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Not really an update..

LisaandBryanLisaandBryan
in Success after IF

Hi girls, I don't really have an update to what I said on Sunday night but wanted to say I appreciate those asking about me and D.  I had debated all weekend about whether or not to even post anything but figured D could use all the prayers he could get so that's why I posted on SUnday

I don't want to go into too much detail about what we are dealing with because basically I'm not ready to accept what one dr. told me and we are going to a new pediactirc neuroligist tomorrow which I'm sure which inclue a new slew of tests so I probably won't know anything for awhile.  IF he does have the disorder that the first neuroseurgen believes I will just say that my poor baby (and his mom ) will have a a very tough road ahead :(

And I am trying to stay off teh computer because I have basically been making myself sick (literally) googlinga and researching and I know it's not healthy.

ON a brighter note the boys had their 9 month appt. today and they are both on the growth chart 20% and 30% for everything for their ACTUAL age not adjusted which I think is pretty damn good . They are both 18 lbs 8 oz. They are still behind a little developmentally but are receiving therapy so that should help.  The pedi did think going to a  2nd neuroligist is a great idea. 

Thanks again ladies you are the best :)

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Re: Not really an update..

  • MrsACT1MrsACT1
    I am glad their 9month appt went will and yall will remain in our thoughts and prayers...
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    After a loss at 13wks and years dealing with IF and failed treatments (3 failed IUI and 1 failed IVF), we have been blessed with DS (surprise BFP) and now his little sister (2nd round of clomid and TI) on her way. Baby Birthday Ticker Ticker Pregnancy Ticker image
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  • ESTH2000ESTH2000 member

    I will be praying you get good news from your second opinion and that the other pedi was wrong..whatever the case..we are here for you and you will get through this.we are all praying very hard for your family...(((((hugs))))

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  • LVBlvdLVBlvd

    imageMrsACT1:
    I am glad their 9month appt went will and yall will remain in our thoughts and prayers...

    Ditto. 

    DX: PCOS * Success with IVF

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  • candmcandm
    Dylan and you are in my thoughts. Hoping you get better news with the second opinion.
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  • kianewkianew

    Yay for their 9 month appt. going well!! 

    You and D will continue to be in my thoughts & prayers. 

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  • qtpa2tqtpa2t member
    ((Hugs)).  Take care of yourselves, and here's hoping that everything rights itself.
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  • BestThingsComeBestThingsCome

    Oh, Lisa. I wish I could reach through this screen and hug you!!

    You're right...stay away from Dr Google. I don't know what you're dealing with here, but if there's anything I can do to help, PM me. I am a Senior MRI Technologist and my current employment is with both Massachusetts General Hospital in Boston (we cover the MGH for Children also - I've spent years doing pediatric sedation/anesthesia MRI's and have seen SO much, both good and bad) and with Hasbro Children's Hospital in Providence. I can help get you some second opinion names if you're interested or willing to drive. NJ isn't that far!

    GL and PLEASE know we're here for you! Whatever it is that you need...

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  • happytracyhappytracy member
    your family is in my thoughts and prayers
    Dx: PCOS/Amenorrhea/Anovulatory/lining problems. Clomid = BFN's. Lots of cancelled cycles due to thin lining or cysts. IUI#1= Follistim, estrace and endometrin = BFN IUI#2= Repronex, follistim, viagra suppositories and endometrin= BFN. IUI#3= Repronex, follistim, viagra suppositories, femtrace and endometrin= BFP!!!!!!!!!!!!!!!! Isabella born in June via C-section!!!!! She is so incredible! Went back to RE to TTC#2 and got a WONDERFUL surprise!! Baby #2 on their way!! My Beautiful son Liam born Feb, 2011!! Lilypie image Lilypie First Birthday tickers
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  • LIAngelLIAngel member
    (((HUGS))))
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  • Waiting4baby08Waiting4baby08
    I'm glad you are getting a second opinion.  We are all thinking of your family.  Hugs.
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  • howleyshellhowleyshell member

    You GO Momma bear!

    I'm sure this is terrifying but I'm so glad D has a Momma like you in his corner taking on the world to find answers for him!

     

    Congrats on a great 9 month appt for both boys!!

    Keep us updated as you feel comfy and we'll just keep on praying for you guys!!! 

    Our IF journey: 1 m/c, 1 IVF with only 3 eggs retrieved yielding Dylan and a lost twin, 1 shocker unmedicated BFP resulting in Jace, 3 more unmedicated pregnancies ending in more losses.
    Total score: 6 pregnancies, 5 losses, 2 amazing blessings that I'm thankful for every single day.
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  • pamela-mattpamela-matt
    Your family is in my thoughts and prayers
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  • skoorbniborskoorbnibor member

    thoughts and prayers always coming your way...

    Is Dylan in the hospital now? 

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  • leslie&brianleslie&brian member
    You're in my thoughts and prayers ((hugs))
    TTC for 19 months. Dx: PCOS. 3 IUI's with Clomid= BFN 1st IUI with injectables= BFP imageBaby Birthday Ticker Ticker
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  • tnkrbl21tnkrbl21
    That is sooo great about their 9 mos stats :)  I really hope the 2nd opinion works out in your favor.  I'm thinking about and praying for you and Dylan. 
    TTC#1 since Feb 07 with PCOS and mild MFI
    i carry your heart with me(i carry it in my heart) Our first love and loss 7/2/07

    3 cycles clomid TI = BFNs
    3 cycles clomid Ovidrel IUI = BFNs
    6/27/08 Surprise BFP = chemical pg
    IVF#1 July 08 BFP @7dp3dt
    TTC #3 since February 2010
    FET Sept. and Oct. 2010=BFN's
    IVF#2 June 2011=BFP

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  • TheSkimmyTheSkimmy member
    Hang in there!!!! Happy to hear how wonderful they did at their 9 month appt.
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    Married 8.13.2005, M/C 12/8/06- 5 weeks, M/C 2/27/07- 7 weeks, M/C w/ D&C 8/10/09-6.5 weeks *Charles Lawrence born 5/2/08 @ 3:14am, 7lb 8oz, 20.5 inches. Clomid, Crinone and baby aspirin. *Alexandra Claire born 9/14/10 @ 9:52am 6lb 14oz, 20.5 inches. Femara, Crinone and baby aspirin. Lilypie Fourth Birthday tickers
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  • Temp848906437505510Temp848906437505510
    Continued prayers and thoughts for you and your family.
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  • gringa78gringa78
    Thinking of you and D.  ((HUGS))
    PCOS, lupus anticoagulant, MTHFR (A1298C, one copy) 2 IUIs & 1 IVF = BFN FET#1 = It's a girl! Born 7.1.10 FET#2 = c/p FET#3 = Twin girls! Born on 3.16.12 at 33w2d due to severe pre-E. After 4 weeks in the NICU they are home! Lilypie Third Birthday tickers
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  • alison43alison43

    Yay for growing babies!   I'm sorry you are still looking for answers and I hope the neuro you see tomorrow has some more promising news.

    (((hugs)))

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  • choco_labchoco_lab
    take care!
    imageimageimage
    TTC #1: IUI #2 = BFP , Betas 550 (16 dpiui), 1523 (18 dpiui)
    Hypothyroid, LPD, FSH 13.0, TTC 2 yrs B4 BFP

    TTC #2: FSH 23, AMA, IUI 1, 2, 3 = BFN, IVF #1 = MC
    IVF #2 = BFP - Betas 194 (14dp2dt), 366 (16 dp2dt), 841 (18 dp2dt)
    (vanished twin ~7 weeks)
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  • alchrisalchris member
    I am so sorry.  I have been thinking about all of you.  Continued hugs and prayers. :(
    Pregnant with #1 with PCOS and LPD, success with mostly naturopathic treatments
    Our Thanksgiving Day baby 11/22/07

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    Pregnant with #2 with LPD, uterine polyp/hysteroscopy, DOR (AMH = 0.17), 2 c/ps
    Our early Christmas present 12/9/10
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  • JGirl2005JGirl2005 member
    You guys are in my thoughts and prayers!
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  • cmw&tdmcmw&tdm member
    I'll be praying for your little man. 
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  • Temp159135562506975Temp159135562506975 member
    a 2nd opnion is always good with serious things. I'm so sorry it has come to that... you are in my thoughts and prayers. 
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  • dana316dana316 member

    Big, big hugs coming to you and your sweet Dylan...

    We are thinking of you and praying for you...

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  • roaringrockroaringrock

    I've been thinking about you a lot. I'm so happy that you are getting a second opinion. hopefully a new perspective will come with some positive and comforting news. we are all here for you.

    :)

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  • lnlelnle
    (((hugs)))
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  • CheshiritaCheshirita
    Glad the 9 month appt. went well and the pedi agreed with your choice to get a 2nd opinion! Stay strong and we're all keeping you and Dylan in our thoughts and prayers! Take care!
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  • Million$$BabyMillion$$Baby

    Hang in there. I hope you get a better diagnosis at the second neurologist.

    Congrats on a great 9 month appointment! 18 lbs - wow! :)

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  • mrspresleymrspresley

    I'm sorry you are going through this but I am glad you are seeking a 2nd opinion.  hang in there

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  • June24BrideJune24Bride member
    Hang in there Lisa, you've got a LOT of people praying for you and your family. Try to focus on any positive! We are here when you need us.
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  • smilelarismilelari member
    glad the appointment went well.  hugs
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    ~Working Mom~Breastfeeding Mom~Cloth Diapering Mom~BLW Mom~

    Blog - No Longer on the DL ~ The Man Cave
    Shawn and Larissa
    LO #1 - Took 2 years and 2 IVFs ~ DX - severe MFI mild PCOS homozygous MTHFR (a1298c)
    LO #2 - TTC 7 months, surprise spontaneous BFP!
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  • SeptGirl05SeptGirl05
    So glad to hear their appointment went well and I hope the 2nd opinion provides you with some better news.  (hugs)
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  • RadlerRadler member

    I'm so glad you're getting a second opinion. You and your little one are in our thoughts and prayers.

    After 7 failed IUIs, IVF w/ ICSI worked!!

    I am thankful every day for my miracle after infertility.

    And thrilled to be pregnant again after FET!

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  • JM1977JM1977 member
    I'm so sorry you are going through this.  Many prayers for your son and your whole family.
    TTC with DOR, low morphology, fertilization issues
    IVF#1 Oct 2009 (CCRM) - BFN
    IVF#2 March 2010 - Poor response/cancelled
    DE IVF#1 Aug 2010 - BFN
    DE IVF#2 Dec 2010 - Transferred 1, 2 frozen - BFP!
    TTC#2 FET Jan 2013 - Transferred 1 - BFP!

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  • arb212arb212
    Praying for you and your little man!
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  • Mrs.OLMrs.OL
    I am so sorry that you are going through this.  I hope that the second opinion brings you better news.  Regardless we are all here for you.  I continue to keep you and your family in my thoughts.  
    ~Olivia~
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  • BoxTerBoxTer
    I hope you get some better news. Been thinking of you and hoping for the best.
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  • beebe929beebe929 member
    Continuing to keep you in my prayers.
    Health&Fitness Blog imageBaby Birthday Ticker Ticker Lilypie Fourth Birthday tickers Our IVF miracles!
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  • malloryo85malloryo85
    I really hope you get some better news tomorrow. I've been thinking about you guys. Keeping you in my prayers.
    IUI # 1 on 1/19, Beta 2/1 = BFN, Hysteroscopy on 2/15= 5 polyps removed, and cervix cleared, IUI #2 on 4/15 = BFP, Beta#1 on 4/30 @ 15 dpiui= 279, Beta #2 on 5/9 @24dpiui = 10,154, U/S on 8/5 = TWO GIRLS! Born 10/16 at 28 weeks. Lilypie Fourth Birthday tickers Lilypie First Birthday tickers
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