Short story~ Rowan had MSPI diagnosed at 2 weeks old due to congestion, rashes, anal fissures and bloody stools. Elimination diet failed. Alimentum and she reacted to the casein. Eventually got neocate. At 6 months rice cereal gave her red bumps on her face...like a contact dematitis. More diaper rashes as more foods got introduced...some yeast rashes and some red and open/weeping rashes. Had reflux until 10 months old. At 11 months the chiro said Rowan reacted to corn, wheat, rice, oats so to eliminate those for her as well and that meant stopping neocate and using almond milk. The congestion she had (which was a constant loud chest rattle plus draining nose plus chronic ear infections due to constant drainage) went away in 36 hours! GONE! I fed her homemade purees for a month and she was all clear! Her nose was finally dry, her lung sounds were finally clear, she was good!!! Then at her 1 yr appt we found out she had dropped to the 1st percentile for weight (from being 25-30% her whole life) and was not thriving. So I tried introducing coconut milk and coconut oil to fatten her up and other "safe" and organic meats. She got bumps and red diaper rashes from the coconut. And for the last month she has been all runny again due to the various foods we are trying to give her to fatten her up. Saw an allergist today and scratch test was normal and she said the food stuff is probably a coincidence or whatever but she can't really help me with that.
What now? Give up and just give her whatever and deal with whatever those symptoms hold for her? Restrict her diet but then she runs borderline for failure to thrive? End up with ear tubes because her drainage won't stop? I am tired for restricting her so much and she wants to eat normal food. She gets so pissed that she can't eat off our plates. I can't give her purees with olive oil added forever and she wants to eat grains and everything else. Nothing is anaphylactic and otherwise she is thriving in movement and in disposition, so do I just try a full diet and see what happens? I AM AT THE END OF MY ROPE!