Can I vent for a minute? A little background: I posted here a while back about DS being speech delayed. He turned 2 last month and is still totally non-verbal and unable to follow verbal cues of any kind. His initial eval seemed like it was all communication issues, but his therapist since then has mentioned some other concerns that seem mostly sensory but are definitely impacting some developmental milestones as well.
So, on to my vent. He's been in EI for almost 6 months and they decided about 4 weeks ago that it was time for him to move into ST and they recommended having him evaluated for OT. Since then he hasn't had therapy of any kind while we're jumping through all of the various hoops to get going on the evals and referrals and authorizations and it seems like none of it gets done without me having to call 15 times. They've said now it will likely be another 6-8 weeks to even get started on ST and OT, which is beyond frustrating because he's going to age out and have to start all over again in 11 months as it is. I'm going to start buying lottery tickets so if I win I can just pay for all of this stuff out of pocket. I hate that he's being held off on something that's been so helpful for him because I can't afford therapy so I have to go the long way around. Does this get easier? Is it better when he's going through the school system instead? I'm new at all of this and I really feel like I have no idea what I'm doing most of the time. The only reason I've figured out this much is because his EI therapist was awesome and helped me through a lot of it.
Anyway, thanks for listening if you made it through that. I literally don't know anyone in real life dealing with this stuff so I have no one to really even complain to. My friends and family are all so supportive and celebrate every tiny accomplishment of his right along with us, but they just don't get how frustrating this process has been. I'm going to try to come on here more often. It feels good to be around people that know where I'm coming from, and your brag day posts make me so happy while we wait for our own brags.