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robynlesley

Princess_Lily

DS is over-responsive to the taste sense too.

 

Are there foods/drinks he will ingest & finish?

Liquids can be requested to be flavored, or you can sneak the meds in applesauce or yogurt.  Also, ask your pharmacist if he can have his medication diluted into his favorite drink.  Its more trial and error of what will work with your own child.

What you describe is your sons over-responsiveness (aka. fight-or-flight response) to the taste sense, which is one of the various senses affected by SPD. 

My DS has this, and will not chew unfamiliar or strong smelling soft foods (ie. Gummy Bears, Gum, Grilled Chicken, Rice, Bananas, etc.) 

 

 

kcisthebombdotcom

My daughter has spd along with epilepsy and has to take seizure medication three times a day. Honestly, we have to pin her down. Its easier with the evening dose since its a two person job but I do manage the midday one alone (really dont have a choice). I put her on a pillow lying down and position my torso so she can't get her arms/legs free. With one hand I pinch her cheeks so she doesn't let the meds run out of her mouth and the other hand I inject the liquid. It's not ideal and I wish she'd take it without a battle but were not there yet. 

robynlesley

Princess_Lily:

DS is over-responsive to the taste sense too.

 

Are there foods/drinks he will ingest & finish?

Liquids can be requested to be flavored, or you can sneak the meds in applesauce or yogurt.  Also, ask your pharmacist if he can have his medication diluted into his favorite drink.  Its more trial and error of what will work with your own child.

What you describe is your sons over-responsiveness (aka. fight-or-flight response) to the taste sense, which is one of the various senses affected by SPD. 

My DS has this, and will not chew unfamiliar or strong smelling soft foods (ie. Gummy Bears, Gum, Grilled Chicken, Rice, Bananas, etc.)

He definitely has the fight or flight response. Usually does both. I think I'd have an easier time of sneaking it in food if he had any appetite post op. But he doesn't. He's only drinking water for now. Hoping today will be better.

Usually he seems to be OK with various textures but he will not chew unfamiliar foods. I did a reward chart for trying foods and it did help. But since he's only allowed a soft diet for the next 10 days, I anticipate some weight loss. 

He also seldom drinks anything beyond water. Occasionally he'll have milk or iced tea. But that's random.

Princess_Lily

I know its not an "ideal" way, but if the medication antibiotic is a liquid...

You can pin him down, utilizing your legs light amount of weight. Have the liquid medication ready in a syringe and with a free hold his head, and get the syringe in the inner side of his cheek squeeze the liquid slowly as to not choke.

Then, blow into his face lightly he will swallow it or most of it.

Swallowing after air is blown in their face is an automatic response children have and it works.

Antibiotic is so important postOP. The experience will be scary nerve wracking for both you and your child...but he needs that medication regardless.

Stay strong mama!

funchicken

I have to bribe my older DD to take antibiotics.  Usually I give her a chocolate chip after she takes her dose to "get the taste out."  If she gets herself worked up about it, she'll throw up, but if we agree that it tastes bad but she'll get something she likes to get the taste out of her mouth, she'll take it.

finsup

I'm with you on the difficulty of medications.  I've tried it ALL.  For us, DS doesn't really eat soft foods that you could typically hide medication in - yogurt, applesauce, pudding are all out. 

The only way I can get it in him is to mix it with a small amount of Orange Juice.   it tastes gross and he knows it, but he'll drink it this way, and he gets a reward when its all down.  

mommytoconnor

My son has SPD and also had oral aversions.  His ST and OT recommended getting him chewy tubes(amazon online) and a vibrating toothbrush.  They say there are more nerves in the jaw than in most other parts of the body so many kids can have terrible oral issues.  I would definately try the above, get a cheap vibrating toothbrush and they can just use it whenever they feel the need, not specifically for brushing teeth.

robynlesley

Thanks for your replies. I guess I may have to try pinning him down. I hate to do it, but I will.  

Since he aged out of EI it's been tough on my own with the sensory stuff. I was out of work for 5 months and then the only private OT I could find that took my insurance had a wait list. And the school district didn't consider his sensory needs and lack of coordination enough to qualify for the public special needs preschool. I am hoping for the best at his OT eval.

robynlesley

-auntie-:

Does his surgeon or pedi "get" that you can't get medicine into him? 

I mean, it does really matter if he doesn't take a pain killer if he makes that choice, but an antibiotic isn't something that's necessarily optional. His doctor could have run a long acting medication while he on an IV. I had to have foot surgery a couple years ago (I stepped on a broken wine glass and had a shard of glass form an abcess) and the doc gave me some powerful antibiotic that made me really, really sick to my stomach ahead of surgery. When I mentioned how hard it was on my gut, he gave me a long acting formulation by IV while I was in the hospital.

I don't think his ENT "gets" it. Though when I called to let him know the issues, he told me that the antibiotics prescribed were prophylactic and he was more concerned with keeping his pain levels down so he could drink and eat to heal from the tonsillectomy.

When DS was in recovery, he literally ripped the IV out and thrashed so much that two nurses were holding him down when we arrived and they decided to leave the IV out if we could get him to drink by mouth (which we did). I wish they had given him antibiotics through the IV when he was out. Hindsight is 20/20.  Last year he took meds. Never easily but he took them. But something happened in March and he freaks.

Last night he was running a slight fever and DH and I did force the Motrin down this throat. He almost thew up (nasty hiccups and burps) from the carrying on.  

I'm hoping that, once he's eating again, I can attempt to hide the antibiotics (add tons of sugar or sweet flavors) in milkshakes or something. But he's totally on to that and I'm not sure I can pull it off.