Just wondered if there are any mom's here who have Neurofibromatosis? I was diagnosed with NF-1 as a newborn. Both my mom and her mom also had it, and so does my brother.
I have 2 sons, nether one has any evidence of it (no CAL spots at all- but both are very short- I am only 4'9)
I am also pregnant right now (11 weeks).
I previously only had tumors on the sides of my feet and one on my chin pre-pregnancy with my first son. Once I got pregnant with him I started to grow more tumors and they are all over my stomach, breasts, and some on my back.
I have quite a few small raises of skin- not quite under my skin (on my arms and hands) if that makes sense. They are not under the skin- but more like slight raised but only noticeable in certain light if I hold my arms just right..
This pregnancy I am super paranoid about the tumors growing bigger on my arms and hands.
I am praying all the time that this baby does not have NF. I know one can live a fine happy life with it but it (my dx) still bothers me..