mid-20's) has ground away and has started infiltrating the tissue and area around the spine) and Dr. Sassy agreed yesterday that this was a really REAL possibility. My body is already a hornet's nest from the metal issues, and anything else gets attacked along side it. ALL of my auto-immune issues started AFTER the surgery in 1997. ALL of them. Even something as I used to have my ears double pierced (cuz I was rad like that) and wore cheap earings all week long. Now I can't wear anything. Period.
Well, my D.O.'s office finally called me back today (the spine doc that followed me as a kid with this, and did my thoracic fusion) and said metal allergies could very well be the issue. They've seen it 1st hand, and know of a few more auto-immune cases. Rod removal at this point could be very very difficult and nasty, but steroids would help flare ups, immune crisises, etc. They also swore up and down that I have stainless steel rods, not titanium, but I can pull old records to double check. SS is MUCH more likely to cause these issues than titanium. I sat there in the middle of the grocer's freezer section, listening to her tell me this, tears running down my face, knowing that FINALLY we could have something tangible. Something real.
A reason, other than me.
---------------------------------------------
I wrote this prior to getting the amazing package, so this is just the most DELICIOUS FROSTING on my already scrumpious cake! I might as well come out of the closet and admit another little tidbit... IVF #3 started yesterday, on Ava's bday. We have a new steroid therapy plan, all docs in my realm are on board with the potential of this working, and retrival is less than a month away. :::going back to lurking about this information:::::: ;-)
Oh you guys... what an amazing day! Thanks again!!!
Join us - Commit Random Acts of Kindness, and say
"I did it for Cricket"
This discussion has been closed.
Re: Eeekk! Merit to my "allergic to my metal" theory !!!!
I am so happy! Of course not that you have to deal with this sh!t but, that you may have found the cause - because then you can find the solution! Your happiness today has absolutely made my day lady!!!!!! YAY!! And another YAY for IVF #3... everything crossed this is IT!!!!!!
Hannah
ps - you have to tell us what you buy with your giftcard!!!!
Because we're fancy like that.
Wow, that is a great day all around.
And good luck on you know what when you know when Miss Lurkipants.
Wow, and Dr. House figures out another one!!!!
You know we are behind you lady!!!!
Savannah
Callista
Baby Trail Blog
"Someday we will look at our babies and know it will be worth it. If it was easy, we would not have had our babies, the babies we were meant to have." From Amy052006
Wow! Fingers crossed this is the answer you've been searching for!!
Oh wow, I have goosebumps all over. It sounded so PLAUSIBLE when you mentioned it a couple weeks ago. Go House! And go Tracie -- so smart!
And on the next episode...DavezWife! And her...baby???
Our Thanksgiving Day baby 11/22/07
Pregnant with #2 with LPD, uterine polyp/hysteroscopy, DOR (AMH = 0.17), 2 c/ps
Our early Christmas present 12/9/10
Someone young, pretty, SUPER SKINNY, and delightful funny.
You know, someone just like myself. BRRUUHAAAA!!!!!!!! OMG, that would be a movie for Lifetime if I ever saw one. One only the infertiles would watch, and the producers would change the phase transfer into "implant" against my will, shunning me forever.
lol.
Awesome.
Lemme know when it's on.
Our Thanksgiving Day baby 11/22/07
Pregnant with #2 with LPD, uterine polyp/hysteroscopy, DOR (AMH = 0.17), 2 c/ps
Our early Christmas present 12/9/10
I'm so happy for IVF #3!! I was reading about your metal theory and tearing up, and got to the bottom and the tears were streaming (it's been that kind of day).
I really hope this is the missing piece to your puzzle.
TTC #2 with PCOS since September 2009
BFP, Femara 7.5mg, Ovidrel, IUI. Beta #1 17dpIUI -495 Beta #2 19dpIUI-1031
Lovebugs2012
My Blog
Wow. Wow. Wow. I love it when a patient does her own research and works as a partner with her medical team (and .. possibly beats them to the answer while doing so!)
You have to write to the production team at House and share your story with them. Just because.
"When it comes to sleeping, whatever your baby does is normal. If one thing has damaged parents enjoyment of their babies, it's rigid expectations about how and when the baby should sleep." ~ James McKenna, Ph.D., Mother Baby Behavioral Sleep Center, University of Notre Dame
TTC #1- unexplained...lost left ovary 4/07 IUI #1 2/10/09-BFN IUI #2 3/5/09-BFN IVF # 1-BFP
TTC#2- FET 4/7/11 BFP, Natural mc 5/5/11 IVF#2 ER 9/13/11, ET 9/16/11, Beta #1 9/27/11 BFP 254 Beta #2 9/30/11 793 -Twins!
Wow! This IS a good day for you
I'm so excited for you. This is such great news.
Wait, ***, really? No F'ing way. I had jaw surgery at 13 with several screws implanted in my jaw. And developed my first auto-immune disease, um, not even two years later. *** balls. Really T?
ETA: I'm super excited for you and hope this is the missing puzzle piece you were looking for. And my little screws are nothing compared to joint replacements.
Sorry to get carried away.
TTC #1: IUI #2 = BFP , Betas 550 (16 dpiui), 1523 (18 dpiui)
Hypothyroid, LPD, FSH 13.0, TTC 2 yrs B4 BFP
TTC #2: FSH 23, AMA, IUI 1, 2, 3 = BFN, IVF #1 = MC
IVF #2 = BFP - Betas 194 (14dp2dt), 366 (16 dp2dt), 841 (18 dp2dt)
(vanished twin ~7 weeks)
I hope this is the answer! Hope this is your sticky super glue baby!
Oh, Davez! I feel tingly all over reading this and just knowing how fabulous of a day this has been for you. Here's to moving forward!
LO #1 - 1 unmedicated/self-monitored IUI w/ donor sperm.
LO #2 - 1 m/c, 2 BFNs, 4th IUI worked (unmedicated/self-monitored with new donor sperm).
Life is beautiful!
What a great day!!! Good luck with everything!
Praying for this wonderful possibility!
lol. GREAT idea. I've joked all along that I need House to solve my problems. lol. Kinda funny, they may have!!!
My acu gal tonite said "well chit, all this time we've been starring the issue right in the face. Or leaning against it. " lol.
What a day...