rop in eyes

LULUNJ

has anyone brought their baby to an opthamologist for this test?

i have an appointment on monday and i may cancel. my baby was never on oxygen ( too much is what causes rop) and over the weight in which this typically happens. I just feel like i do not want to do things that are not totally neccessary. in order to test this they have to hold her down, clamp open her eyes and dialate the pupils. her eyes are not crossing, she follows light with her eyes, reacts to camera flashes. this is caused by fluid seeping behind the retina because of too much oxygen.

what would you do? i am waiting on my pediatrician to call me back and see what she says.

KellyMichelle

DS had eye exams for ROP from 6 weeks old until a little after his original due date.  After that he had his eyes dialated and checked every 6 months for vision.  I personally would at least have his eyes dialated to check his vision.  There are many things that you can't see and can easily be corrected at an early age, rather than waiting until there is a bigger problem.  I would follow the opthamologists advice over a pedi in this situation because it is their specialty.

Mrs. Destructo

I would take him to the ophthalmologist. There are many things other than ROP that can go wrong with a preemie's eyes. The earlier problems are caught, the higher the chances of successful treatment. And if your preemie does have ROP, it can result in total blindness.

For example, one of my twins had ROP that resolved without treatment, thankfully. But next week I'm taking his twin brother, who never had ROP, to the opthamologist because his eyes are crossing

SBMBride406

Marino had this test 3 times. The last test was supposed to be the one where they clamp the eyes open, but the dr just used his fingers to open the eyes and he could see all the blood vessels were formed so he said no need to do the clamp/torture test, since he found what he was looking for.

SCOOTER

We had a check in the hospital, one after they were discharged and then again at 6months adjusted.  They never had to have their eyes clamped open.  We were tested since they were intubated and on CPAP though for less than 24 hours total.  They had no issues.  I'm wondering why they want to test the baby if they didn't have any O2, i would defer to what your ped says. 

njkaren

My baby was seen many times in the NICU and has been seen weekly since coming home 7 weeks ago at the opthamologist's office. He has ROP but he does not have plus disease which is why he has not had the laser surgery yet. He was recently sent to a retina specialist because the edge of his retina is raised so he needs to continue to be watched closely. Definitely bring your baby to get checked. It is so important.

MrsKatieH

Yes I would do it. And we did ...2x after NICU dishacrge and it was done 1-2x a week while Brendan was in the NICU.? Neither you nor your pedi are an opthamologist so I would go if only once just to be sure.??

heatherc13

I think you should go, just to make sure everything is ok. My twins were checked once in the NICU and we actually went to our last appointment last week (81/2 months - 5 months adj).  Any preemie is at risk, not just those who were on oxygen, they just have a higher risk.  It's not my favorite appointment but I know it was the best thing.  ROP can move fast if left undiagnosed or untreated so I would at least go to the initial appointment to determine if it's something you shoule worry about.  My girls had a very mild form and it never cleared up like they thought it would but we've also not had to do anything about it.  The Dr thinks there won't be any issues in the future, but just to make sure we'll go in 1 year from now.

Heather 

 

beckastar

I don't know much about it, but Gabi is supposed to have this same test Monday. ?I'd do it regardless, just to be on the safe side- but it's something that you have to be comfortable with.