Does anyone have any experience with New Hope Fertility?

sugardumpling · January 2011

A friend of mine just heard about their clinical trial and wanted to know if anyone has used them and get some feedback.

TIA!

https://www.newhopefertility.com/

patchen30 · January 2011

The only info. I have on the place is from a girl I talked to waiting for my ER at Cornell. She said a friend of hers is an RN and was at New Hope but moved to Cornell. She thought they were doing unconventional things at New Hope that she didn't approve of would strongly not recommend them to people. I would take this with a grain of salt though b/c a) it was a stranger who told me b) it was one person's opinion and c) she didn't mention specifics.

Edwina.McDunnough · January 2011

You could also ask on Network54. I don't post here, but sometimes take a look. GL.

caityr · January 2011

Hope you don't mind me posting. I have read a lot about them and know someone who consulted there. Yes they take an unconventional approach but they seem to be a place for women who truly have been told no chance by other clinics. I do not know what your dx is but the women on forum54 (for high fsh/DOR/POF) are full of info and may be able to give you some first hand insight. I know that for many of them they looked at NH for their egg bank. Rather than needing a donor to cycle with they have a bank of vitrified eggs that cuts costs. GL.

vanessagorc · January 2011

My acu treats people from there, and speaks highly of them. This is what she has told me, so again 2nd hand.

I belive this is their thought process for IVF w ur own eggs. They only want a couple of eggs at ER (so god for those w DOR etc). They believe the 2 lead follies are the best, and the ones you want.

Hence u rarely see triplets in nature.

So they take these 2 lead follies, fert, and transfer back.

sugardumpling · January 2011

thanks ladies. i will pass this on to my friend.

kelfeen · January 2011

You should def look into that and have it be free! I am considering driving from OH to participate (after winter)

Here is a whole message board I found with people that are in the trial or go to New Hope - lots of them did the mini - you could check in there. I havent found many people on here that know much about it.

https://forums.fertilitycommunity.com/vitro-fertilization-ivf/2020179767-new-hope-fertility-center-clinical-trial.html

may2806 · January 2011

caityr:
Hope you don't mind me posting. I have read a lot about them and know someone who consulted there. Yes they take an unconventional approach but they seem to be a place for women who truly have been told no chance by other clinics. I do not know what your dx is but the women on forum54 (for high fsh/DOR/POF) are full of info and may be able to give you some first hand insight. I know that for many of them they looked at NH for their egg bank. Rather than needing a donor to cycle with they have a bank of vitrified eggs that cuts costs. GL.

Hey, I think Caityr was referring to me ((waves to caityr)) - I consulted there. Their approach is unconventional but is definitely a place to consider if other clinics have given you little hope. They are doing amazing things there, but the reason I decided not to cycle with them was: the process would have been really, really long, and I had already been doing treatments for a couple years and was getting more anxious to just have a baby, even if that meant DE. Because they use vitrification (high thaw rate) for freezing, their idea for me was to do very low stim/natural IVF cycles to retrieve one or two eggs, fertilize and freeze them until we had a bunch stacked up. Then because I have endo he wanted to do a lap, then begin a process of thawing the embies and do a succession of SETs. It's hard to explain and probably makes no sense to most IFers, but for women with severe DOR/POF it is literally one of the best/only options out there. Dr Zhang is pushing boundaries and really wants to give hope to women who have been told there is no hope. That said, success rates are still really low.

If I had gone there at the beginning of my journey I might have been up for it, but instead I made the decision to move forward with DE. I did consider their frozen DE bank because it is cheaper and quicker; but in the end I did end up doing a fresh DE cycle at another clinic.

Hope that helps!

Nature Lover · January 2011

I applied for their study and made it past their first couple of cuts but then didn't continue on. I did lots of research on other boards and didn't like what I see. So taht you understandt he process, the study is to see the differences between a regular IVF and a mini-IVF. Once you are accepted into the program you are randomly assigned to one group or the toher (you ahve no input). If you are in the regular IVF program its a one shot thing. stim, retrieve, transfer success or failure. If you are in the mini program they giveyou lower dosages of drugs and they retrieve mutlipe times. You ahve to keep going back for more and more retrievals (but you are taking less drugs, creating fewer follicles, etc.) and then in the end for one transfer.

People on other board scomplained a lot about how disorganized they were, the long waits, the lack of communication, etc. Things that would be a majoy PIA but maybe not a deal breaker if youg et free IVF out of it. But one lady siad they told her she had a miscarriage and they were going to do a D&C (she was litterally on the table) and begged them to do one last US and there was a heartbeat. She said she ahd mixed feelings b/c on the one hand they did get her PG, but on the other they almost killed her baby. Her OB at home said he had no plausible explanation of how this happened. Who knows how true this is.

All of that put me on alert but the reason Id idn't move forward was because of my personal experience. I was accepted into the study (or at least I made it to the point where they want to actually examine you) and I got e-mail notification of that. I was to fax in my medical records. I tried and tried and tried. Fax didn't work. Called mutlipe times. No rturn phone calls. Sent e-mails. Nothing. Finally I called a general # for the clinic and got another fax # and sent my records to the nurses station (god only knows where my records are now and who has seen them). Apparently theyd idn't make it to where they need to be b/c I didn't get a call and a month alter I got a form e-mail that they were still awaiting my records. More calls, e-mails, etc. - Nothing.

You don't have to send in your records. You can actually bring them with you. Once accpeted to the point I am, you can jsut schedule your appointment and take in your record at that time. Of course the appointment has to be on CD3. I have had no luck scheduling that appointment. Finally Idecided that if it was this difficult then it really probably wasn't worth it. I thought of how much frustration I would have trying to deal with this. I would be flying to NY for each appointment, which would be hell to schedule since they won't call you back. Then I woudl sit for hours and hours. It would cost a substantial amount b/c DH has to go to the first appt for a SA evn if you ahve one 1 month old. Then they don't tell yout hen which group you are in (IVF or mini-IVF) but you have to fly back for that. Then you have to come back for stims and ER. And again for ET. That's if you are in teh IVF program. If mini-IVF you ahve to come back many more times. I jsut didn't think I could deal with their chaos for a long period of time. Maybe if I lived next door!

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