~STL34 and JKGymnast ~

beth0874 · August 2010

So I have my WTF tomorrow and I am wondering what questions I should ask my RE. When you found out about your dx of DOR, what, if any, additional testing did they do? I am wondering if I have my AFC done or anything else. (They based my dx only on my elavated FSH which was 12) Or if it does not matter since I am already going the IVF route.

Also, did your RE talk to you about IVF with PGD or any else. (JK - I know you are not there yet but didn't know if he might have talked to you about it anyways)

Anything you can think of that I should ask tomorrow? Thanks!

AngelaParish · August 2010

Okay I have to ask. What is a WTF. I had thought it was What The F(*& and finally realized that is not it. I hate to sound ignorant and looked in the glossery and did not see it listed. Please help. These acronyms confuse the hell out of me sometimes.

beth0874 · August 2010

AngelaParish:

Okay I have to ask. What is a WTF. I had thought it was What The F(*& and finally realized that is not it. I hate to sound ignorant and looked in the glossery and did not see it listed. Please help. These acronyms confuse the hell out of me sometimes.

You are correct. It is what the F*&k happened. What is the next plan. HTH!

AngelaParish · August 2010

Oh Ok. SO I am not stupid. THank goodness. I was worried there for a minute. Smile. 4 more days to test and it is killing me ladies.

JKGymnast · August 2010

Hey Beth! The only additional testing they did for me was Factor X (but I dont think that's related?) and more cd3 bloodwork to make sure the diagnosis was accurate. (They based my dx on the elavated FSH.)

She said I have my actual age on my side (I'm 32), but it's enough of a problem that she wants to take action (medicated) on TTC. We did talk about IUI in depth and briefly about IVF. We did not discuss PGD though.

I can't think of anything for you to ask... but if I do - I'll PM you! And of course, if I end up going the IVF route in December - I'll be calling on you for help! :-)

Good luck tomorrow... Make sure you update us!

beth0874 · August 2010

JKGymnast:

Hey Beth! The only additional testing they did for me was Factor X (but I dont think that's related?) and more cd3 bloodwork to make sure the diagnosis was accurate. (They based my dx on the elavated FSH.)

She said I have my actual age on my side (I'm 32), but it's enough of a problem that she wants to take action (medicated) on TTC. We did talk about IUI in depth and briefly about IVF. We did not discuss PGD though.

I can't think of anything for you to ask... but if I do - I'll PM you! And of course, if I end up going the IVF route in December - I'll be calling on you for help! :-)

Good luck tomorrow... Make sure you update us!

Thanks! I will be there every step of the way with you but let's hope that you won't even need to go down the IVF route!

So what is Factor X. This is a new one for me.

My RE keeps reminding me that we need to hurry up because of my age (36) sigh.

JKGymnast · August 2010

"Hurry up"? :-) Tell him you're doing your best!

Factor X - she was checking to see if I had a deficiency; checking to see if I am susceptible to first trimester miscarriage.

beth0874 · August 2010

JKGymnast:

"Hurry up"? :-) Tell him you're doing your best!

Factor X - she was checking to see if I had a deficiency; checking to see if I am susceptible to first trimester miscarriage.

Right? But he does remind that MH has enough sperm to fertilize Boston. Happy for that but it is the reminder that the problem is just me. Oh well, I still like the guy, lol.

Thanks again.

JKGymnast · August 2010

That's funny, I'm from Boston - my RE had no problem telling MH that he has EXCELLENT sperm. YaUmOkThanks.

So, I'm also the "problem".

And I love my RE too. (Good thing!)

STL34 · August 2010

Hey Beth. My RE won't base a DOR Dx on FSH alone. They also do AMH, inhibin B and AFC. I would ask to have those tests. AMH and inhibin B are simple blood tests. They shouldn't fluctuate in the same manner FSH fluctuates.

Because I wanted to rule out some factors before doing IVF (and because I have risk factors for autoimmune implantation disfunction) I am having some RPL tests done and I was going to have NKa testing and RIP testing, but I found out they could be affected by a medication I was taking. So, thet going to treat me as if I tested positive for those. I should find out the results from the RPL tests this week.

My doctor talked about doing Comparative genomic Hybridization (CGH) on all chromosomes (it is a form of PGD). The problem I had with this is that being DOR, I probably won't have many embryos to test in a cycle. So, to maximize the testing, they wanted me to do multiple cycles and test all of the embryos from all cycles at once. Then I would do FETs with the CGH normal embryos. It is pretty expensive. My lab would charge about $2,000 per ER to prepare the embryos and the lab that does CGH charges $3,250 for up to 10 embryos and $250 for each additional. My RE couldn't convince me that the CGH was going to be more beneficial than eventually transferrig all embryos (through fresh cycle and FETs) that made it to blastocyst.

Let me know if you have any more questions or just want to discuss anything. I will PM you my email address (I can't spend much time on the Bump while at work these days).

beth0874 · August 2010

STL34:

Hey Beth. My RE won't base a DOR Dx on FSH alone. They also do AMH, inhibin B and AFC. I would ask to have those tests. AMH and inhibin B are simple blood tests. They shouldn't fluctuate in the same manner FSH fluctuates.

Because I wanted to rule out some factors before doing IVF (and because I have risk factors for autoimmune implantation disfunction) I am having some RPL tests done and I was going to have NKa testing and RIP testing, but I found out they could be affected by a medication I was taking. So, thet going to treat me as if I tested positive for those. I should find out the results from the RPL tests this week.

My doctor talked about doing Comparative genomic Hybridization (CGH) on all chromosomes (it is a form of PGD). The problem I had with this is that being DOR, I probably won't have many embryos to test in a cycle. So, to maximize the testing, they wanted me to do multiple cycles and test all of the embryos from all cycles at once. Then I would do FETs with the CGH normal embryos. It is pretty expensive. My lab would charge about $2,000 per ER to prepare the embryos and the lab that does CGH charges $3,250 for up to 10 embryos and $250 for each additional. My RE couldn't convince me that the CGH was going to be more beneficial than eventually transferrig all embryos (through fresh cycle and FETs) that made it to blastocyst.

Let me know if you have any more questions or just want to discuss anything. I will PM you my email address (I can't spend much time on the Bump while at work these days).

Wow. This is helpful. I guess I have a lot to read up on tonight so I can understand everything a bit before hitting him with questions. Thanks so much.

beth0874 · August 2010

JKGymnast:

That's funny, I'm from Boston - my RE had no problem telling MH that he has EXCELLENT sperm. YaUmOkThanks.

So, I'm also the "problem".

And I love my RE too. (Good thing!)

I will be up in your neck of the woods tomorrow then. I usually don't go to the Boston office but I am tomorrow.

JKGymnast · August 2010

STL34:

Hey Beth. My RE won't base a DOR Dx on FSH alone. They also do AMH, inhibin B and AFC. I would ask to have those tests. AMH and inhibin B are simple blood tests. They shouldn't fluctuate in the same manner FSH fluctuates.

Because I wanted to rule out some factors before doing IVF (and because I have risk factors for autoimmune implantation disfunction) I am having some RPL tests done and I was going to have NKa testing and RIP testing, but I found out they could be affected by a medication I was taking. So, thet going to treat me as if I tested positive for those. I should find out the results from the RPL tests this week.

My doctor talked about doing Comparative genomic Hybridization (CGH) on all chromosomes (it is a form of PGD). The problem I had with this is that being DOR, I probably won't have many embryos to test in a cycle. So, to maximize the testing, they wanted me to do multiple cycles and test all of the embryos from all cycles at once. Then I would do FETs with the CGH normal embryos. It is pretty expensive. My lab would charge about $2,000 per ER to prepare the embryos and the lab that does CGH charges $3,250 for up to 10 embryos and $250 for each additional. My RE couldn't convince me that the CGH was going to be more beneficial than eventually transferrig all embryos (through fresh cycle and FETs) that made it to blastocyst.

Let me know if you have any more questions or just want to discuss anything. I will PM you my email address (I can't spend much time on the Bump while at work these days).

Wow - this is so over my head... Yikes! AMH, inhibin B and AFC sound like familiar tests I may have had - but I'd have to look through my paperwork. I honestly cannot remember for the life of me!

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~STL34 and JKGymnast ~

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