....because my time here is done. I'm posting late hoping to just get it off my chest and because I need to say it to someone, anyone. We are withdrawing our beautiful Matthew's life support later today. He is 7 months 2 days old and my heart is breaking. We had a multi-disciplinary family meeting last week and they told us that there is nothing more that they can do for him. They said that we could stay the course and he could stay as he is right now in the hospital with machines keeping him alive, but that there are no more tests or treatments and that he would never be home with us. The last week with him has been so precious but how do you say goodbye. I know that I have been a terrible lurker, but I do feel like this board is one a the few places I could go to see other families that understand the hardships and undying love that come bundled with a special child. So with that, thank you ladies.
~Michelle A
Re: Wanted to say thank you to all the lovely ladies on SN...
I am so very sorry that you are going through this. I take comfort that the last week was precious for you.
I know this is a terribly difficult decision.
(( BIG BEAR HUG ))
You and your family are in my thoughts and prayers. Many blessings.
A ~ 2.7.06 S ~ 9.2.07
Max 4-08-08 and Michael 2-03-91 (19 years olds)
Both boys were born w/ hirschsprung's disease, you find yourself facing this dx, please feel free to ask me any questions.