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2nd Trimester
jenerally
member
*** jason'swife ***
jenerally
member
::groans:: Lord, child, it would take a book to catch you up.
Here goes with the short, short version:
Dash was born and 24 hours later suffered two seizures. They did a CT Scan and discovered he has a very large brain bleed ... basically, sometime around his birth he suffered a brain injury. Since then, he hasn't had any more seizures, but he's had a head ultrasound every few days to check on the status of the injury ... if it gets worse, he's going to need surgery. Even if it gets better on its own, it's likely he'll suffer developmental delays later in life. How these will manifest ... we don't know. We can only wait and see.
In addition, he was hyperglycemic at birth due to my having GD. So he was on a sugar mixture at first to help his pancreas figure out what it was supposed to do ... and now he's being bottle fed, so we have to wait and make sure he's gaining weight the way he's supposed to before he can come home. If he hadn't had the brain injury, it's likely he would've been home with us by now already but since he's so delicate, they were being cautious at first about pushing him to take the feedings.
He had an ultrasound this morning and we'll hear the results sometime tomorrow. If everything looks OK and his feeds continue as well as they have been, he'll come home with us at the end of the week. We'll still have weekly check ins with the pediatic neurosurgeon and likely lots of PT and EI services ... but we're just taking it one day at a time right now.
This discussion has been closed.
Re: *** jason'swife ***
no, no clue. It was just an accident ... it happened right before, during, or right after his birth. The cord *was* wrapped very tightly around his neck ... it's possible it was a cord accident, but no one knows or can say for sure. Since I delivered so quickly, they didn't have time to monitor him very much before he arrived (they had the hb monitor on him through my belly, but that was it) ...
it all just sucks. A lot. More than a lot.
But how are you feeling?? Ready to make that move to 3rd tri?
Wow. I just can't believe that. How are you coping with all the back and forth from the hospital? Especially with a toddler at home? I can't imagine. And not knowing what the long term implications might be isn't cool either.
I CAN'T WAIT to move to 3rd Tri. I know... shocking.
LMAO at the move to 3rd tri. It feels like you've been here in 2nd for way too long.
I'm ... coping as well as can be expected, I guess. Some days -- some moments -- are better than others. I didn't go to the NICU today and I'm having a hard time with that. Grayson (DS1) has been sick and very mama-centric, so that's been hard, too.
It's the Not Knowing that is the hardest for me ... and sometimes I handle it better than other times.
Aw, hon. Don't feel guilty (easier said than done, I know). You're in the very difficult position of trying to do what's best for everyone and sometimes you just can't be everywhere at once. I'm sure Dash has wonderful people taking care of him, and you'll fell that much better when you see him tomorrow. I'm sure Grayson appreciates a little extra attention too.
As for not knowing, I think you just have to have faith that everything will work out. How many stories have you heard about parents being told there could be or would be something wrong with their baby just to come out of it with a perfectly healthy little one? LOTS. Dash is a fighter, and you're a wonderful mommy who will give him everything he could ever need.
::sniffle:: thank you, sweetheart.
I keep hearing/being told/reading about these amazing miracle stories. I hope Dash will be one of them too, but I'm also a realist (and a pessimist, I'm afraid). I like knowing the worst case scenario so I can be prepared ... and perhaps pleasantly surprised when it's not quite as bad as all that.
DH thinks like you ... he has faith that things will work out. He's been amazing this past week and I don't think I'd still be standing without him and Gray in my life.
thanks for the positive vibes. I needed to hear that tonight.