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Any ITP Mom's to Be?

lolliMlolliM
in High-Risk Pregnancy
HI ladies---I'm dropping by from July 2011 moms.  I was diagnosed with ITP 15 years ago.  After 6 months of treatment we opted to go with the spleenectomy.  Before my surgery, my hematologist and my surgeon sat me down and basically told me I can have children but shouldn't!  So pretty much since then I've said I would adopt (until we decided we wanted to try for our own first!!!) So here I am.  I have had high platelet counts since the surgery (and was even over 400,000 when I went in at 8 weeks!).  I am meeting with the high risk specialist tomorrow to see if there are any tests we can do to check the babies count and such.  I don't have a clue what questions to ask!  I was just hoping to find other ITP moms out there and to see if you are having to take special precautions!  I seem to be the only person I know with ITP that was told I shouldn't have babies!!!!
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Re: Any ITP Mom's to Be?

  • FutureMrsDenmanFutureMrsDenman member

    The www.pdsa.org site used to have a very active and super supportive board for ITP Moms and Mom's to be.  I don't know if it is still active or not.  I used to frequent the PDSA boards back when my Aunt and Dad were struggling with ITP - but I haven't really looked in on them in almost 10 years now.

     

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  • lolliMlolliM
    Thank you so much!!!  I used to go on there all the time and post when I was younger!  Good thinking to check in with other ITP moms on there----
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