Will I ever get a break?

Pintobean39

I have some kind of muscle disorder that causes my muscles not to work correctly.  I have been under the care of 3 neurologist for the past year.  They have thrown around they thought I may have ms because I had slightly elevated proteins in the spinal fluid but then they think I don't because my MRI's have been normal.  I also have neuropathy in my legs.  While I was pregnant all my symptoms went away and as soon as I miscarried they came back.

Yesterday I had an appt with my neurologist for refill of my rx.   I explained this all to her.  So she pulled all my test that have been done in the past year pulled another neurologist that I see in to go over them all again.  Now they are thinking I have an autoimmune disease that is attacking my muscles and want me to see a rheumatologist to get more test done.  

When I started TTC my OB thought I may want to wait until they figure out what is going on just in case it is something that may cause me not to be able to raise another child.  I didn't try real hard because I was scared I couldn't raise a child or even be able to handle being pregnant.  Well now I have to start having more test so it could be even longer before I get a DX if I ever do.  My only thing is while I was pregnant I felt WONDERFUL.  So I know I can handle a pregnancy but I'm still worried about what will happen to my body in the future.  My DH said if something happens and I have a hard time raising the child he will get me help because he works a lot as a MD and I am going to stay at home.

I'm 39 and I want another baby so bad.  This will be my DH's first child and I want to give it to him.  I'm just so scared of what my future holds.  I plan to continue TTC, my neurologist even said "get pregnant you will feel better".  I now worry that what is going on with me caused me to MC.  

Sometimes I just feel the world just keeps throwing things at me.  Sorry I just needed to vent! 

megad80

I'm so sorry you are having to go through all of this. I hope they are able to figure out what is going on! Best wishes for the best outcome possible!

BeckyP005

megad80:

I'm so sorry you are having to go through all of this. I hope they are able to figure out what is going on! Best wishes for the best outcome possible!

This. I'm sorry. Good luck to you.

QOTR

I hope you receive some answers soon.  good luck.

herecomesthesun

I'm so sorry. I hope you get some answers soon and some relief.