So he is beatiful and so very sweet. We knew he was going to have a heart defect and club feet but when he was born he had so much more wrong with him. There are too many to list but we are working with a geneticist and while he was still in the NICU they found out that he has the chromosome defect called DiGeorge syndrome. Has anyone heard of it? I know we have been blessed with this sweet baby but its been hard b/c no one in our family has been through something like this and they try to give us advice like he is a normal baby and they dont understand he has special needs. How are all of you dealing with those relatives that just dont understand? Thanks for your help.