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Are you getting the test for down's, Tris. 18, spinal tube?

wwsurf81wwsurf81 member
in 2nd Trimester
I know people who have opted not to take it and some who have taken it.  The doctor says we have about a week to make up our minds.  What are you going to choose and why?
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Re: Are you getting the test for down's, Tris. 18, spinal tube?

  • EANEAN member
    I did because of my age- I am 37.  But I also feel that the more information that I have the better.  That is my personality.  Bith with my 1st pregnancy and this one, the results came back great.  But if you are under 35, I guess it is not really necessary to some people.
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  • NewLermaNewLerma
    I don't see the point in denying any blood test, but that's just me. If it was something more invasive like an amnio just because, not due to an abnormal blood test or u/s that's a different story.
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  • mfransdellmfransdell member
    We took the test at our last visit, I have yet to find out the results. We would like to prepare/educate ourselves in case the baby does have any special needs.
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  • Mrs_mamMrs_mam
    I chose to have it done. I wanted to be prepared if anything was abnormal in advance.
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  • MrsGibson07MrsGibson07

    Its definitely a choice thats solely up to you and your S/O. We chose to have the testing done based on the fact that should my child have something, or have the possibility, we wanted to be as informed as I could on how best to help our child. It was simply a matter of providing the best for our baby.  

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  • I LUBBINS YOU!I LUBBINS YOU!
    We are not getting the test, as no matter what the results are we are keeping this baby.  We also have no history on either side of the family of the illnesses.
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  • efortuneefortune member
    I dont really see the point in not taking the blood tests, as the more information the better.  It isnt a matter of if you would terminate or not.  I'd think the awareness of having a child with down syndrome ect would be worth the extra time to prepare.  Just my 2cents.
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  • borc0080borc0080
    We chose not to do any of the optional tests.  DH and I don't have any risk factors and I don't like the idea of getting unnecessarily scared by a false positive.
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  • kiki4kiki4 member
    I chose to have the NT scan to determine whether or not to do the amnio (I'm 38).  Our scan results came back awesome (1:5000) so I will not be doing the amnio; had it come back 1:200 I probably would have elected to go ahead with it, so that I could be prepared...not to mention it would have been a way to be 100% sure of the sex.
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  • suscqsuscq

    I did take it because I have a higher risk of spina bifida and wanted to be prepared if we had a child with special needs.  Ours came back with normal risks, but if the results had been higher risk, I would not have done anything differently with my pg.  I just felt like the extra time would give me a chance to research the condition, find doctors in my area, and make any changes to the house/nursery that would better assist us.

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  • festivalhippiefestivalhippie

    imagemfransdell:
    We took the test at our last visit, I have yet to find out the results. We would like to prepare/educate ourselves in case the baby does have any special needs.

    Same here!?

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  • wwsurf81wwsurf81 member
    imageMrsGibson07:

    Its definitely a choice thats solely up to you and your S/O. We chose to have the testing done based on the fact that should my child have something, or have the possibility, we wanted to be as informed as I could on how best to help our child. It was simply a matter of providing the best for our baby.  

    I'm 28 and I don't have any family history either.  It can't hurt, I guess, but I am not going to abort no matter what and I'm not sure I see the point in worrying about something I can't change... Hmmm

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  • LorettaMGLorettaMG

    I have opted out of all testing, mostly based upon my age. My statistical risks are VERY low. If anything abnormal showed up in a blood test (not necessarily indicating a definite abnormality) I still would not have the amnio. The risk of terminating the fetus via amnio is three times the risk of me having a child with Down's.

    I have had three friends who have had their results show a possibility of an abnormality in their blood tests. One had an amnio, everything was fine. The second did not have the amnio and her son was born with no disability. The third lost her child due to the amnio.

    ?

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  • Angelene&JonAngelene&Jon
    After our Doc gave us the info and time line for this decision we talked it over and decided against having it done. We basically felt that it would not change our plans in any way. I do agree though with above posts, and it would give parents more time to adjust/prepare if a child were to have any special needs.  It's a tough decision, and relevant arguments can be made for both sides.  I think most people would agree with your decision either way.  Smile
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  • MrsGibson07MrsGibson07
    imagewwsurf81:
    imageMrsGibson07:

    Its definitely a choice thats solely up to you and your S/O. We chose to have the testing done based on the fact that should my child have something, or have the possibility, we wanted to be as informed as I could on how best to help our child. It was simply a matter of providing the best for our baby.  

    I'm 28 and I don't have any family history either.  It can't hurt, I guess, but I am not going to abort no matter what and I'm not sure I see the point in worrying about something I can't change... Hmmm

    Please dont get me wrong, we would NEVER abort our child. We just did it just so we could be more prepared/informed to help our child. Its all about the baby after all! :)

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  • tigpomtigpom
    We opted not to take the test.  Me and my DH felt there was no need because it would not change anything other than make us both worry.  After saying no I had a few days where I started to think I shoud just to know but I am happy that we didn't.  It was what was best for us. 
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  • LooDooLooDoo

    I did get the test done and it ended up coming back abnormal. They told me I have a 1:13 chance of having a baby with Trisomy 18 (usually 1:6000), which is not compatible with life. It's been incredibly scary and nerve wracking dealing with the possibility of my baby dying and not knowing for sure. I will go for a follow up u/s on Friday to get a better idea of what we're dealing with. However, we already know that we do not want to have an amnio, so even with the level III u/s on Friday, we still won't know completely for sure until the baby is born. That is why I am sort of regretting getting the test done in the first place. I wanted to get the test b/c I wanted to prepared for a child with special needs, if that is what happened. However, I never could have prepared myself to find out that I might not even have a baby or that my baby might not even make it to his 1st birthday. And, since I definitely will not terminate the PG even if I knew for sure the baby did have Tri 18, I kind of feel like I'm going through all of this stress and worry for nothing. I'm just praying for the best and a healthy child and trusting that God will give me whatever child we are supposed to have.

    Like I said, I wanted to have the test to be prepared for a baby with special needs, but if you do get the test done, just prepare yourself to deal with all of the stress and anxiety that comes with abnormal test results God forbid that happens. Wish you the best!

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  • stefani6124stefani6124

    imageborc0080:
    We chose not to do any of the optional tests.  DH and I don't have any risk factors and I don't like the idea of getting unnecessarily scared by a false positive.

    This. There are SO many false positives and we can't do the amino or other tests to confirm (we're high risk). We chose to wait rather than endure the extra stress that a bogus result could bring. It's a very personal decision and it has to be right for you.

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  • CalinsBrideCalinsBride
    We got them done, and it was just a relief to find out that our results were great :)  Honestly, I just didn't see any reason for us NOT to get them done. In utero or not, this is our kid, and if something is wrong with them we want to know. Knowledge is power.
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  • eokorieeokorie

    I was never worried about anything being abnormal with the baby

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  • eokorieeokorie

    I was never worried about anything being abnormal with the baby

    and
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  • eokorieeokorie

    I was never worried about anything being abnormal with the baby and

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  • eokorieeokorie

    I was never worried about anything being abnormal with the baby and

    if
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  • eokorieeokorie

    I was never worried about anything being abnormal with the baby and

    if anything
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  • eokorieeokorie

    I was never worried about anything being abnormal with the baby and

    if anything came
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  • eokorieeokorie

    I was never worried about anything being abnormal with the baby and

    if anything came back on
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  • eokorieeokorie

    I was never worried about anything being abnormal with the baby and

    if anything came back on the
    Report Reply
  • eokorieeokorie

    I was never worried about anything being abnormal with the baby and

    if anything came back on the tests
    Report Reply
  • eokorieeokorie

    I was never worried about anything being abnormal with the baby and

    if anything came back on the tests,
    Report Reply
  • eokorieeokorie

    I was never worried about anything being abnormal with the baby and

    if anything came back on the tests, I
    Report Reply
  • saj&jajsaj&jaj
    I did the NT scan and bloodwork-my risk for Downs & Trisomy 18 came back very low (1:17,000 and 1:29,000). I also did the AFP bloodtest which checks for spinal bifida and other neural tube defects not detected by the NT scan and am very lucky to have shown no/very low risk for those as well.  We do not know my husband's medical history and we felt having the information ahead of time would be beneficial. It is definitely a decsion you, your DH, and your doctor need to discuss, as well as checking with your insurance to see what they cover.
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  • bjbritbjbrit member

    imageI LUBBINS YOU!:
    We are not getting the test, as no matter what the results are we are keeping this baby.  We also have no history on either side of the family of the illnesses.

    This.

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  • meridoutmeridout
    I did.  It's a simple blood draw from your arm that keeps you informed of what to expect with your pregnancy and future child.
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  • ForForeverForForever
    We did so we could prepare ourselves if something were abnormal.
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  • sept14sept14 member

    We did only the blood test for spina bifida-- it is the only condition that could be treated.  We would not terminate, no matter what.

    The screenings have too many false positives.  The literature we were provided even stated as much... saying not to worry if you a positive result since many of those end up being normal pregnancies. 

    I think information is good, but since it could be false info that would cause me to worry troughout the pregnancy... why bother.

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  • thefarmchickthefarmchick member

    We chose not to have the tests.  When we asked if there was anything we can do if something came back bad, they said no.  So we decided not to borrow trouble.

    I honestly felt like if something DID come back bad I would worry about it for the rest of the pregnancy. DH felt that if there really was something wrong he would rather find out whe there was a baby to hold.

     

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  • jeffraejeffrae member
    We did and we got the unfortunate results of an elevated risk for Trisomy 18 (1 in 8 which is very high for a 31 year old).  I have an amnio tomorrow and am praying everything is okay.  I am not sure that I will opt to get the test for our next child. 
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  • DanielsWifeDanielsWife

    We wanted to know for sure that we were OK, especially with our first baby.We also knew about false positives, so we thought we would be prepared for that.

    Mine was 1:91 for Trisomy 18, which the docs are pretty much OK with and all, with the follow up u/s showing NOTHING, but even with that, I don't think we're going to do it with the next kids. ?Even though I knew I would be a higher risk of false positives - due to my weight (I have a nursing school laboratory book, which tells all of the interfering factors) - but that still did not help me or my husband with the sheer panic we have gone through.

    Nothing came up for Downs or Spina Bifida/Neural Tube Defects - in fact they were perfect odds - and now that we know for sure that Trisomy 18 is the one that does ALWAYS show up in deformities on the level II u/s, I will not go through the testing again.?

    It is a personal choice for everyone. ?No one can tell to do it or not do it.?

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  • UTMissyUTMissy member
    We did but mainly because we got caught off guard. I had to switch dr.'s since my previous one doesn't deliver babies anymore and he failed to tell me that I would have to have it done at the next appointment if I wanted it. We opted to do it mainly because it was just a blood test and they already needed to draw blood to check on a gene mutation I have (they wanted to see how my levels were to determine if I needed additional medication). I honestly forgot all about it since we had a death in our family and another family emergency the weekend before and were wrapped up in family stuff. All came back clear though (including my gene mutation  test which I was more concerned about!).
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  • acherryfamilyacherryfamily
    Now days they kind find out so much more that when I was born. I always take whatever test they offer. I would rather be prepared for anything the not know and not be prepared. We just did the test for down syndrome 2 weeks ago. My dr's office only calls if something is wrong and they haven't so that is good news. We also had our u/s today and 1) we're having a BOY and 2) his heart looked great. I'm glad that modern day has brought us to where we are with science, it's a great asset..
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