It's not fair ***siggy warning

julesverne

Since Jack's death, I have been looking for some place that I could donate to that does research on the heart defect he had.

My search led me to Facebook today and I came across several pages for people effected by Ebstein's Anomaly. As odd as it sounds, I was expecting to see post after post about parents losing their child to EA. Instead it was post after post of people saying that their child is doing great after surgery, and how grateful they are that they have such great doctors blah blah

WTF! Why did all these other babies survive this rare condition, and my baby didn't. I don't blame the doctor's-I think they did all they could. But what made Jack's condition so much more worse that nothing could be done.

I'm sorry..I don't wish for any parent to lose a child, but it's just not fair that other kids could beat the odds, and Jack couldn't.

Dixon813

I'm so sorry.  I woke up this morning to a post in a FB Triplet Loss group about a lady who had her triplets at a gestational age near mine.  She has lost one of her girls, but the other girl and boy have survived 2 weeks in the NICU. 

 I know it's still not an easy road for those two babies, and I don't wish her any more heartache than what she's already going through - but let's just say I woke up saying "it's not fair" this morning too...

 Hugs - many, many hugs

Noethola

I am so very sorry. It is incredibly hard to hear of others surviving, even though you wouldn't wish this on anyone. 

shandorfml2

I am so sorry. It isn't fair. PS- Jack is such a sweet, beautiful baby

cawettig

I know how you feel. Arianna was supposed to survive and the support groups for Arianna's condition are all about the ones who make it. All the drs told us she would be okay. I think that is what hurts so bad. All we heard from the drs was how she will survive and be healthy.
I'm sorry for your pain, I know how you feel.

BrittianyM

Very sorry and you're right, it's not fair at all. I feel the same way, even though we do not wish anyone else to go through losing a child, we always wonder why our little girl died from SIDS when everyone else has their child.

 

hopefulmom88

I'm so sorry that any of us have to feel this way. 

Our DD1 was born with a rare heart condition also (HLHS) and were told that she had a great chance of survival going into her surgeries (like 90% and on average survival rates are 70%).

 I remember thinking why couldn't Taylor survive when all the babies around us were recovering in like 2-3 days and getting moved to the NICU recovery area.

I wish that all kids could beat the odds.

Mjmksb04

I am so sorry. My DD had Shone's complex and I encountered the same thing, where i thought I would read similar stories like hers on some of the support pages only to see many stories of children who had the heart surgery and recovered successfully. It is frustrating. Big hugs to you.

JessicaG220

I cannot relate to your pain in every way, but I understand how you feel about it being unfair.  I feel the same in that I was 30 weeks pregnant, and Ava had such a high possibility of surviving outside the womb.  I wonder every day if not for the cord accident if she would have lived.  I feel like it's unfair that other babies born at 7 months live and thrive.  Why are we so unlucky?  I'm so sorry you're struggling.  Lots of peace and strength for you!!!