Hi everyone. Thanks for your kind thoughts.
I'm out of surgery. Amanda is getting the car from the garage and I thought I'd pass the time by updating you all.
As I woke up in the recovery room I had a memory of our doctor telling me that I had stage 4 endo in both of my tubes. I didn't remember anything else. When I got taken to the second recovery room, M confirmed that that is indeed what the doctor had told me. What I didn't remember it that apparently I pulled out my own throat tube and was talking to the doctor.
They removed both of my tubes. They could have left the right one in but the doctor thought there was very little chance of it working correctly. And the advantage to having both tubes out is that the provincial health care program will cover half of the cost of IVF is you have a bilateral blockage or both tubes removed. If they'd left it in, it technically wouldn't have been completely blocked so we wouldn't have gotten that six thousand dollar savings. So given the givens I guess I'm glad they're out.
I can't say that I'm totally surprised by this outcome. 2mamazinseattle had told me that if something is wrong with one tube it is often wrong with both. And I have really bad periods cramps so the idea that I have endo is not surprising.
Apparently I actually have endo all over not just in my tubes. That said, the doctor does not think I will have a problem carrying a pregnancy or producing eggs for a retrieval.
I think the plan is that we are going to go in to meet with the doctor next week and she is going to start me on birth control to help clear things up. M can say more about this.
Then M and I have to figur out our budget and who is going first for carrying my eggs.
****loss discussed*****We're queer. I'm 33, have severe stage 4 endo, and had both fallopian tubes removed. My love ("Manada" on the boards, 32) was diagnosed with diminished ovarian reserve. We did Partner IVF (my eggs, her uterus). We lost our twins Tavin and Casey at 21 weeks gestation.Our IUIs
with @Manada: IUI# 1-7 (December 2012- September 2013) all BFN. Tried natural, femara, clomid, puregon/follistim, clomid and menopur combo, both the ovidrel and HCG triggers.
Our IVFs:
IVF #1 my eggs November/December 2013: Cancelled IVF due to poor response
IVF #2 my eggs/Manada's uterus January/February 2014
BCPs and lupron overlap Stimmed: 1/22-2/2: Bravelle and Menopur (dosage ranged from B300 and M150 to B375 and M150 to B300 and M225)
2/4 retrieved 10 eggs. Endo was much worse than expected. Only 3 eggs fertilized; February 7 transferred two day 3 embryos, froze one. All great condition.
BFP eve of 6dp3dt; Beta 1 (11dp3dt): 110; Beta 2 (13dp3dt): 175; Beta 3 (15dp3dt): 348; Beta 4 (19dp3dt): 2222; Beta 5 (21dp3dt): 4255
1st ultrasound (3/6 6w 1d): TWINS!!!! Twin A measuring 6w1d with a heartbeat of 118bpm. Twin B measuring 6w0d with a heartbeat of 113bpm.
***July 18, 2014 we lost our beautiful babies at 21 weeks gestation. They were born too early. Tavin Sara T. and Casey Elizabeth T. are beautiful and precious and we will love them and miss them forever.***
FET #1 December 2014Intralipid infusion on Dec 10. Transfer of 1 day 3 nine-cell embryo into my uterus on Dec. 19. (acupuncture immediately before and after)BFP on Dec. 27; Beta 1 Jan 2 (14dp3dt): 665, Beta 2 Jan 4 (16dp3dt): 1859, Beta 3 Jan 6 (18dp3dt): 4449, Beta 4 Jan 10 (22dp3dt): 12,251.
Re: Surgery update
We're queer. I'm 33, have severe stage 4 endo, and had both fallopian tubes removed. My love ("Manada" on the boards, 32) was diagnosed with diminished ovarian reserve. We did Partner IVF (my eggs, her uterus). We lost our twins Tavin and Casey at 21 weeks gestation.
Our IUIs
with @Manada: IUI# 1-7 (December 2012- September 2013) all BFN. Tried natural, femara, clomid, puregon/follistim, clomid and menopur combo, both the ovidrel and HCG triggers.
Our IVFs:
IVF #1 my eggs November/December 2013: Cancelled IVF due to poor response
IVF #2 my eggs/Manada's uterus January/February 2014
BCPs and lupron overlap Stimmed: 1/22-2/2: Bravelle and Menopur (dosage ranged from B300 and M150 to B375 and M150 to B300 and M225)
2/4 retrieved 10 eggs. Endo was much worse than expected. Only 3 eggs fertilized; February 7 transferred two day 3 embryos, froze one. All great condition.
BFP eve of 6dp3dt; Beta 1 (11dp3dt): 110; Beta 2 (13dp3dt): 175; Beta 3 (15dp3dt): 348; Beta 4 (19dp3dt): 2222; Beta 5 (21dp3dt): 4255
1st ultrasound (3/6 6w 1d): TWINS!!!! Twin A measuring 6w1d with a heartbeat of 118bpm. Twin B measuring 6w0d with a heartbeat of 113bpm.
***July 18, 2014 we lost our beautiful babies at 21 weeks gestation. They were born too early. Tavin Sara T. and Casey Elizabeth T. are beautiful and precious and we will love them and miss them forever.***
FET #1 December 2014
I just tucked H into bed. Yes, the doc confirmed stage 4 endo all over the tubes and ovaries. She said it was pretty severe and definitely accounts for the tubal blockages. The huge cyst that showed up on the ultrasound was also a chocolate cyst, so that has been removed. Apparently we will get to see photos of it at some point when the doc gets them in the chart.
Both tubes were removed and we are now, unequivocally, on an IVF path. H is doing okay and sleeping off some gravol now. We are both still processing the dx and removal.
That said, the doc assured me postop that with the pill to suppress the endo for a couple of months, there is really no reason to believe that a successful
Egg retrieval and embryo transfer won't happen. So that's some good news at least.
Thank you for all your support and kind words. We really appreciate them.
queer couple - 32 (me) & 33 (my love) years old - donor sperm,
Our IF/TTC journey since Nov 2012.
Me: dx of DOR in Nov. 2012. Low AMH, AFC - 6, Normal FSH, SS-A (RO) Antibodies (Autoimmune issues), tubes clear, Sono (November 2013) NORMAL! <p>
7 IUI's - December 2012-September 2013. Medicated, Injected, Triggered.... all BFN.
My Love: (the amazing @Healz413)
Normal AMH & FSH, AFC ~27, blocked tube dx'd via HSG in 2012. Hydrosalpinx & ovarian cyst dx'd in May 2013.
dx of Stage IV Endo & bilateral salpinectomy in June 2013.
Partner IVF#1a- December 2013 - H's eggs, my Ute - CANCELLED due to low response
Partner IVF #1b - February 2014 - H's eggs, my Ute - ER February 4 (10 retrieved, 3 fertilized), Transfer Feb 7 of one Grade 1 and one Grade 2 day 3 embryos. 1 - Day 3, Grade 1 frosty saved. BFP - 6dp3dt via FRER, Beta #1 - 110, Beta #2 175, Beta #3 - 348, Beta #4 - 2222!, Beta #5 - 4255. Ultrasound (6w1d) - 2 heartbearts!
We lost our beautiful Twin baby girls on June 18, 2014. Tavin Sara and Casey Elizabeth were born at 21 weeks gestation and were absolutely beautiful, precious, amazing babies. We miss our daughters every day and love them with all our hearts.
Oh Healz! And Manada! That is so much to digest....
But first, I'm glad you're safe an on the other side of the surgery. Second, while my heart sank when I saw they took both of your tubes - when I awoke to the same news when I had my tubes out, I remember thinking "well, I don't want things in my body that have gone bad..." so I'm glad they are both out if they were both going to cause you pain and problems later, even if it does complicate TTC.
It sounds like you have good docs who are being honest and clear with you on things. I know you have to re-think your road to a LO, but there are lots of options and there are some cool things about IVF (for example, you know for sure the sperm and egg have met!).
All in all though, I'm so sorry this process has just sucked for you both. But you are totally tough cookies and you will get through it and figure out your best path forward. For now, Healz you heal up and let Manada take good care of you
(And p.s. don't forget the little tip I sent you!!!!)
xoxo thinking of you both!
Me (43) and J (45) - same sex couple. And we don't feel 40+!
June'12 - First RE Visit
Sept. '12 - Tubes removed
Dec. '12 - Donor Egg/Donor Sperm IVF Cycle - 4 good embies!
Dec. '12 - Fresh transfer, BFP! EDD 8/29/13
Mar. '13 - Missed m/c at 16w1d, baby boy stopped growing at 15w4d
Loss due to umbilical cord clot...baby was perfect.
Jul '13 - FET#1 - c/p
Sept. '13 - FET#2 - BFN
Dec.' 2, 2013 - FET#3 with our last chance embie - BFP!!!
Dec' 26, 2013 - hb!!
EDD 8/20/14 with a baby girl!
Little S was born on 8/21/14 - 8lb, 14 oz and 20 inches long.
We live in Seattle and used SRM for our donor egg IVF cycle
9 IUIs = 9 BFNs
IVF October 2012: 22 eggs retrieved, 17 fertilized, 5 frozen
ET #1: 1 blast = BFP; Blighted ovum discovered at 7w5d; D&E
FET #1: 1 blast = BFP; Missed m/c discovered at 9w5d; D&E
Karyotyping: normal ~ RPL Testing: normal ~ Hysteroscopy: normal
FET #2: 1 blast transferred 10/25; BFP 10/31!
EDD 7/13/14 ~ Induced at 37w4d due to pre-eclampsia ~ Born on 6/28/14
*Everyone welcome*
Glad to hear that you are recovering and in decent spirits -- hopefully you will be back on your feet in just a few days.
I am sorry to hear about the loss of your tubes, but it sounds like you have a really good outlook about the path that you are on now. I am excited to hear about your next steps with IVF.
Best wishes for a speedy recovery!
Me - 30, My wife - 31 , Together for 10 yrs - Married August 2012
5 medicated IUIs w/ RE (March - July 2013) = BFN
Fresh IVF Cycle in September 2013 resulted in 18 mature eggs, 16 fertilized, 12 made it to day 5. Transfer of 2 Grade A blastocysts on 9/15/13, and 10 embryos in the freezer! *****BFP on 9/25/13 - betas: @10dp5dt = 232; @12dp5dt = 465; @15dp5dt = 1,581 *********William George born June 4, 2014*********TTC with RE since March 2012
3 missed O's, 6 IUIs = 1 BFP then 8 w M/C, 5 BFNs
(2 unmedicated IUIs, 2 clomid IUI, 2 femara IUI)
Shared maternity/partner IVF, transfer #1 BFP!
EDD 11/28/13
We're queer. I'm 33, have severe stage 4 endo, and had both fallopian tubes removed. My love ("Manada" on the boards, 32) was diagnosed with diminished ovarian reserve. We did Partner IVF (my eggs, her uterus). We lost our twins Tavin and Casey at 21 weeks gestation.
Our IUIs
with @Manada: IUI# 1-7 (December 2012- September 2013) all BFN. Tried natural, femara, clomid, puregon/follistim, clomid and menopur combo, both the ovidrel and HCG triggers.
Our IVFs:
IVF #1 my eggs November/December 2013: Cancelled IVF due to poor response
IVF #2 my eggs/Manada's uterus January/February 2014
BCPs and lupron overlap Stimmed: 1/22-2/2: Bravelle and Menopur (dosage ranged from B300 and M150 to B375 and M150 to B300 and M225)
2/4 retrieved 10 eggs. Endo was much worse than expected. Only 3 eggs fertilized; February 7 transferred two day 3 embryos, froze one. All great condition.
BFP eve of 6dp3dt; Beta 1 (11dp3dt): 110; Beta 2 (13dp3dt): 175; Beta 3 (15dp3dt): 348; Beta 4 (19dp3dt): 2222; Beta 5 (21dp3dt): 4255
1st ultrasound (3/6 6w 1d): TWINS!!!! Twin A measuring 6w1d with a heartbeat of 118bpm. Twin B measuring 6w0d with a heartbeat of 113bpm.
***July 18, 2014 we lost our beautiful babies at 21 weeks gestation. They were born too early. Tavin Sara T. and Casey Elizabeth T. are beautiful and precious and we will love them and miss them forever.***
FET #1 December 2014