Pregnant after IF

XP: devastating news at a/s

My Ob just called me with the results of our a/s. I posted Monday they just took photos and sent them on to radiologist. Apparently the baby has a problem with his spine, spina bifida. All the other tests, nt scan and maternit21 were fine. Dr is surprised. She booked us with a specialist tomorrow morning. I'm so scared. 

The Dr said everything else looked good.She said it was a good sign he was moving around so much. 

I started to google.  we dont know the extent of his issues so I dont want to get too scared. 

Please send me any good thoughts and prayers. I'm devastated. I cant lose my baby. I just want him to be able to have a normal healthy life. 





Baby Birthday Ticker Ticker Baby Birthday Ticker Ticker

Re: XP: devastating news at a/s

  • I am so sorry you are going through this. I hope that the specialist can give you some answers and some hope at your appointment tomorrow. Sending lots of T&P your way. {{hugs}}
    *** Trigger Warnings ***

    TTC #1 since March 2011
    Dx = Unexplained IF
    1 medicated TI cycle & 4 clomid IUIs = all BFNs
    June 2013 IVF #1 = 6 frosties + BFP!
    DS1 born 2/14

    TTC #2 since December 2014
    May 2015 unassisted BFP ended in m/c at 7wks
    April 2016 FET #1 = BFN
    June 2016 FET #2 = c/p
    August 2016 FET #3 = BFP!
    DS2 born 4/17
  • Loading the player...
  • I'm so sorry you're dealing with this. I hope the specialist offer more information so you can feel empowered and less anxious. Big hugs and comfort to you guys.
    BzeetyD = 38, Mr. BzeetyD = 44 together 12/02 married 9/08
    TTC #1 since 1/10
    DX: Unexplained/??? MFI issues

    Our lil' lost sparks:
    5w3d loss 7/30/10 - EDD March 2011
    8w loss 4/15/11 - EDD November 2011
    8w3d loss 8/2/12 - EDD March 2013
    4w c/p loss 10/29/12 - EDD July 2013

    Long story: trying on our own + testing testing testing with 6 rounds of Clomid, more testing, injectables + TI, laparoscopy - one tube blocked, 2 IUIs with Follistim...BFNs.
    RPL testing all normal, Karyotyping normal

    Moving on to IVF.

    IVF #1 April 2012 = BFN, IVF #2 June 2012 = BFP. U/S 7/23 = saw heartbeat but measuring behind. Follow up U/S on 7/30 - no heartbeat. D&C 8/2. Trisomy 12. IVF #3 Oct 2012 = Chemical Pregnancy

    Phone consult with CCRM on 12/12/12 - ODWU 1/4/13 - both tubes clear(!) - AFC 24, AMH 3.2, FSH 9.6, LH 5.4, E2 25. DH has high frag rate but improved!
    IVF #4 March 2013 CCRM. EP protocol w/ Menopur, Gonal-F & Dexamethasone. ER 3/29 & IMSI, PICSI. 43R 13M 10F 6blasts bio'd. CCS testing reveals 3 normals!!!
    FET 5/31/13 of 1 4AA blast - thawed and expanded. 4dp5dt BFP.
    Beta 9dp5dt = 181, 11dp5dt = 427. 1st u/s showed a healthy heartbeat! EDD 2/16/14

    After 4 years of hoping and heartbreak, our sweet little bean was born on 2/19/14
    We are so in love with her.

    "I'm not telling you it's going to be easy, I'm telling you it's going to be worth it."

    Everybody is welcome!!!
  • I am so sorry you are going through this my sister has spina bifida that they missed in utero and then she had to have surgery when she was six months. She then had another surgery at 10. There is a wide range of bifida but it can be managed. Make sure you get an opinion from both a neurosurgeon and a orthopedic surgeon before moving forward with anything after birth. Good luck
    6 m/c
    Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
    Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011
    1 Clomid/Ovidrel BFN May 2011
    Natural cycle Aug 2011 BFP M/C 4 Weeks
    1 IUI Sept 2011 BFP M/c 7 weeks
    Provera Dec 2011 BFP M/C 3 Weeks
    DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011
    IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
    IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
    Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
    Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone) 
    Went to Beer Center- high tnf, low lad, implantation failure
    Nov/Dec 2012 LIT Treatment
    Dec 12 Humira
    Jan 2013 BFP
    Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
    Miracle Born August 2013 Premature

    Yours doesn't have to be a sad story



    image
    image


    Lilypie - (ugiy)


  • I am so sorry.. My thoughts and prayers are with you. Wishing you the best of luck and some answers at your appt tomorrow. HUGS!!
    TTC since June 2011
    DX: DH (30) severe MFI, severely low count & low motility
    Me (32): all clear
    Appt with Urologist 5/21/12: exam, ultrasound, bloodwork all normal.
    Testicular Biopsy with TESE on 6/8/12. good sperm found! (left side only) froze sperm, failed thaw test :(
    Orientation for IVF/ICSI on 6/13/12. Waiting for the green light following biopsy results...results show adequate sperm production both sides.
    2nd SA 6/18/12: sample is "adequate for ICSI"
    Plan: IVF/ICSI July 2012!
    ER: 7/26/12. 15 eggs retrieved, all mature.
    TESE/TESA/aspiration from epididymis, no motile sperm found :(
    froze all eggs, the saga of praying for good sperm continues.
    8/3/12: 2nd opinion from MFI uro on biopsy slides. Suspects "partial late maturation arrest."
    Plan: more SAs, third biopsy/TESE with frozen back-up either from DH or DS.
    SA 8/17/12: Zero sperm
    SA 8/23/12: Zero sperm
    9/26/12: SPERM FOUND! 15 eggs thawed, 12 survived and were ICSI'd, only 3 fertilized normally. Refrozen as embies and will thaw in Nov. Please survive and grow!
    All 3 survived the thaw on 11/15/12!
    FET 11/17/12: transferred 2, one 4B, one 4C. Beta 11/30:BFFN
    moving on to DS
    DIUI#1 2/18/13,50mg Clomid cd 3-7, Ovidrel trigger, Beta 3/4/13: BFN.
    DIUI#2 3/19/13, 50 mg Clomid cd 3-7, Ovidrel trigger, Beta #1 (14dpiui) 4/2/13: BFP!!!! 150. Beta #2 4/4/13: 420 Beta #3 4/8/13: 2691. Beta #4 4/15/13: 15,086
    1st u/s 4/8/13 shows one gestational sac
    2nd u/s 4/15/13 shows yolk sac, fetal pole and early heartbeat
    3rd u/s 4/25/13: measuring right on track. Heart rate 148 bpm
    A/S 7/22/13: IT'S A BOY!!
    PAIF/SAIF Always Welcome
    [IMG]http://i49.tinypic.com/2qmon5u.jpg[/IMG] [IMG]http://i225.photobucket.com/albums/dd243/laurakat24/turkeybaster-1.jpg"[/IMG]Image and video hosting by TinyPic
    BabyFruit Ticker
  • I am so sorry. I'm praying for you and your baby. I hope you get some reassuring news soon.






          


     TTC since 9/10 consult 1/12 All testing came back fine Diagnosed with Unexplained infertility -3 medicated IUI's All BFN IVF - ER 11/14 24R, 15M, 13F ET 11/19, BETA 11/28 BFFN --Next step FET in Jan ET scheduled for 1/24. Beta #1 350 Beta #2 735. U/S Hell. miscarriage D&C at 9weeks. FET #2 ET 5/28 cancelled FET# 2.5 6/26 ET Beta 7/5 302 7/7 Beta #2 632 Everyone welcome



    image image
     imageimage




    Baby Birthday Ticker Ticker
  • I am so sorry.  I hope the specialist can shed some light on things for you (((hugs)))
     TTC #1 since 6/09
    Dx: PCOS and MFI
    3 IUIs, 4 IVFs = BFFN
      3rd RE: IVF #5/FET = BFP
    14dp5dt=1170 16dp5dt=2573

    1st u/s=
    TWINS!
    It's a Boy and a Girl!

    Born at 34w3d! 
     

  • I'm so sorry. Hopefully the doctor tomorrow can give you a better idea of the degree of involvement. Sending lots of good thoughts and prayers your way!!
    Me: 33 DH: 36 Unexplained IF
    First pregnancy - DS 01-Apr-09;
    3rd cycle Clomid/IUI after 2 years TTC
    TTC #2 since ~June 2010
    IUI #1 & 2 - Clomid/IUI - BFN
    IUI #3 &4 - Gonal-F/Ovidrel and IUI -- BFN
    IUI #5 - Gonal-F/Ovidrel and IUI -- BFP!!
    EDD: March 22, 2013
    It's triplets!!


  • I'm so sorry.  I'm hoping the specialist can give you more information tomorrow.  My thoughts are with you. 
    TTC #1 7/10, Me (31)- Dx DOR (AMH 0.6); DH (30)- normal
    BFP on Cycle #8. Natural M/C at ~8 weeks
    IUI #1 and #2 (8/12, 9/12)- 50 mg Clomid + Ovidrel = BFNs
    IVF #1 (EPP) 13R/10M/9F, 5DT 1-4AA blast, beta #1-148, beta #2-322, 5 frosties! 
     image  image  
    image
  • Oh no! I am so sorry to hear this and can't imagine what you must be going through right now. Sendings hugs and lots of thoughts and prayers your way!

    image


    Baby Birthday Ticker Ticker


    Lilypie Angel and Memorial tickers
    image


    http://svendsenfamilyjournal.wordpress.com/


    5/07 - DD conceived naturally cycle #1

    8/09 - Started TTC #2
    11/10 - BFP!
    12/10 - MC (Chemical Pregnancy)
    2/11 - IUI #1 with clomid & trigger = BFN
    5/11- Switched to a Fertility Specialist, Dx with low progesterone and annovulatory, several rounds of
             clomid = BFN's
    4/12 - Exploratory Lap, Dx Stage III endo
    5/12 - 7/12 - Lupron injections to suppress AF and reduce scar tissue
    8/12 - Surgery to remove tissue, uterus and tubes clear!
    9/12-12/12 - More BFN's!
    1/13 - Referred to an RE
    2/13 - IUI #1 with injects and new RE = BFN
    3/13 - 4/13 - Break due to cysts
    5/13 - IUI #2 with injects (125ml bravelle + trigger) = BFP!!!
    EDD - 1/23/14

     

  • I am so sorry for this unexpected news. I do know that there are many degrees and while they require medical attention all hope is definitely not lost. Sending lots of prayers your way.
    Me (37) DH (39); PCOS changed to Unexplained, changed to DOR in 2012 (finally a correct diagnosis!); 
    Started TTC 2009 with RE after 6 months.  
    Clomid + Trigger x2; 
    IUI + Femara x1,
    IUI + Follistim x2;
    IVF #1 (MDL) February 2013- BFN.
    IVF #2 (antagonist) May 2013, First BFP of my life. 
    Identical twin miracle BOYS (!!) headed our way- due date is technically 2/4/14 but c section is scheduled for 1/7! 


    BabyFetus Ticker image
  • I am so sorry that you are going through this.  I know exactly how scarey it is to find out that there is something wrong with the baby.  But do not listen to other people on the internet and do not google too much (I know that it is hard).  Just talk to the dr and see what they say.  And that the baby is moving around is a really good sign.  Hang on to that.  My dr. keeps telling me that it is hard to diagnose a baby in utero and that they have to tell you the worst and put a plan in place for that.  I will keep you in my prayers.
    Warning No formatter is installed for the format bbhtml
  • I'm so very sorry you're going through this. Sending a lot of T&Ps your way. I hope you're able to get more answers from the specialist tomorrow, keep us posted.

    ((Hugs)) 

    Oct 13 April Siggy: Bunnies
    The 33 Most Important Bunny GIFs On The Internet


    image

    DS born on 9/30/13 from IVF #1.2!
      Lilypie - (xNS5)
  • I am so sorry! Sending tons of love, hugs, prayers, and healing to you, your hubby, and baby boy.
    Lilypie Fourth Birthday tickers
    image
    Doriimage
    "Just keep swimming, just keep swimming..."
  • I'm so, so sorry that you're going through this. Sending you and your sweet baby boy so many thoughts and prayers that the specialist is able to help and comfort you. ((hugs))
    TTC #1 since Oct 2009, Dx: Unexplained Infertility
    HSG: Right tube all clear, left tube inconclusive
    3 failed Clomid Cylces
    4/5 lap revealed blocked left tube, but right tube is open
    April/May- 50 mg Clomid + Ovidrel + IUI #1= CANCELLED left ovary ovulating
    June 1- 100 mg Clomid + Ovidrel + IUI #1 = BFN
    June 28- 100 mg Clomid + Ovidrel + IUI #2 =BFP!
    7/12 Beta #1= 14 Beta #2= >5 Chemical Pregnancy :(
    July-Nov long break to recover emotionally and financially
    Nov 24- 100 mg Clomid + Ovidrel + IUI #3= BFN
    Jan 22- Gonal-F + Ovidrel + IUI# 4 = CANCELLED no response on right
    IVF #1- Start stims 4/7, ER 4/20, 21R, 14F, 6 frosties, ET 4/25, 2 embryos transferred= BFN :(
    FET #1- June 2012, Lurpon starts 5/27- CANCELLED
    FET #1 take 2- August 2012, delayed until Sept-CANCELLED
    FET #1 take 3- ET 10/11, 2 embryos transferred,= BFFN
    FET #2- Transfer 12/4--Cancelled, no embies survived thaw :(
    Next steps-- IVF #2 with new RE in March
    HOLY SURPRISE BFP 2/15/13!!!! Beta 1- 286, Beta 2- 782, First Ultrasound 2/25- baby in uterus & all looks good!


    BabyFruit Ticker

  • Hello, 

    I am so sorry. Best of luck and I hope you get good news soon! I will be praying for you. HUGS!  

    BabyFruit Ticker
  • I am so sad, this has not been the day for good news.  I found out a dear friend's IVF#2 didn't work and they are essentially out of money.  And now your heartbreaking news not that either can compare to the other.  

    I am so very sorry and can not imagine what you are feeling or thinking.  I would say to try and focus on the positive side that the baby was very active and take luvboston's advice to heart too.  From what I understand about it there is a wide range of how it can affect life.  

    I hope for the best for your baby. 

     

    TTC#1: 14 months on our own (did HSG, b/w, SA);
    BFP on Cycle 14--TWINS! Identical twin boys stillborn at 19wks(1/9/10)
    3 break cycles; took clomid 50mg, BFP #2 Beta #1 35, Beta #2 338!!! Owen was born 2/11/11! 
    TTC#2: 4 cycles on clomid: BFNs
    BFP #3: Cycle #5 100mg clomid; beta #1 21; beta #2 6=CP 
    Cycle #6 break cycle TTC no meds=BFN
    Cycle #7: 150 clomid+ovidril+IUI=BFN (switched to RE)
    Cycle #8: follistem+ovidril+TI=BFN
    Cycle #9 Forced break due to cyst
    Cycle #10 follistem+ovidril+TI=BFN
    Cycle #11 follistem+ovidril+TI=BFN
    Cycle#12 Forced break due to cyst, went on BCP; did repeat HSG, Saline U/S
    Cycle #13 IVF: Follistim/Menapur ER 11-30 11 eggs, 5 mature, 4 fertilized and 3dt on 12-3; BFN
    Cycle #14: IVF#2 lupron/follistim/menopur ER 1-22, 19 eggs, 14 fertilized, 5dt on 1-27, BFP!! beta 1: 63, beta 2: 119; EDD 10-15-13; 1 frozen embie
    Miracle Surprise BFP, EDD 10-1-15; saw HB great Betas, 11weeks lost baby MC at home
    Moved forward with FET transfered solo frostie on 6-4-15, beta 1: 315, beta 2: 738, u/s showed one baby on track EDD 2-21-16
  • I'm so sorry.  Sending T&P's your way.
    ***Siggy Warning***

    imageimage
    Anniversary

    Started TTC June 2011Cycles #1-10 = BFNCycle #11: 100 mg Clomid + TI =BFNReferred to RE March 2012HSG all clear, FSH = 13, Prolactin = 28, S/A = greatApril 2012 MRI to check for brain tumor due to elevated Prolactin = clearJune 2012 Hysteroscopy to remove uterine polyps and partial septateJuly 2012 IUI #1 7/7/12 = BFNAugust 2012 IUI #2.1 Cancelled due to early/missed ovulation = BFNSeptember 2012 Forced break due to one huge cyst October 2012 IUI #2.2 = BFNNovember 2012 Begin BCPs for IVF #1December 2012 IVF #1 = Delayed due to cyst. Start stims 12/22January 2013 ER: 1/2, 14R, 10M, 9FET: 1/7 Transferred 1 "Perfect" blast! 4 frosties!Beta #1: 99 BFP! #2: 227 #3: 584 #4: 3,020Baby Boy born September 25, 2013

    TTC #2
    November 2014 - Begin BCPs
    December 2014 - Start Lupron 12/25
    January 2015 - FET #1

    Image and video hosting by TinyPic
    *Everyone Welcome*


  • So sorry to her that :( sending positive vibes your way!
    Me:30 low AMH; DH:30 MFI (count, motility, morphology)
    2 rounds clomid 100 mg -BFN
    IUI#1- 25 mg clomid- July 2012= BFN!
    IUI #2 August = BFN!
    IUI #3 September = BFN!

    IVF #1 November - converted to IUI #4 due to poor response = BFN
    IVF #1.2 February- converted to IUI #5 due to poor response = BFN
    IVF #1.3 April- micro dose Lupron flare with HGH; 14R, 13M, 11F! Transfer of 1 day 5 blast on 4/30, 4 frosties. BFP! Beta #1 9dp5dt= 179; Beta #2 11dp5dt= 442; Beta #3 4106 Stick baby stick!!

    *trying to keep hope*




  • Sending thoughts and prayers your way. I'm sorry you are having to deal with this. 
    May Siggy Challenge: Labor Memes



    Me:31 DH:32 Married 11/06/10
    DD: Born 8/23/13 (clomid+ovidrel+IUI)
    BFP 9/9/16 EDD 5/19/17


  • praying for you and LO!!
    Jenny-34, DH-39, Furdog-Nissa
    TTC#1 since Aug '05, CP: 10/05, 8/12; BO: 1/13;
    IUI #8: BFP, beta 1, 6/4/13: 267, beta 2, 6/6/13: 765; First US 6/18/13-Twins!!!
    Due February 13, 2014 with two BOYS! 
    Henry Leo, 4# 13oz, 18.75 inches and Samuel Thomas, 6#, 18.5 inches arrived via c-section January 30th!  

     
  • I'm so sorry you have to deal with this.  Sending you many T&Ps.

    My Blog: The Journey
    Image and video hosting by TinyPicImage and video hosting by TinyPicimage
    TTC with PCOS since 4/2011
    1500mg Metformin
    4 Clomid cycles (3 cancelled) / 2 Clomid + Follistim + IUI cycles
    10/2012 & 11/2012- Treatment break while waiting for new insurance to become effective.
    IUI #3 in December... or not. Surprise BFP on 12/9/12!
    12/10 Beta #1: 25, 12/13 Beta #2: 122, 12/17 Beta #3: 738
    12/20 1st u/s, 12/27 2nd u/s with a heartbeat!, 1/3 3rd u/s & released from RE

    EDD: 8/21/13

    BabyFetus Ticker

  • I am so sorry! Probably best to stay away from google and wait until you know the facts of your situation. I know it's so much easier said than done...hang in there and sending positive thoughts your way.
    Warning No formatter is installed for the format bbhtml
  • My t&p go out to you. :-(
    On 10/23/13 Baby Sophie and Baby Gabriel born at 21+5 weeks. They grew wings and flew away from us. May God bless them always. We love you beans!
    Lilypie Angel and Memorial tickers
    Phoebe Jaslene born at 19w3d. We love you beba! Lilypie Angel and Memorial tickers



    image
  • Keeping you in my thoughts and prayers. Please keep us posted on what the Drs have to say tomorrow.
    Married 8/14/10 * TTC since Aug 2010 * Met with RE in Feb 2012 * DH: low motility, low sperm count, elevated FSH * Me: Stage 4 Endometriosis * Laparotomy to remove endo in May 2012 * June 2012 - DH on Rx to hopefully increase count/quality * Re-tested sperm 10/22/12, count/quality have both dropped * IVF #1 w/ICSI * Transferred 2 beautiful embryos on 2/18/13 * Beta #1 3/1/13 - 636!!! Beta #2 3/3/13 - 1796!!! First ultrasound scheduled for 3/18/13 Image and video hosting by TinyPic birthday2012_small Anniversary
  • I'm so sorry for the news.  I'll be hoping that you are dealing with a mild case and that the specialist can give you some peace of mind.  Please keep us posted after your specialist appointment.
    Married 8/2008. IVF with PGD March 2013.
    3/22 ER: 25R, 20M, 15F. 9 genetically normal, and 3 survived to Day 5
    3/27 ET: transferred 1 embryo, beta 9dp5dt=163, 12dp5dt=639
    4/25 1st ultrasound at 7 weeks = identical twins with heartbeats?!!!
    PPROM at 31w, delivery at 32 weeks of two beautiful girls
    image
  • I'm praying for you Kdragonfly....Hoping you got some answers.
    Me 35, DH 36
    TTC summer 2008
    Diagnose me. DOR, DH perfect
    IUI # 1 6/2010, BFN
    IUI # 2 8/2010, BFN
    IVF # 1 10/2010 Canceled poor response
    IVF 1.2 12/2010 BFP! mc 6 weeks 2 days
    Mental health break for 10 months
    IVF # 2 10/2011 BFN
    IVF # 3 5/2012 BFP! 10 eggs retrieved (best ever)
    7 fertilized transferred 3
    Beta #1 14dpo - 72, Beta #2 17dpo 145 Beta 3 20dpo 521
    First u/s June 15 saw HB 126 bpm missed m/c 7/5/12 10 weeks D&C 7/6/12
    IVF#4 ER 9/30 ET 10/3 Beta 10/16 BFFN. IVF #5 final with o/e. ER 1/21 only 1 retrieved, hoping my lonestar is the one. Beta #1 2/6/13 = 209.... please let this be it! Keep growing lonestar! Beta #2 2/8/13 - 586! , Beta #3 2/10/13 = 1898. First u/s perfect little heart beat at 116 bpm. Measure 6 weeks 1 day. EDD 10/14/13
    3/4/13 measuring right on track beautiful heartbeat 171 bpm, graduated from RE to OB... bittersweet.
    PAIF/SAIF always welcome! Its a girl! 

    Maggie Grace is here!  10/5/13... 8lbs 6 ounces of pure joy!

    TTC#2  No birth control since DD was born.  Getting ready to jump back in the saddle.  Weaning this month. RE
    appt scheduled 5/8.   Here we go again!

    IFV# 6.  10/27  6 retrieved 4 mature 3 fertilized.  2 made it to 3dt 10/30. 1"very pretty 8 cell" and 1 6 cell.  Beta
    11/13.   Please stick embies!!!!  We love you so much already! 11/12/14  POAS, BFP... beta tomorrow!
    11/13 beta #1  924!!!  2nd bet 11/15 1906, one more on 11/17 3rd & final beta 3430.  First u/s 12/5, 7w4d, 2 heartbeats,
    both measuring right on track....2nd u/s... all is well... both beans measuring right on track... released from RE... first
    appointment with MFM 1/5.  Looks like this is really happening!

    image




This discussion has been closed.
Choose Another Board
Search Boards
"
"