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2nd Trimester
Choroid Plexus Cyst on the u/s?
I had my u/s yesterday and it's a girl, yeah! DH has decided for some crazy reason that he doesn't want to tell anyone...we'll see how long that lasts.
However, the u/s Dr did mention he found a CPC on her brain. He said the cyst itself isn't damaging but is a soft marker (he found no others) for Trisomy 13 or 18. He recommended an amnio.
When I talked to my OB today she said that it's not too late to take the Quad Screen test (the u/s dated my pregnancy at 17 weeks; I haven't changed my ticker yet) or I could have an amnio, but of course the amnio has risks. She also said I could do nothing, especially since there were no other markers found.
Has anyone else had these cysts and what did your Dr say?
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Re: Choroid Plexus Cyst on the u/s?
Elizabeth 5yrs old Jane 3yrs old
Quad Screen or Triple Screen is optional bloodwork done between week 16-18 to test the levels of 4 (or 3) different hormones that mom and/or baby make. Those levels + mom's age, ethnicity, etc then give an estimation for baby's chance for certain genetic problems like spina bifida and trisomy issues (down's, edward's)
1 in 10000 vs 1 in 250 for example.
Wow, did the find any other markers for Trisomy? I am kind of shocked he would go ahead and recommend an amnio.
I had a CPC found at my 18 week u/s and was sent to a specialist. You can read my story here & here.
Our specialist did not recommend an amnio since our chance for Trisomy 18 was way less than 1/200 for an amnio.
This is scary news, but after doing a lot of research and from hearing about other girl's experiences on here I feel a lot better, and 5 weeks later don't even think or worry about it!
Ahhh ok I've only heard it referred to as a triple test.
Elizabeth 5yrs old Jane 3yrs old
Sookie:
I *think* my u/s yesterday was a level II (he's a genetic specialist, randomly that's where my Dr sends everyone - that could also be why he recommended an amnio -- he's the one that would do it). We've already decided that it's not worth the 1/200 risk; but, of course, I'm still scared.
From your previous post, it looks like you have a 1/400 chance now? Did you also get a triple or quad screen to determine that number?
Yes - my DS had these on our u/s at 17 weeks. My AFP tests were 1:19 chance for downs so we had to do a Level II, which is when they found the cysts. They found no other marker.
At the time my Dr. advised that if no other markers are found, they are not generally of concern and they usually resolve themselves.
We did not do amnio or any further testing. At 24 weeks we did a follow up u/s and they were gone. My son is totally healthy, no signs of Down's. HTH!
They determined (the specialist) that my risk was 1/400 due to my age (28) and that there were no other markers on the level II u/s. We decided not to get any further bloodwork, although it was offered, because even if it doubled our chance of trisomy to 1/200, that is still a 99.5% chance the baby is perfectly healthy. We also decided if there was something wrong with the baby, we wouldn't terminate anyway, so why not enjoy the pregnancy?
The specialist told me he sees the CPC's all the time and to not worry about it. My OB (huge practice, 8 Dr's) said they have never had a baby with a CPC turn out to have Trisomy.
My family is also in medicine and a pediatrician family friend said he thought CPC's were a normal part of brain development and we only now see them all the time because technology is so good. Another OB in my group just told me last week she thinks half the adult population walks around with these cysts and don't even know it!
Hope this helps you, I know we were worried sick about it when we first found out!
Sookie,
Thanks. I have been worried. I'll admit, the first thing I thought at the appt last night was "amnio, this early? Is he crazy?"
According to my OB he makes as much from 1 amnio as she does for an entire pregnancy and delivery. Wow. We discounted the amnio almost immediately after talking to the OB, but of course, it's hard not to be worried.
I appreciate all of your info!
Rored, obviously you and your husband need to make the choice that you guys are most comfortable with. But here in NZ, if a pregnancy has a risk of less than 1/250 they will suggest amnio.
Again, I'm not saying you should do this, but it would explain why your doctor offered it to you as an option, it's obviously just a point where they say to patients, "if you want to know for sure, we can offer you this testing"
Elizabeth 5yrs old Jane 3yrs old
Had the same diagnosis on Friday evening following my u/s on Thursday. I was very freaked out at first, but have calmed down a bit after reading other people's posts and comments. You will find lots on BabyCenter, too.
We have a level II in a few weeks to see if they are gone and if anything else pops, but I am feeling much better and happy that baby so far looked great with no concerns, but the cysts and my quad screen came back with a 1/3700 for Down's and said that Tri 18 isn't a factor for this pregnancy, based on my bloodwork. Granted I know that this isn't prescriptive, but makes me feel a bit better.
Praying for all of our little ones that they are all healthy babies! Glad I'm not the only one experiencing the stress.
Our 1st son had 2 choroid plexus cysts at our 18-20 week scan. Of course I went home and worried nonstop because not only was it one cyst, it was TWO!
We didn't have an amnio or specialist recommended, rather they did another u/s at 28 weeks. Luckily... both cysts were gone!
They gave us our u/s results to carry over to the OB's appointment after and of course we read it. Our baby has one too, but we had CVS genetic testing at 10 weeks and he genetically healthy.
The OB didn't even mention the cyst and neither did the tech. The result sheet even said that we weren't told of the finding. I am assuming this is because most of them end up being benign so I am not gonna worry about it.