Home!!!

flerlgirl · June 2013

I forgot to update here - my little man was released from baby jail last Monday!! He is on oxygen and an apnea and pulse ox monitor but he is doing great!! Just wanted to share and say thanks to all of you for your support these last few months!!

Babymaxwell513 · June 2013

Congratulations! It is the best feeling to be able to hold your baby whenever you want. My son came home on oxygen as well and other than the dogs and us occasionally tripping over the hose it wasn't so bad! Did they say how long they expect him to be on it?

flerlgirl · June 2013

Babymaxwell513:
Congratulations! It is the best feeling to be able to hold your baby whenever you want. My son came home on oxygen as well and other than the dogs and us occasionally tripping over the hose it wasn't so bad! Did they say how long they expect him to be on it?

Thank you! It's so great having him home. They said most likely about 7 or 8 weeks. He has chronic bpd and his lungs have been his biggest battle. How long was yours on it? Did he have the pulse ox monitor, too?

jbranden12 · June 2013

Great news! Congrats!

Denesdia · June 2013

Congrats, mama!

KatFCo · June 2013

That's wonderful! Congratulations. It's so great to finally have them home, isn't it? Have you had any reentry issues? I remember our first night it was so rough just because her nasal cannula kept slipping and we couldn't get those stupid little stickers to stay on her face. Such a silly thing now, but I remember it really stressing us out.

Brummy14 · June 2013

Congrats! Wonderful news. DD2 came home on an 1/8 liter of o2 along with the pulse-ox, so I totally feel ya. She was on the oxygen for 6 weeks -- they weaned her cold turkey and she rocked it out.

Just wait until you have the freedom of no wires or oxygen tubes!

jcsntms06 · June 2013

Congratulations on bring your little guy home!

flerlgirl · June 2013

Thank you all very much!!!

LnR70707 · June 2013

Wonderful news! Congratulations!

flerlgirl · June 2013

KatFCo:
That's wonderful! Congratulations. It's so great to finally have them home, isn't it? Have you had any reentry issues? I remember our first night it was so rough just because her nasal cannula kept slipping and we couldn't get those stupid little stickers to stay on her face. Such a silly thing now, but I remember it really stressing us out.

The cannula has been driving me up the wall. We finally figured out the perfect combo of tape and stickers to make it stay as long as he doesn't get too squirmy. The biggest issue is the pulse ox; that wouldn't stay if we glued it to his foot.

flerlgirl · June 2013

Brummy14:
Congrats! Wonderful news. DD2 came home on an 1/8 liter of o2 along with the pulse-ox, so I totally feel ya. She was on the oxygen for 6 weeks -- they weaned her cold turkey and she rocked it out.
Just wait until you have the freedom of no wires or oxygen tubes!

I can't wait for no wires!! We could power a small country with all the machines in our living room.

For the pulse ox, did you have trouble getting to stay and read properly? Ours keep crapping out. We keep re-taping them but unless we want to cover his foot in tape it won't stay.

Brummy14 · June 2013

flerlgirl:
Brummy14:
Congrats! Wonderful news. DD2 came home on an 1/8 liter of o2 along with the pulse-ox, so I totally feel ya. She was on the oxygen for 6 weeks -- they weaned her cold turkey and she rocked it out.
Just wait until you have the freedom of no wires or oxygen tubes!
I can't wait for no wires!! We could power a small country with all the machines in our living room.
For the pulse ox, did you have trouble getting to stay and read properly? Ours keep crapping out. We keep re-taping them but unless we want to cover his foot in tape it won't stay.

We did fight with the pulse-ox quite a bit. And, insurance would only pay for one sticky per week - so we haaaad to stretch it, no matter what. We usually just had one piece of tape that did the trick -- we just made sure that the red lights lined up on each side of the foot -- that was always the most difficult part. Once we got that set, we usually had a decent amount of luck.

Pips09 · June 2013

Amazing news! Congrats!

tlk432 · June 2013

Congratulations, great news! My son came home on oxygen as well, and I remember the day he only had to wear it at night and we got to see his face without the tube...it was amazing...he looked so different.

Wanted to make a couple suggestions for you that helped us out, if you haven't tried them yet. We put the stickies pretty far up on his temples, and that angle seemed to keep the tube in his nose the best. We ran out of stickies once and I bought some mole skin that worked pretty well. We cut the mole skin to about the same size as the sticky and put that on TOP of the sticky on his temples and used the mole skin to hold the tube in place. And for the pulse ox, we used extra first aid tape to go around his foot again, and then put a sock on his foot to keep it stay.

DrRx · June 2013

Congratulations!!! I remember that I had never been more excited about the word "Discharge" until DD got released! Smile

DD also had a oxygen, pulse ox, and an apnea monitor when she was released, but it was so much easier having her home than having to go to the NICU everyday.

Babymaxwell513 · June 2013

He was on o2 for 3 weeks.. 2 weeks at 1/16 liter and one week at 1/32 liter. He didn't have a pulse ox though. I hope you are only on o2 for little while :

flerlgirl · June 2013

tlk432:
Congratulations, great news! My son came home on oxygen as well, and I remember the day he only had to wear it at night and we got to see his face without the tube...it was amazing...he looked so different.
Wanted to make a couple suggestions for you that helped us out, if you haven't tried them yet. We put the stickies pretty far up on his temples, and that angle seemed to keep the tube in his nose the best. We ran out of stickies once and I bought some mole skin that worked pretty well. We cut the mole skin to about the same size as the sticky and put that on TOP of the sticky on his temples and used the mole skin to hold the tube in place. And for the pulse ox, we used extra first aid tape to go around his foot again, and then put a sock on his foot to keep it stay.

Thank you for the suggestions! He has figured out to how to grab his cannula and eat it, so putting it near his temples might finally thwart his evil plans...

flerlgirl · June 2013

Brummy14:
flerlgirl:
Brummy14:
Congrats! Wonderful news. DD2 came home on an 1/8 liter of o2 along with the pulse-ox, so I totally feel ya. She was on the oxygen for 6 weeks -- they weaned her cold turkey and she rocked it out.
Just wait until you have the freedom of no wires or oxygen tubes!
I can't wait for no wires!! We could power a small country with all the machines in our living room.
For the pulse ox, did you have trouble getting to stay and read properly? Ours keep crapping out. We keep re-taping them but unless we want to cover his foot in tape it won't stay.
We did fight with the pulse-ox quite a bit. And, insurance would only pay for one sticky per week - so we haaaad to stretch it, no matter what. We usually just had one piece of tape that did the trick -- we just made sure that the red lights lined up on each side of the foot -- that was always the most difficult part. Once we got that set, we usually had a decent amount of luck.

One of his RTs said to put it around his toe, which has helped some, too. But I didn't think of socks! I have been waiting for the perfect excuse to bust out his Batman socks. Thanks!!

flerlgirl · June 2013

Babymaxwell513:
He was on o2 for 3 weeks.. 2 weeks at 1/16 liter and one week at 1/32 liter. He didn't have a pulse ox though. I hope you are only on o2 for little while :

Gotcha. Josh is anywhere from 1/4 to 1/16 right now. I think he's just a drug addict, honestly.