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myasthenia gravis

penguincrazypenguincrazy member
in Special Needs
Does anyone here have experience with a diagnosis of myasthenia gravis?  If so, I have questions.
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Re: myasthenia gravis

  • realisticdreamsrealisticdreams member

    imagepenguincrazy:
    Does anyone here have experience with a diagnosis of myasthenia gravis?  If so, I have questions.

     

    very very  limited experience, my ex's little sister was diagnosed when she was a toddler.  All I know is that she was very very weak, and to the point where she could not open her own eye lids.  She had a treatment done which at the time was kind of new (she is 22ish now) and she has been in remission ever since.

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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  • NicoleWINicoleWI member
    I am never on this board. Just came over to see something tha t was cross posted. Anyway, my adult friend has it. She had her first baby in August. : Let me know if you would like to get in touch with her and I will see if it is okay to share her email.
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  • rosesandpeoniesrosesandpeonies member
    I have it but I was diagnosed as an adult.  You can PM me if you want.  
    DD (8/12/09), DD (2/8/11)
    BFP 12/16/14| EDD 8/19/15 |MMC 1/15/15 (9 weeks 1 day)
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  • epapcunepapcun member
    I was Dx at age 18 now 29 and had a thymectomy about 8 months after Dx. Thankfully, I've been in remission ever since. I'm 28 weeks pregnant with my first baby, and have not had any MG complications to this point. I've met with high risk OB, but am followed by my general OB, and I will meet with high risk anesthesia as I get closer to my due date, as medication tolerances are different with MG. I'm happy to answer any questions I might have experience with!
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  • lavafalls11lavafalls11 member
    I have it. diagnosis three months after having my lo. 
    happy to answer questions 
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