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Success after IF
sweetsurrender9
member
***LucyPevensie***
sweetsurrender9
member
Lucy, I saw that you're in Pittsburgh, as am I. I have a few questions to ask you, if you wouldn't mind answering them. I'm in the process of trying to figure out where to go from my last RE appointment, and I would love to hear from someone in my area that can maybe reassure me. Thanks!
Me (34): MTHFR, PCOS, Endo, left salpingectomy due to hydrosalpinx,
hypothyroidism, low AMH (0.26)/normal FSH/average AFC of 12
Him (33): No known issues
November 2013-March 2014: Natural cycles
April 2014: Clomid 100mg and Ovidrel trigger -- BFN
May 2014: Clomid 100mg and Ovidrel trigger -- BFN
July 2014: IVF class -- Check!
Holy crap. Unmedicated BFP 7.22.14. EDD 4.01.15.
Best April Fool's Day ever!
Now on Lovenox, prenatals, Vitamin D,
Folic Acid, and Synthroid.
Please be our take home baby.
This discussion has been closed.
Re: ***LucyPevensie***
I would love to help! Fire away with any questions you have!
"When it comes to sleeping, whatever your baby does is normal. If one thing has damaged parents enjoyment of their babies, it's rigid expectations about how and when the baby should sleep." ~ James McKenna, Ph.D., Mother Baby Behavioral Sleep Center, University of Notre Dame
I recently had my second appointment with my RE at Magee. They want to give me a vague plan, i.e.: Mirena (which I have to suppress my endometriosis) out sometime next year, *maybe* BCP after that, then an HSG, blah blah blah.
There's little to no mention of my PCOS and absolutely NO mention of my MTHFR, which this doctor found last visit. The clinic's success rate with blocked tubes isn't so great, and when you combine that with PCOS, I'm concerned that I'm spinning my wheels.
What clinic/doctor did you see for your IF problems? What do you suggest I do/ask for/request that I might not ordinarily think of? I'm a nurse, but right now, I feel like a 2nd grader that doesn't know what to do with herself.
We're out of pocket for IVF, so if someone tells me that IVF is my only option, we're not going to have many shots, and I want a baby so badly I can't stand it. I've read your blog, and your story is amazing. I'm hoping that you can help, even a little bit.
Thank you for taking the time to read this.
OK .. I went to Magee too - Dr. Wakim was my main RE but Dr. Sanfilippo did my laparoscopy, hysteroscopy and two of my IUI's. He is an excellent surgeon, one of the best. If you need a lap for your endo - he'd be a great person to do it.
I liked Magee ... definitely did not love Magee. It was OK. It's a big, busy clinic and in my opinion, not very "patient" centered. Which, if they had amazing stats, you might be inclined to overlook .. but their stats are OK, not great. I never felt particularly close to any of the staff or "nurtured" by the staff (except for Dr. Wakim's assistant - Alisha - she was great. Gave me her e-mail address, always responded to my e-mails, I loved her. But she was it! Oh - and she and I basically devised the plan for my final IUI - Dr. Wakim didn't have a lot to do with it except agreeing to what Alisha and I would run by him.) Had my final IUI not worked - I was considering a consultation with Reproductive Health Specialists in Penn Hills. This fertility clinic is run by two women, one of whom basically used to run the clinic at Magee. Their stats are better than Magee and they have a really good reputation. I found out about them after I went to Magee - and was already rolling along - but again if my last IUI had not worked - I would have at least consulted with these folks before moving on to IVF. Their website is:
www.ivfpittsburgh.com
The other group I was considering consulting with is Shady Grove. A lot of Pittsburghers make the drive - they're outside of Washington, DC and also have a good reputation and good stats - plus a really reasonable shared risk program. Here is their website:
www.shadygrovefertility.com
I think it's important that you feel heard - and that you feel your specific problems are being addressed. Some RE's don't do that. For me - I want a really talented, skilled doctor - who is also compassionate. This is not just a medical endeavor - it's a HUGE emotional endeavor - and any RE who doesn't get that - sort of sucks.
Now - on to your MTHFR - do you have one bad gene - or two bad genes? One bad gene is very common - and many doctors think - not a big deal. You should still significantly up your folic acid intake though. Two bad genes is a bigger deal - and means extra folic and also possible Lovenox and/or baby aspirin to boot. Let me know what the case is for you.
And do a little research on the 2 clinics I mentioned - it may be worth consulting with them as well - just to make sure you're going to the clinic you feel is going to best deal with your specific situation. Who are you currently seeing at Magee?
Good luck to you and we'll keep talking!
"When it comes to sleeping, whatever your baby does is normal. If one thing has damaged parents enjoyment of their babies, it's rigid expectations about how and when the baby should sleep." ~ James McKenna, Ph.D., Mother Baby Behavioral Sleep Center, University of Notre Dame
One more thing about Shady Grove - they are used to Pittsburgh patients - and have relationships with some offices here where you can get your bloodwork and ultrasounds done so it's not like you have to stay close by in a hotel when you're cycling - although you would have to make SOME trips down there. But again, they have a whole protocol for Pittsburghers who become their patients.
"When it comes to sleeping, whatever your baby does is normal. If one thing has damaged parents enjoyment of their babies, it's rigid expectations about how and when the baby should sleep." ~ James McKenna, Ph.D., Mother Baby Behavioral Sleep Center, University of Notre Dame