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High-Risk Pregnancy
blood clotting disorders and high risk OBGYN?
Hi all. I'm new here, so let me first start by saying that I have been pregnant twice and miscarried both very early on. That led to lots of blood work and finding out that I have a couple genetic blood clotting disorders. MTHFR and Prothrombin Factor II. So I was sent to a specialist and put on baby aspirin, folic acid and Arixtra (same type of thing as Lovenox and Heparin) injections everyday.
I am now newly pregnant again and just had my first appointment yesterday with the specialist. All is great...baby is measuring perfectly and we even got to see and hear the heartbeat! The specialist only sees me one more time and then I get sent off to a different doctor.
So my question is this, should I go to a high risk OBGYN? Supposedly my regular one works in conjunction with high risk doctors, but I don't know to what degree. Is it better to just go to a doctor who is specifically high risk?
Sorry this is so long. Thank you for any feedback!
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Re: blood clotting disorders and high risk OBGYN?
Ok, that is good to know. I was wondering if with high risk you only saw one person or if you saw a couple. My Mom gave the name of a high risk doctor in our area that was highly recommended, so perhaps that is the way to go.
Are there any questions I should be asking when I call?
Well, I see a high risk dr. only, but that is *very* unusual for his practice. (He only agreed because I'm *so* high risk.) Typically, the dr's in his practice just consult with the OB's. For clotting disorders I get the impression that the patients go to the high risk dr. for blood work and other monitoring related to the Lovenox, but go to their OB for everything else (unless something arises, of course).
I'd get more details from your OB about how she intends to work with the high risk dr. In my city, consulting is definitely the norm and most of the high risk docs don't even take patients directly.
(p.s. I'm sorry for your losses, and congratulations on this pregnancy.)
I also have Factor II and MTHFR?my situation is a little different, bc they did not know of my blood clotting disorders until I went into ER and they found a clot in my arm at 28 weeks, they were all amazed that I hadn?t m/c early on with those blood clotting disorders.
When I was in the hospital my group of OB?s worked with closely with a Perinatologist and Hematologist to make sure I was getting the right care. I believe my next pregnancy I will be seeing my OB and Peri?and my Hematologist told me to that she needs to be the first call I make.
Oh wow, that is surprising you didn't miscarry early on with those disorders. So you would recommend working with a high risk?
I just called the high risk my Mom gave me to ask some questions and there you only see one doctor the whole time, which I think sounds good. This way they know everything about me and my pregnancy. And a lot of their patients went to the specialist I see. So I think this may be a good solution for me.
Thank you all for the input! Much appreciated!!
I have a protein S deficiency and have lost a baby due to PTL and still go to my regular OBGYN. They work in conjunction with the high risk doctors when I have ultrasounds etc.
i have prothrombin gene mutation and mthfr..... i only have a single copy of mthfr so i do not have to do anything for that...i had a 26 week loss which led to testing.... now i am almost 14 weeks and on lovenox and baby asprin.... i saw a high risk before i got preg this time, we made a plan and i do not have to see him again.... i will just be closely watched later in the preg by my reg ob.
I feel like I'm getting better monitoring this time then I did with DD because I am going to gen'l prac instead of a center where I had different doctors every time and they never took the time to fully read my chart and constantly got different opinions about what would happen during delivery (which is why I switched). My current doctor is very consistent and I'll be having multiple u/s including high definition at 20 wks and another to monitor flow of blood in placenta / umb cord as I get later in 3rd tri.
I have MTHFR as well. I go see a regular OB and a perinatologist. My per made me have to get some special bloodwork to make sure I was on the right dosage of lovenox. I think it was called a Heparain Antitennae. Or something like that. Lovenox is very much weight based, so I would make sure you have that test done. I think I had the test ~6 or 8 weeks. My fertility Dr only wanted me to do 1 injection a day, but that was not enough for my height and weight, so my peri put me on it 2x a day and it was perfect.
You should also add some extra B6 and B-12 to your diet as well. MTHFR is also indicative of low B-vitamins.
I have mthfr. I was diagnosed at 8 weeks because I ended up with a blood clot in my leg. I continued to see my regular ob, but she consulted with a high risk ob. She was very upfront with me and told me that, if, at any point, she didn't feel comfortable providing my care, I would be switched to a high risk ob.
I did see the peri for one ultrasound, but dd was measuring 2 weeks big, so he wasn't worried about iugr.
i would definitely recommend it. my ob was high risk and he also conferred with other high risk drs to come up with my plan.
do you have a dr for your clotting issues? i would start there to find a suggestion on an ob familiar with these issues.