DS is suspected of having a rare overgrowth syndrome called Simpson-Golobi-Behmel. One of the major issues with this syndrome is tumors in the abdomen. At 2 months of ago DS AFP level (cancer screen) was over 1500 (should be between 11-300). We had to have his blood redrawn last week to run the test again. His Doctor at Riley just called, his level is down to 543-THANK GOODNESS! Although it is still higher than they would like it is on its way down and I couldnt be happier! I just wanted to share, I cant reach DH or my mom via phone right now and had to tell someone!
Re: GREAT news today
that is great news! i'll keep your baby in my prayers!
ETA: my MIL did part of her residency at Riley. she speaks very highly of it!
Thank God! Sounds like an answered prayer to me.
I hope the good news keeps coming.
Erica
My first haircut!
Severe MFI - on to IVF w/ ICSI
IVF#1-2: BFN
IVF#3: BFP! - 1/24: ET - 5d - 2 blasts - 2/02: Beta #1: 16.2 ...... 2/04: Beta #2: 35 ...... 2/09: Beta #3: 401.5 - I'm pregnant! - 2/13: u/s #1 - baby boy, due 10/12, born 10/16! ...... 8 lbs 0 oz, 22 inches!